Not being able to comfort, hold or do anything for your baby majority of the time because of their high tone from their medical complexities is one of the most defeating feelings in the world. #FuckYouPontocerebellarHypoplasia#heartbreaking
Low key jealous of the parents who donโt have to have their children hooked up to a pulse oximeter 24/7 to make sure their 02 sats and heart rate donโt drop and have to take appropriate actions if needed. Donโt get me wrong though, we are blessed with our little girls โค๏ธ