APPG for Heart Valve Disease

All-Party Parliamentary Group focused on improving the detection, diagnosis and treatment of heart valve disease. With Secretariat from @HeartValveVoice

[APPG for Heart Valve Disease @APPG_HVD]

Congratulations to Phill on his appointment as Chair of UK heart valve disease charity, Heart Valve Voice.

[Heart Valve Voice @HeartValveVoice]

In a landmark moment for the valve disease community, Heart Valve Voice proudly announces the appointment of its new Chair, Phill Read.

Please join us in congratulating Phill, who becomes the first patient to Chair our Board of Trustees.

Read more here https://t.co/twkHJDAVkd

[Heart Valve Voice @HeartValveVoice]

As part of #HeartMonth past National Clinical Director for Heart Disease, Professor Huon Gray CBE, reflects on a decade of progress in tackling heart valve disease, and the challenges that persist. #KnowYourHeart

Read more here: https://t.co/I20dRqlycF

[Heart Valve Voice @HeartValveVoice]

We got a special #ValveWeek23 message from the Speaker of the House of Commons @LindsayHoyle_MP

Thank you Sir Lindsay for joining us to #TalkValveDisease and sharing our #ListenToYourHeart message

[British Cardiovascular Society @BritishCardioSo]

@HeartValveVoice and @APPG_HVD have published a survey looking at the challenges Cath Lab staff face in providing optimal pathways for valve disease. The survey highlights the battle staff face to perform their jobs and save lives.

Read more at: https://t.co/yryVX80LI1

[Heart Valve Voice @HeartValveVoice]

Today, Heart Valve Voice publish the Big Nine Survey into Cath Labs in the UK. We asked clinicians across the country what are the biggest barriers to optimising pathways, and what are the solutions to those barriers.

Read more here
https://t.co/ke6K15A90h

[Heart Valve Voice @HeartValveVoice]

Heart Valve Voice is saddened to learn of Baroness Masham's passing. Baroness Masham has been a supporter of the charity for many years, giving a voice to patients and working hard to improve the detection, diagnosis and treatment of the condition.

https://t.co/rKp75z563K

[Heart Valve Voice @HeartValveVoice]

Delighted to have @steve_mccabe at our #YourHeartMatters testing event with @UkValve and @uhbtrust in Birmingham yesterday. Since being treated for valve disease, Steve has been a voice for valve patients in Parliament and is Chair of @APPG_HVD. Thanks for your support, Steve.

[APPG for Heart Valve Disease @APPG_HVD]

Well done to @HeartValveVoice and @UkValve on this excellent initiative. Great to see our Chair @steve_mccabe supporting the event. #YourHeartMatters

[Heart Valve Voice @HeartValveVoice]

What a fantastic day in Birmingham with @UkValve and @uhbtrust!! Thank you to the people of Birmingham for being so welcoming, and to everyone who came for a heart check. With your help, we've promoted early detection and awareness of valve disease in Birmingham #YourHeartMatters

[Heart Valve Voice @HeartValveVoice]

What a fantastic day in Birmingham with @UkValve and @uhbtrust!! Thank you to the people of Birmingham for being so welcoming, and to everyone who came for a heart check. With your help, we've promoted early detection and awareness of valve disease in Birmingham #YourHeartMatters

[Heart Valve Voice @HeartValveVoice]

One year ago, we challenged ourselves to start 100,000 Conversations about the signs and symptoms of heart valve disease … and we did it! The campaign might be over, but the challenge doesn’t end.
#TalkValveDisease today, it could save a life!

[Heart Valve Voice @HeartValveVoice]

Today we launch our State of the Nation: Scotland Report, where we have looked at the detection, diagnosis and treatment of heart valve disease in Scotland.

Read more here https://t.co/fMN5YSv4uP

[APPG for Heart Valve Disease @APPG_HVD]

Thank you, Angie, for attending our Evidence Sessions and describing your experience of the heart valve disease pathway. Patient Advocacy is a powerful tool, and your candid testimony highlighted was insightful and impactful.

[Heart Valve Voice @HeartValveVoice]

Read Angie Martin's blog on patient advocacy in the @APPG_HVD evidence sessions, and being a part of the @NICEComms consultation for the heart valve disease guidelines

https://t.co/AQXDlzTHAC

#TalkValveDisease

[APPG for Heart Valve Disease @APPG_HVD]

A statement from our Chair, @steve_mccabe, on the publication of the @NICEComms guidelines for adults presenting with heart valve disease

https://t.co/8lPSodQjxu

[Wil Woan @WilWoan]

Very pleased to be attending the #CVDHealthCheck report launch today. Important that we #TalkValveDisease to tackle under diagnosis and under treatment of this serious, common but treatable disease. @APPG_HVD @HeartValveVoice @GlobalHeartHub

[Wil Woan @WilWoan]

Great to have the support of the Shadow Health Secretary for our #ValveWeek21 campaign. Over the past week, @HeartValveVoice have had extraordinary cross-party support for our #ListenToYourHeart message, helping us spread the message to all communities in the UK. @GlobalHeartHub

[Jonathan Ashworth @JonAshworth]

Congratulations to @HeartValveVoice on a brilliant #ValveWeek21. They've spread the #ListenToYourHeart message to millions to raise awareness of this common, serious, but treatable condition.

[APPG for Heart Valve Disease @APPG_HVD]

Livvy spoke to our APPG in March before she was treated, and we’re delighted to see she has received the treatment she needed and has used that experience to give comfort and confidence to others going through the same. #ListenToYourHeart #ValveWeek21

[Heart Valve Voice @HeartValveVoice]

Watch Livvy's Valve Disease Open-Heart Surgery Video Diary.

Livvy documented her valve disease treatment story over the course of 5 months, after being given a date for surgery in March.

#ValveWeek21 #ListenToYourHeart

https://t.co/ucNzwpMx4O via @YouTube

[Steve McCabe @steve_mccabe]

As a former patient and Chair of @APPG_HVD I urge everyone to support #ValveWeek21 & help @HeartValveVoice raise awareness of this common, but treatable condition. If you feel breathless, dizzy or fatigue, #ListenToYourHeart and get a stethoscope check.


[Jo Churchill @Jochurchill_MP]

Delighted to meet with @HeartValveVoice @ImperialNHS as part of #ValveWeek21. If you feel breathless, dizzy or fatigued,#ListenToYourHeartand get a stethoscope check. Give your support to the campaign and raise awareness of the disease today.

[Wendy Chamberlain @wendychambLD]

Heart Valve Disease affects over 1.5 million people over the age of 65 in the UK. It is common, serious, but treatable. This Heart Valve Awareness Week, @HeartValveVoice is asking that you #ListenToYourHeart, as it could save your life. #ValveWeek21 @GlobalHeartHub