BC Complex Kids Society

A grassroots group of BC families with medically complex kids.

[BC Complex Kids Society @BCComplexKids]

@GERONursing @EstherJLee_MD Awesome.

[Inclusion BC @InclusionBC]

We are happy that the provincial government is doing the right thing and exempting the Canada Disability Benefit from clawbacks.

https://t.co/rFRbDzJs0a

@s_malcolmson #BCPoli #BuildABetterBenefit #EndDisabilityPoverty

[BC Complex Kids Society @BCComplexKids]

Creating more $10/day spots comes at the expense of families raising children with disabilities.
Children with disabilities continue to be wait listed for the support they need to attend. Not inclusive or equitable. @MitziDeanBC @GraceALore @Dave_Eby
https://t.co/R8X2R22UCV

[Louise Kinross @LouiseKinross]

'I think clinicians need to understand that they can harm families with a throw-away comment or an [unkind] look. There are harms that come from poor listening.' @HBKidsHospital @canchild_ca https://t.co/JFvlCgCrJU

[Inclusion BC @InclusionBC]

"When we spoke to people with disabilities ... we heard that attitudinal barriers disappear when people build relationships and share stories."
The way forward? "More and better media representations of disability."
YES to this.
https://t.co/NOGUvIEXua

[Down syndrome BC @downsyndromebc]

We are at the Canadian Pediatric Society Conference today, sharing information from our Survey’s on Access to Support, Education, Childcare & Receiving a Diagnosis.

Getting the information provided by our members into the hands of doctors, pediatricians & researchers!

#CPS2024

[BC Complex Kids Society @BCComplexKids]

@SenMoodie This wonderful news. We are however very concerned to see the the UNCRPD (disability rights framework) is not embedded in this bill. Now is the time to make critical amendments and make progress on Canada's international commitments!

[Children's Healthcare Canada @ChildHealthCan]

Families of medically complex children are facing challenges that need immediate attention & support. @EGruenwoldt stresses a national child health strategy & chief child health officer essential for securing a better future for 🇨🇦’s children. https://t.co/Nv934y0J7C

[Laesa Faith Kim @laesafaith]

“Life is a never ending fight for help.”

[BC Complex Kids Society @BCComplexKids]

It absolutely must include the UNCRPD. What does it mean to be a committed signatory if we are not embedding this rights framework in federal legislation?

[Inclusion BC @InclusionBC]

Any national strategy should also include references and actions about Canada's obligations towards children and youth with disabilities. Remember to include the UNCRPD in this Bill. @SenMoodie @InclusionCA

[Inclusion BC @InclusionBC]

Any national strategy should also include references and actions about Canada's obligations towards children and youth with disabilities. Remember to include the UNCRPD in this Bill. @SenMoodie @InclusionCA

[Inclusion BC @InclusionBC]

BC must take this as a warning. We need significant investment, strong leadership, and accountability to make sure students with disabilities are safe while accessing their right to education. @RachnaSinghNDP @HumanRights4BC

https://t.co/Du4zTMvGd6

#inclusiveed #publiced

[BC Complex Kids Society @BCComplexKids]

From coast to coast to coast... Canadian families raising children with medical complexity are suffering in the shadows with inadequate, inequitable and completely unjust access to critical support.
https://t.co/2wPhlqq4uJ

[Laesa Faith Kim @laesafaith]

Reflections from an evening spent in a pediatric ER. Springtime, in Canada.

Thread. 🧵

[BC Complex Kids Society @BCComplexKids]

“We thought of you when we made this place, and today could not happen if you weren’t a part of it.”
Just imagine if that was the message that EVERY child received because schools & education truly were designed for all. @RachnaSinghNDP

[BC Complex Kids Society @BCComplexKids]

@meaghan_mcleod @VSB39 @RachnaSinghNDP Thanks for sharing this. So glad to see this level of intentional universal design happening.

[Inclusion BC @InclusionBC]

70% of Canadian adults with an intellectual or developmental disability live in poverty. The hard-won CDB is intended to help alleviate this, and the BC gov’t must assure them that provincial clawbacks won't undermine this goal.
https://t.co/XgVFYqrIQv

[Inclusion Canada @InclusionCA]

Another concerning read. The 'door' needs to be fully closed!

The #CDB is a supplement - not a subtraction. P/Ts need to bring #PWD out of poverty not perpetuate it.

We call on fed govn't to ensure no clawbacks of any kind.

https://t.co/Rzumgm6zVy

[Inclusion BC @InclusionBC]

It's not okay to ask parents to vote on priorities for a district's budget when most items on the list are not optional but OBLIGATIONS to fulfill under the students' right to education. Stop treating inclusive education as optional #bced @VSB39 @RachnaSinghNDP @KasariGovender

[Bonnie McBride @SipsintheCity]

@DyslexiaBC @downsyndromebc @BCComplexKids @AdhdBc @BCEdAccess and more have been frantically advocating for the last 2 years, together and separately, for meaningful investment. We have been largely ignored.

As we move into our 2024 #BCbudget we have run out of patience. 4/