Behçet's UK

Caring for all affected by this rare, complex and lifelong condition.
Promoting research into the cause, effects, treatment and management of Behçet's.

[Behçet's UK @BehcetsUK]

📢 Contact us and follow the latest society news at https://t.co/sM8knTkgVt #Behcets

[Behçet's UK @BehcetsUK]

The Northern Ireland Support Group are meeting at 11am on Saturday 17 August 2024 at Strandfield Cafe, Dundalk, County Louth, Ireland.

More info is on our website: https://t.co/tG7Q8Etghm

If you have any queries, please contact Fionnuala at [email protected]

[Behçet's UK @BehcetsUK]

Can you help us reach our summer fundraising goals with your everyday online shopping?🌞

It only takes 2 minutes to join @giveasyoulive , so start raising FREE donations today! > https://t.co/dXQFapR1xX

Thank you to everyone who is already signed up! 🙌 #Behcets

[Behçet's UK @BehcetsUK]

Thank you so much to Georgina who is doing a head shave this September in aid of Behçet's UK, in honour of her wife who has the condition ❤

Donate to Georgina's JustGiving page: https://t.co/Qw1JOf48nu

Thank you to everyone who has donated 🙌 #Behcets

[Behçet's UK @BehcetsUK]

Is your child with #Behcets anxious about returning to school or college this September?

Our guide for teachers, staff, parents and carers explains what the condition is, and how it might affect a child or young person whilst at school or college.

https://t.co/tT0CjkIZSl

[Behçet's UK @BehcetsUK]

Our summer newsletter recently went out to members by email and post 🍦🌻🌞

Newsletters are an exclusive benefit of Behçet's UK membership.

To find out more and join today, go to https://t.co/qO6AbIJqDM #Behcets

[Behçet's UK @BehcetsUK]

📢 SUPPORT GROUP MEETING THIS EVENING 📢

Don't forget, volunteer Clare Gibson is hosting an online support group on Zoom this evening, Wednesday 17 July from 7.30pm-9pm for any #Behcets patients (diagnosed or awaiting diagnosis) in England.

To join, email [email protected]

[Behçet's UK @BehcetsUK]

If you’d like more information about future support groups for those in Wales, or to be notified of the next meeting date when it is announced please email Rachael via [email protected]

[Behçet's UK @BehcetsUK]

Due to unforeseen circumstances the next support group meeting for those in Wales scheduled for Saturday 20 July 2024 has been postponed.

We apologise for any disappointment.

The next meeting will be arranged for September and the date will be confirmed at a later stage.

[Behçet's UK @BehcetsUK]

Did you know, when you sign up to @giveasyoulive the retailers you shop with will make a donation to us for every purchase you make?

It's free, and the funds help us to continue our work in supporting those affected by #Behcets

Sign up at https://t.co/k4z0wlFsnr

Thank you! 🙌

[Behçet's UK @BehcetsUK]

RESCHEDULED! Volunteer Clare Gibson has had to reschedule next week’s online support group on Zoom. It will now be held on Wed 17 July 2024 from 7.30pm-9:00pm for any #Behcets patients living in England.

If you are interested in joining, please email Clare via [email protected]

[Behçet's UK @BehcetsUK]

Thank you to everyone who joined us for our 2024 Friends & Family Day last Saturday @LlandegfeddLake in Monmouthshire, South Wales. We hope you all enjoyed it! 😊

Thank you so much to the staff @LlandegfeddLake for their help in making it a brilliant day 🙌

[Behçet's UK @BehcetsUK]

Have you considered becoming a member of Behçet's UK?

Behçet's UK cares for all those affected by #Behcets in the UK including patients and their families and carers.

Find out about membership and join today at https://t.co/qO6AbIJqDM #SmallCharityWeek

[Behçet's UK @BehcetsUK]

Behçet’s UK, formerly known as Behçet’s Syndrome Society was founded in 1983 by Judith (Judy) Buckle, a nurse & Behçet’s patient.

Over the years we have evolved to become the UK’s primary charity caring for all those affected by #Behcets

Find out more at https://t.co/zvtkBtHr1e

[Behçet's UK @BehcetsUK]

We’re supporting #SmallCharityWeek 🙌

Did you know that 96% of UK charities are small? We’re playing a big role in providing vital services to millions of people across the country.

[Behçet's UK @BehcetsUK]

We want the next government to review the prescription charge exemption list, so people with #Behcets in England don't pay for vital medication like the rest of the UK.

We signed the letter to party leaders asking them to commit to reviewing the charge #ReviewTheCharge #GE24

[Behçet's UK @BehcetsUK]

For #GE2024 we want candidates to pledge to help to improve awareness of genetic, rare and undiagnosed conditions including for those living with #Behcets
https://t.co/zx65G04FQf

Find out more at https://t.co/ZRq0O2fzVL

#Pledge4GRU @GeneticAll_UK

[Behçet's UK @BehcetsUK]

Your next MP can help improve the lives of people affected by neurological conditions, and conditions with neurological symptoms like #Behcets.

Call on your local parliamentary candidates to #BackThe1in6 & become a #NeuroChampion in the next Parliament. https://t.co/HgYOzIoSgL

[Behçet's UK @BehcetsUK]

📢 SUPPORT GROUP MEETING THIS SATURDAY 📢

Don't forget, trustee Rachael Humphreys is hosting a Zoom support group meeting for those affected by #Behcets in Wales this Saturday 15 June at 10am.

To join, please email [email protected] by 12pm midday tomorrow (Fri 14 June).

[Behçet's UK @BehcetsUK]

Have you remembered Father’s Day is Sunday 16 June?

If you think Dad would prefer an e-card and the cost of a paper card donated to Behçet's UK, then you can send yours at: https://t.co/4tjPZelDCE

Thank you to everyone who uses @dontsendmeacard to raise funds for Behçet's UK!