SaveBennyandJosh

Mom to Benny and Josh afflicted with Canavans Disease. On a mission to bring treatment out of the lab and into patients hands.

[SaveBennyandJosh @BennyandJosh]

Take a deep breath.... https://t.co/XYt0hs2eE4

[SaveBennyandJosh @BennyandJosh]

A little over two yea... https://t.co/hpB3b719i2

[SaveBennyandJosh @BennyandJosh]

@pulte This can help save my boys lives!!!

[SaveBennyandJosh @BennyandJosh]

Monday July 31, 2017 - This day will forever be ingrained in my mind. It was a Monday... https://t.co/WnKJkjTlHw

[SaveBennyandJosh @BennyandJosh]

Last year Benny and Josh's birthday came and went. It was too hard for us to celebrate.... https://t.co/WnKJkjTlHw

[SaveBennyandJosh @BennyandJosh]

On Monday May 20th we welcomed baby boy Landsman to the world - at home - our second ho... https://t.co/WnKJkjTlHw

[SaveBennyandJosh @BennyandJosh]

https://t.co/buUHlRuikJ
Our story in this weeks Hamodia.

[SaveBennyandJosh @BennyandJosh]

I’ve been burdened with what feels like big news, for the past couple of weeks, but I h... https://t.co/WnKJkjTlHw

[SaveBennyandJosh @BennyandJosh]

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[SaveBennyandJosh @BennyandJosh]

@SGottliebFDA let’s get Benny and Josh cures through the help of the FDA and their commitment to Rare disease!