Bertrand Verwee

Passionate about improving life for people with rare diseases. Enables industry-patient organisation partnerships to produce patient-focused solutions.

[KalVista Pharmaceuticals, Inc. @KalVista]

KalVista has partnered with an advisor panel for the #MindtheHAEattack educational platform and #HAE publications. The panel is made up of experts in the HAE field, helping to cocreate informative content that is up to date with recent advances in HAE management and treatment.

[EURORDIS-Rare Diseases Europe @eurordis]

It’s #GlobalDayOfParents! 🧑‍🧑‍🧒‍🧒

Did you know? Around 40% of parents of an undiagnosed child meet the description of anxiety and depression.

Learn more about the challenges facing rare parents according to the latest #RareBarometer surveys: https://t.co/goYwSfItwIt’s #GlobalDayOfParents! 🧑‍🧑‍🧒‍🧒

Did you know? Around 40% of parents of an undiagnosed child meet the description of anxiety and depression.

Learn more about the challenges facing rare parents according to the latest #RareBarometer surveys: https://t.co/goYwSfItwIt’s #GlobalDayOfParents! 🧑‍🧑‍🧒‍🧒

Did you know? Around 40% of parents of an undiagnosed child meet the description of anxiety and depression.

Learn more about the challenges facing rare parents according to the latest #RareBarometer surveys: https://t.co/goYwSfItwIt’s #GlobalDayOfParents! 🧑‍🧑‍🧒‍🧒

Did you know? Around 40% of parents of an undiagnosed child meet the description of anxiety and depression.

Learn more about the challenges facing rare parents according to the latest #RareBarometer surveys: https://t.co/goYwSfItwIt’s #GlobalDayOfParents! 🧑‍🧑‍🧒‍🧒

Did you know? Around 40% of parents of an undiagnosed child meet the description of anxiety and depression.

Learn more about the challenges facing rare parents according to the latest #RareBarometer surveys: https://t.co/goYwSfItwY

[Bertrand Verwee @BertrandVerwee]

@KalVista Thank you very much Angela Metcalfe for such an inspiring day 😃! It is amazing what the #haeuk team has been able to achieve over the years. Congratulations to the #HAE UK team 👍 and looking forward to further supporting the #hae community! 🤝 #haeday

[Bertrand Verwee @BertrandVerwee]

Supporting people living with Rheumatoid Arthritis in Spain, from Switzerland! #ConArtritis #VenDeVerde #Galapagos #EULAR

[Iain B. McInnes @IainBMcInnes1]

If we can truly move to the prevention of chronic disease, the redirection of chronic into acute manageable, then we will have a very persuasive economic argument @EU_Commission @EUParl_EN @TheresaMEP @RobertaMetsola @BrusselsGeek @hcollis @EMEUNE

[Bertrand Verwee @BertrandVerwee]

An EU health policy for rheumatic and musculoskeletal diseases https://t.co/YKDSEDPK1y

[EU-PFF @EU_IPFF]

Rare diseases need your attention. #IPF patients need:

📢 Early diagnosis

📢 Better end-of-life & palliative care

📢 Equal access to care

Read the #IPF patient charter 👉 https://t.co/jx3CgHuTWC

#MyIPFstory #CureIPF #RareDiseases #idiopathicpulmonaryfibrosis #HealthForAll

[Iain B. McInnes @IainBMcInnes1]

#RMDs affect 1 in 4 people making them the main cause of #work loss, absenteeism and premature retirement; they are silently and negatively impacting on #European #economies https://t.co/K8DPOPLO4x

[EULAR @eular_org]

@eular_org President @IainBMcInnes1 speaks to @EURACTIV on #RMDs #work #chronicdiseases Opportunity in a crisis: European Union must enable people with chronic conditions to remain active in social and economic life https://t.co/1soQ2ZcDFq

[EU-PFF @EU_IPFF]

Highlighting the #IPFSummit2020 Person-Centred Care Track coordinators 🚶 🧘Thank you @KlausGeissler from Lungenfibrose e.V and @anmari_russell all your hard work! 📢 Find out more 👉https://t.co/D6GY42Ha7u

[Bertrand Verwee @BertrandVerwee]

I am lucky to be at work today. Over one million people in #Europe are not at work every day due to #RMDs #chronicdisease. #EULARBrussels2019 focusing on chronic diseases and inclusion in social and economic life.

[Bertrand Verwee @BertrandVerwee]

@EU_IPFF Many thanks to @EU_IPFF for bringing #MyIPFstory to #ERS2019 ! There is a need for more patient advocate involvement at scientific conferences. See you at #IPFSummit2020 !

[EU-PFF @EU_IPFF]

📢 Idiopathic pulmonary fibrosis, a respiratory disease marked by velcro-like crackles in the lungs, affects around 110000 people in Europe

👇Watch this #IPFstory from the Belgian #IPF association ABFPI (in French)

Madeleine cared for her mother for more than 3 yrs #MyIPFstory

[EU-PFF @EU_IPFF]

Research into #IPF can make a difference to patient lives 📢

Listen to @anmari_russell tell the story of her research with patients @ImperialNHS @ImperialCharity @NIHRresearch

#MyIPFstory #lunghealth #RareDiseases #HealthForAll #ListenToOurLungs

[EU-PFF @EU_IPFF]

Proud to share this from our American Partners @LungAssociation this #IPFWeek & #PFMonth as part our #MyIPFstory campaign 7 Things Everyone Should Know about Pulmonary Fibrosis https://t.co/QmUvEx5aOg

[EU-PFF @EU_IPFF]

@EU_IPFF will be at #ERS2019 to get latest learnings from @Boehringer @Promedior @Roche @GalapagosNV @Veracyte @AbVicore @Celgene @respivant & all companies working on #IPF this #PFMonth they are part of the #MyIPFstory

[EU-PFF @EU_IPFF]

Around 110000 people in Europe have #IPF. This #IPFWeek, we're sharing their stories 👇

[EU-PFF @EU_IPFF]

Doctors play an important role in ensuring patients are heard 👂

This #IPFWeek, we're sharing Katarzyna's story - she is a doctor working with patients & raising awareness of #IPF

#MyIPFstory #lunghealth #RareDiseases #HealthForAll #ListenToOurLungs

[EU-PFF @EU_IPFF]

👂 Have you listened to a patient share their experience of living with #IPF?

📢This #IPFWeek we're sharing Harry's #IPF story

Watch the video below to hear his experiences 👇

@longfibrose

#MyIPFstory #CureIPF #RareDiseases #spoonie #ListenToOurLungs

[EU-PFF @EU_IPFF]

❗ Around 110 000 people in Europe have #IPF

❗ We’re calling for better access to palliative & end-of-life care

Take a stand for IPF patients

#MyIPFstory #CureIPF #RareDiseases #chronicdisease #idiopathicpulmonaryfibrosis #HealthForAll