Great energy and positive vibes to kickstart the year with parents @GPSouthMC. I enjoyed reflecting on our school story, sharing in laughter and looking forward optimistically to all that is to come. It had FUN!
STATE FINAL: Your Blue Devils finished in 3rd place overall out of 37 scoring teams, Logan Hepner is state champion and Diver of the Year, our relay team broke the state record, qualify for dream team, and are automatic All-Americans. Just…wow. #SOUTH
Boys D2 Swim and Dive State Finals today at Oakland University are underway and off to a BIG start for South: our 200IM relay team just BROKE THE STATE RECORD with a time of 1:31.85! Well done Keiran Rahmaan, Jake Vallan, Drew VanDeputte, and Tucker Briggs! #SOUTH
“How do we get the tens of thousands of ALS patients alive and dying today using the tools and the science that currently exist therapies that can keep patients alive to be here to see cures?” - @bsw5020#FDAHearings
@bsw5020@RepMikeQuigley You brought the entire audience to tears. I cry every time I watch it. Thank you for your courage, transparency & brilliance. The jury would have come back in 20 minutes!
So incredibly grateful for the commitment from @RepMikeQuigley. True #ALSHero
I managed not to cry during our testimony but I watched for the 1st time today and the tears flowed.
One thing not on camera is that @RepMikeQuigley was in the room to hear us even though he isn’t on the committee. THAT is how deeply he’s committed to this fight. He is amazing.
@NicholasFlorko@bsw5020@sabrevaya My husband stabilized in P3 #NurOwn trial & #EAP. 2 years since diagnosis & last week he went fly fishing in Montana. His breathing remains strong. He’s still walking (even in cowboy boots), talking clear, eating normal & singing to our 6 mo old. Why isn’t he enough #FDA?
It's worth watching this testimony from @bsw5020 and @sabrevaya on the FDA's approach toward ALS. Regardless of where you stand on the FDA's approach, it's very powerful and lays out what's at stake for people living with this disease. https://t.co/b8MlLzYlwn
Today I was present in the present all day. This may seem like a small thing but for me it was, well, everything.
Good night moon, and thank you for this day.