If I could recommend anything about EDS, it would be this documentary. It may be 45 minutes long, but itās something for us that is everyday life. Highly recommend this
TW // Contains discussion of suicide
āEDS: The Raw and Honest Truthā is a poignant documentary from @UHNMCharity offering an intimate look into the lives of people living with #EhlersDanlosSyndrome (EDS): https://t.co/dwVCTfKHQR
May is Ehlers-Danlos Syndromes Awareness Month. What are the Ehlers-Danlos syndromes (EDS)?ā
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The Ehlers-Danlos syndromes (EDS) are a group of heritable connective tissue disorders that vary in how they affect the body and their genetic causes.ā š§¬ā
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ā Variants in the genes that determine how the body makes collagen and other proteins that work alongside collagen have been shown to cause EDS. ā
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At this time, genetic variants have been found in all types of EDS, with the exception of hypermobile EDS (hEDS).ā š¬ā
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Connective tissue is everywhere in the body. It provides support and structure to other tissues and organs, including bone, ligaments, tendons, blood vessels, lymphatic vessels, the tissue that holds the gastrointestinal tract in place, etc. ā
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āļøā Signs and symptomsā
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Some certain signs and symptoms are common across all types of EDS. However, these can vary in severity between individuals, even with the same type of EDS. ā
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These include:ā
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⢠Joint hypermobilityā
⢠Joint instability with dislocations and/or subluxationsā
⢠Injury to connective tissues in and around jointsā
⢠Joint, muscle, and nerve painā
⢠Scoliosisā
⢠Herniasā
⢠Pelvic floor weakness and prolapseā
⢠Easy Bruisingā
⢠Stretchy skinā
⢠Fragile skinā
⢠Scarringā
⢠Slow or poor wound healingā
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In rarer genetically-defined types of EDS, there are specific concerns with certain tissues of the body that can present with complications such as:ā
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⢠Arterial/intestinal/uterine fragility or rupture (usuallyā
associated with vascular EDS (vEDS))ā
⢠Pneumothorax (collapsed lung)ā
⢠Severe dental and gum diseaseā
⢠Severe scarring of the cornea of the eyeā
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Across all the types of EDS, a number of conditions and symptoms are now also recognized as common. These include:ā
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⢠Fatigueā
⢠Autonomic dysfunction (such as fast heart rate and/or low blood pressure)ā
⢠Headachesā
⢠Gastrointestinal problemsā
⢠Anxiety disordersā
⢠Heavy and painful periods and bladder painā
⢠Allergies and intolerancesā
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ā”ļø Learn more here: https://t.co/hkadA9VH9j
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āļøWhat would you like people to know about EDS?
#MedTwitter #MedEd #EhlersDanlosSyndrome #Healthcare #Hypermobility
Check out these production shots from #TheColdBuffet taken by @VonFoxUK
See the rest & get your tickets for this tasty drama laced with dry humour and interpersonal tension (its on until 28 Oct) at https://t.co/ZQ1lY3iTw4
We've had our first review in for #TheColdBuffet from its 1st preview performance & it's a good un!
Stephen @InTheToon came along last night (before it gets officially reviewed next wk) & said: 'The Cold Buffet is a triumph of skilled observation of multi generations of people, or story telling and it is a play with a great deal of heart ā and quiche.'
Read it in full at https://t.co/Alrc0vCwrg
So excited to announce the astounding cast that will take on the roles of the McCarthy family for the centrepiece production of our 50th birthday year - #TheColdBuffet written by
@_elijahyoung playing from Thu 5 - Sat 28 Oct
ā @NickBlakeley
takes on the role of Ellis
ā Jane Holman plays Evelyn
ā @amarakaran is Ayeesha
ā Jim Kitson plays the part of David
ā @BFletcherMorris portrays Max
Find out more about this talented team and this truly delicious North East saga coming soon at https://t.co/FJ0YRJkJm5
More fabulous news! The three young cast members of #WeAreTheBest! have been shortlisted for the North East Culture Awards. As @narc_magazine said: "The local precocious talent in this production is astounding". Congratulations to Bridget, Bethany and Elena!
Wow! what an amazing 7 weeks it has been! Thank you so much for such an amazing time and thank you so much Live for giving me this opportunity! it has been absolutely awesome and i am so thankful for everyone I have met during this and have got to work with.
Never Goodnight ā¤
Check out Part 2 of Director @JackMcNamara81 's blog on how we made #WeAreTheBest - find out what went on with rehearsals, music and lights and then get your tickets before its gone (ends Sat 18 June).
https://t.co/pLq5BFrlam