Brandon

Covid Long Hauler and unfortunately MN sports fan. Not sure which is worse. No I didn’t take the 💉 #longcovid #mecfs

[Brandon @BGiarusso22]

@chydorina @joshual_tm I just took the Theriome test during a PEM crash. I have a second one that I’m going to take at baseline to see the differences. Do you know anyone who could consult the results or would you consider it for a fee?

[Brandon @BGiarusso22]

@HouseLyndseyRN Oh man the long covid has know about this nut bag since early 2020. He’s been kicked off this app more times than you can count. Complete psychopath. Scammed so many long haulers out of money for his stupid niacin protocol.

[Brandon @BGiarusso22]

@CharlesRixey @HouseLyndseyRN @eitchan Are we really going with shedding and not injury from the actual virus? So many of us have heard this “long covid isn’t real, it’s the vax”, or if you haven’t had the vax like me, they say shedding. No one around me was vaxed either. The virus does this.

[Brandon @BGiarusso22]

Here is a tip, if hearing about #MECFS bothers you so badly, mute it. We have a nervous system disorder and you’re working yourself up over nothing, and honestly look like bullies. Bullies to people who are desperately ill.

[Brandon @BGiarusso22]

I will never understand the infighting in the chronic illness community. If ever there was something to bring ppl together, it’s having your life ruined with no help. Yet ppl waste their limited energy trying to call people out who they disagree with. #LC #MECFS

[Brandon @BGiarusso22]

@KevinMcCairnPhD Unfortunately so many of us can’t travel 5 min to dr appts much less Japan. Hoping you can keep proving it works and bring it to the states

[Brandon @BGiarusso22]

@chydorina @troscriptions I just drank some kava last night for the first time in awhile, and it’s amazing how much better it makes me feel. Better than any benzo even. My problem is when I come down from it I feel worse after.

[Brandon @BGiarusso22]

@DrJesseMorse Such bullshit. I had spike in my monocytes for 17 months, from an actual spike protein test. Yet I never tested for antibodies ever. Even weeks after infection. SO many others like me too. AB test literally tells you nothing except how many ABs your body has.

[Brandon @BGiarusso22]

@chydorina I’m in the subgroup that cannot nap, no matter how tired or how little sleep. Haven’t napped since becoming ill.

[Brandon @BGiarusso22]

@chydorina @joshual_tm I ran my oat through the BF analyzer and had it interpreted with AI. Its conclusion is that I’m in a hypo metabolic state. It did not see bottlenecks that could be fixed with targeted supps. Told me my body is refusing to turn the fuel system on because of an autonomic brake

[Brandon @BGiarusso22]

@chydorina Do you think we should be doing tests like these at baseline and during PEM? I’m in a huge crash now and am wishing I could test to see what is going on

[Brandon @BGiarusso22]

@JackHadfield14 I have similar muscle weakness and my blood is on the way to you, will be interested in any similarities. I’ve now determined I have 2 types of muscle weakness, one metabolically if I overdo it (esp upper arms), and 1 that is autonomic where I feel it in hamstrings/core.

[Brandon @BGiarusso22]

@Davemconte It should be the first thing prescribed when you get the diagnosis, as well as deep understanding of the risks. I believe it could’ve stopped a lot of people from getting severe if they had it on hand. (Me included) I take it so sparingly out of fear of running out.

[Brandon @BGiarusso22]

@YouthHockeyHub LFG Livi! So well deserved!

[Brandon @BGiarusso22]

@gruenes_korn @liamsLCjourney @BetweenThieves7 No, but I did go into a bit of a tailspin about a week into it. I can’t for sure say it was that but it’s happened twice. Took me months to get back to baseline. I had better luck with ARA 290 and SS31.

[Brandon @BGiarusso22]

@liamsLCjourney @BetweenThieves7 Made me worse too. Hate when people use defensive statements like that.

[Brandon @BGiarusso22]

@AlexBerenson POTS is recognized by all major institutions like Mayo Clinic. It is not just dizzyness you condescending prick. If you did 1 millisecond of research you’d know that. But that is too much to ask for a “journalist” like you. Many of those things you listed are life destroying. 🖕🏼

[Brandon @BGiarusso22]

@PanickedFoodie @chydorina My symptoms are similar to Martin’s. I have severe muscle weakness/failure. I first tried gabapentin for sleep and it gave me energy, and when I stood up to get in my wheelchair my muscles were not shaking, and were much more stable. Also helped the malaise.

[Brandon @BGiarusso22]

@TakeWeightOffMD How do we get it tested? It’s not a standard lab we can get run easily is it?