BlueDil

Experts in orphan and severe diseases

[BlueDil @BlueDil_pharma]

#WhatDoIKnowAboutRareDiseases ?
What are the 11 strategic axes of the National Plan for Rare Diseases 3 (2018-2022)?
To check the answer go to https://t.co/8JVi6OBZpd

[BlueDil @BlueDil_pharma]

#WhatDoIKnowAboutRareDiseases ?
What is @eurordis ?
To check the answer go to https://t.co/gRXgDCEODs

[BlueDil @BlueDil_pharma]

#WhatDoIKnowAboutRareDiseases ?
What are European Reference Networks (ERN)? What is their role?
To check the answer go to https://t.co/8hwPSnwqCX

[BlueDil @BlueDil_pharma]

#WhatDoIKnowAboutRareDiseases ?
What is the European Joint Programme on Rare Diseases (EJP MR)? What is their role?
To check the answer go to https://t.co/TbHOk0CMCC

[BlueDil @BlueDil_pharma]

#WhatDoIKnowAboutRareDiseases ?
What do you know about @AllianceMR ? How many associations does it bring together? How many patients does it represent?
To check the answer go to https://t.co/AXYGflSezy

[BlueDil @BlueDil_pharma]

#WhatDoIKnowAboutRareDiseases ?
What does the National Plan for Rare Diseases 3 (2018 to 2022) provide for its financing? Is it comparable to the NRP2 funding?
To check the answer go to https://t.co/a3ptqzuDNl

[BlueDil @BlueDil_pharma]

Focus on #CMT: hereditary, neuromuscular, progressive genetic diseases affecting the peripheral nerves and causing amyotrophy of the extremities.
To find out more about the disease and @ecmtf: https://t.co/Qwxcr08xd1

[BlueDil @BlueDil_pharma]

#WhatDoIKnowAboutRareDiseases ?
What is @Orphanet ?
To check the answer go to https://t.co/02XwORS9rZ

[BlueDil @BlueDil_pharma]

#WhatDoIKnowAboutRareDiseases ?
What major ambitions do the PNMR3 and the France 2025 genomic medicine plan share?
To check the answer go to https://t.co/eccn7PzOa5

[BlueDil @BlueDil_pharma]

What is #LHF? Familial Hemophagocytic Lymphohistiocytosis is a rare genetic disease that affects the immune system and the digestive system in some cases. It can be caused by 4 different genetic mutations.

To know more about it: https://t.co/rNbLqIXHCd

#LHFEspoir

[BlueDil @BlueDil_pharma]

We were telling you about the National Reference Centers for Rare Diseases last week: do you know their 5 main missions?
For the answer, go to : https://t.co/kUXkeaibgx

[BlueDil @BlueDil_pharma]

#whatdoIknowaboutraredisease ?
What are the 3 main missions of the 23 rare disease network in France ?
To check the answer, go to https://t.co/Xgha4CGpgN

[BlueDil @BlueDil_pharma]

#whatdoIknowaboutraredisease ?
How many centers of reference for the care of rare diseases (CRMR) have been labeled in 2017 in France for the next 5 years?
The answer on https://t.co/sQwSX3ASIi

[BlueDil @BlueDil_pharma]

#quesaisjedesmaladiesrares ?
Combien de filières nationales maladies rares existent en France ? La réponse sur : https://t.co/He5IcK6YRt

#whatdoiknowaboutrarediseases ?
How many national rare disease networks exist in France? Find it : https://t.co/He5IcK6YRt

[BlueDil @BlueDil_pharma]

#quesaisjedesmaladiesrares ?
Quel est l'impact des maladies rares sur les couples ? La réponse sur : https://t.co/pZQD3xEysU

#wahatdoiknowaboutraredisease ?
What is the impact of rare diseases on couples? Find the answer on https://t.co/pZQD3xEysU

[BlueDil @BlueDil_pharma]

#quesaisjedesmaladiesrares ?
Quel risque social est le plus fréquemment observé pour les patients atteints de maladies rares ? Pour le savoir : https://t.co/LoR2L6yNGL

#whatdoiknowaboutrarediseases ?
What social risk is most frequently observed on rare disease patients?

[BlueDil @BlueDil_pharma]

#quesaisjedesmaladiesrares ?
Quel est l'impact des maladies rares sur le travail ?
Pour le savoir, rdv sur https://t.co/7pArzGNIQN

#whatdoiknowaboutrarediseases ?
What is the impact of a rare disease on work?

[BlueDil @BlueDil_pharma]

#whatdoiknowaboutrarediseases ?
School and rare disease: Which law rules the conditions of reception of sick people attending school? https://t.co/OELsA4ay9S

[BlueDil @BlueDil_pharma]

#whatdoiknowaboutrarediseases
School and #raredisease: how many sick people attending school benefits from specific support or school facilities? To know the answer : https://t.co/QhAMK96ov5

[BlueDil @BlueDil_pharma]

#quesaisjedesmaladiesrares ?
Quel est le temps moyen nécessaire pour diagnostiquer une maladie rare ? Vérifiez votre réponse sur https://t.co/HtzsTmYp2u

#whatdoiknowaboutrarediseases?
What is the average time needed to diagnose a rare disease? Check it on https://t.co/HtzsTmYp2u