BraverStrongerSmarte

Raising awareness and funds for childhood cancer research.

[Kids Research @kids_research]

Children with genetic diseases and cancers will now be given faster access to life-saving gene and cell therapies through Australia's first commercial scale viral vector facility to be built in Westmead. Read more:
https://t.co/iLexAAIEqW
@CMRI_AUS #genetherapy #cancer

[Matt Dun, PhD @MattDun17]

Huge strategic day for @rundipg board. Our annual working group focused on strategies to move towards a cure for #DIPG #DMG
Huge thanks Matt Clarke for enabling this dedicated & talented team put in place pathways we hope will improve the outlook for #DMG kids & their families 💪

[Journal of Clinical Oncology @JCO_ASCO]

Fertility preservation counseling is essential to quality cancer care in young pts.

@guptaarjun90 discusses the results of a quality improvement project from @hopkinskimmel
& @ASCO presented at #ASCOQLTY21 & simultaneously published in #JCOOP here ➡️ https://t.co/H82HhmVJUR

[Kids Research @kids_research]

In a world first, the Virtual Reality in Childhood Cancer Team from #CCRU, UTS, WSU, Animal Logic Academy and Samurai Punk is using data mining, design, visual analytics and gaming expertise to understand cancer patients. #ChildhoodCancerAwarenessMonth @westmeadkids @SCHNkids 2/3

[Four Square @clobberscancer]

Survivorship in #ChildhoodCancer is a never ending chase for a healthy life. @HappyQuailPress @leezawilllshe @LisaWardspeakup @TCellALLMom
https://t.co/tgw5bBJVgC

[Kids Research @kids_research]

The ACT group is developing cancer treatments using cell therapy. T cells are taken from a patient and are modified to express a Chimeric Antigen Receptor (CAR). CAR T cells are then given back to the patient to target and kill cancer cells @westmeadkids @SCHNkids #CCRU

[Kids Research @kids_research]

The ACT group is developing cancer treatments using adoptive cell therapy. T cells are isolated from a patient and are modified to express a chimeric antigen receptor (CAR). CAR T cells are then given back to the patient to target and kill cancer cells @westmeadkids @SCHNkids

[Chordoma Foundation @ChordomaFDN]

Helping your child navigate #cancer treatments is not something any parent wants to do. If you find yourself in that position, this article about what one mom learned as a pediatric cancer caregiver may help you through difficult days.
https://t.co/F0ihTpvtjr

[Matt Dun, PhD @MattDun17]

3 years ago day our most unimaginable nightmare became reality #JosephineLauraDun #DIPG no treatment, go home & make memories. 3 years later a glimmer of hope at the end of a very long & dark tunnel.
Hoping B7H3 & GD2 #CART provide a benefit for some & #DMGACT for others @RUNDIPG

[Kids V Cancer @KIDSvCANCER]

Thanksgiving week gratitude: A new drug for neuroblastoma and 3 more drugs for rare pediatric diseases approved last week, earning vouchers under the #CreatingHopeAct. https://t.co/UVJFY0vgVI

[BraverStrongerSmarte @BraverStronger]

Love seeing this. Patients must be genuinely at the heart of decision making if real change and effective engagement is ever going to happen.

[Abbie's Army - Fight DIPG Brain Cancer @AbbiesArmy]

RT ..we're through...next target 8000 signatures! Whilst DIPG is not contagious its a disease that is a virulent & a prolific killer of children with a uniform 100% fatality Please support the #DIPG community here: https://t.co/sdFKpTwMnW #ResearchMatters

[Chordoma Foundation @ChordomaFDN]

VIDEO: Going ALL IN for chordoma.
A confluence of recent advances have created unprecedented opportunities to deliver better treatments for #chordoma in a matter of years — treatments that won't just help future patients, but those fighting now. https://t.co/gc5lK1jmF3

[MaggieK 🇨🇦 @MaggieKeresteci]

Dear #healthcare conference planner: Topic of #patient & #caregiver experience is vitally important, so remember there is no way to talk about that experience at a conf without patients/caregivers being present. To partner with patients & caregivers they have to be fully included

[MaggieK 🇨🇦 @MaggieKeresteci]

#Caregivers are told to focus on self-care because it is best weapon against burnout. This isn't true. The best weapon against burnout is a transformed system that values us, doesn’t treat us & our work as disposable. Caregivers need to be co-designers of that system #ONHealth

[Genevieve Kendall, Ph.D. @KendallLabNCH]

The Kendall lab website is live! 🐟🔬Please check it out! 👀

https://t.co/xGN89ZrPYT

[Cancer Mum @CancerMum]

@IMSMAXIMS @ShaneTickell @Imperial_IGHI @RoyLilley @BMJ_Open @INTEROPenAPI Here’s my retrospective observational lived experience study across Primary Care and Acute Trusts 2005-2018. Interoperability and process failure throughout. We need to look at whole NHS data flows to keep patients safe

[Michael Caesar @Michaelcaesar]

Nine out of 10 Canadians believe they should have full ownership of their health data and 95% believe they should be the ones approving who gets access

@UHN @sbrudnicki & teamUHN working on this culture shift for over a decade to provide real time access

https://t.co/FcKHMpEmzF

[Fiona McDonald @Mc_Fin]

Important to not just give the #oncofertility talk. Need to check the person is ready to hear you, has heard you and what their communication preferences are. Consider all aspects of #healthliteracy ⁦@CanTeenAus⁩

[Kids Cancer Alliance @thekca]

Seek Australian (NSW) #cancersurvivor 13-30 year old interested in meeting with researchers to talk about their experience during cancer treatment and after Please RT @SCHNkids @CanTeenAus @CancerSurvSM @ChildCancerSurv @RMCHAustralia @HNEkidshealth Info: https://t.co/MF2o0IzkSx