Brittle Bone Society

Supporting people with Osteogenesis Imperfecta (OI). Providing events, CPD meetings, supporting & funding research. Tweets do not mean endorsements.

[Brittle Bone Society @BrittleBoneUK]

@harrisacdundee Thank you to the students and staff at Harris Academy for all their hard work and our congratulations to the students on this fantastic win!

[YPI Scotland @ypi_scotland]

What an outstanding YPI final tonight at @harrisacdundee

So much passion, knowledge and creativity on display from every one of the young people representing their communities and local charities.

The time and care given to the project came across loud and clear and every young person taking part should be extremely proud of their performances.

Walking away with a grant of £3000 is @BrittleBoneUK after an informative and moving display from the team representing them.

[Brittle Bone Society @BrittleBoneUK]

It is great to see Amna in her new fully accessible home!

[Wandsworth Council @wandbc]

🏘️ Life changing move through Homes for Wandsworth scheme 🏘️

Amna shares the positive changes to her daily life after moving to a new, fully accessible home developed through the 1,000 Homes for #Wandsworth programme.

https://t.co/cHKU04otB0

#IDPwD #IDPWD2024 @BrittleBoneUK

[Osteoporosis IOF @iofbonehealth]

Read the special issue on #OsteogenesisImperfecta in Calcified Tissue International!
👉 https://t.co/3ofnQ88SHK
Issue editors Lars Folkestad and Stuart H. Ralston have compiled outstanding invited and notable reviews, as well as original research that reflects the current state-of-the-art understanding of #OI, including its nosology, genetics, clinical presentation & treatment strategies for children and adults.
#rarediseases #bone @OIFoundation @BrittleBoneUK

[Brittle Bone Society @BrittleBoneUK]

We have a new blog from author Penny Batchelor who has written about the importance of women’s health screening and her experience as a woman with OI. From our women’s health survey, our members have highlighted that this is an important topic. Read this via the link in our bio!

[Brittle Bone Society @BrittleBoneUK]

BBS visited 4th Year Occupational Therapy students at Glasgow Caledonian University to raise awareness about OI. Thanks to member Sharon Murphy for accompanying Coreen to the event 💙✨

[Brittle Bone Society @BrittleBoneUK]

Monique is one of the individuals appearing in our BBC Lifeline Appeal. Living with OI, Monique is a model, wheelchair dancer, and advocate who is a role model in the OI community.

To hear more about Monique and her story, watch our appeal here https://t.co/uO5tZw04RW 💙✨

[Brittle Bone Society @BrittleBoneUK]

Tune into BBC Two today at 12:50pm to watch our Lifeline Appeal! Discover more about how the BBS support individuals with Osteogenesis Imperfecta.

Read about the appeal here: https://t.co/24VNaRhLJu 💙

[Brittle Bone Society @BrittleBoneUK]

Meet Amna, one of the individuals featured in our BBC Lifeline Appeal. Amna is 21 and lives with Osteogenesis Imperfecta.

To hear more about Amna and her story, watch our appeal on Friday 15th November at 12:50pm or visit https://t.co/uO5tZvZx2o 💙✨

[Brittle Bone Society @BrittleBoneUK]

Have you seen our BBC Lifeline Appeal? If so, you'll have met the Edneys, a family living with Osteogenesis Imperfecta.

If you missed the appeal, you can watch now by visiting https://t.co/tGAYx5iDBS 💙 You can also watch live on BBC2 on Friday 15th November at 12:50pm ✨

[Brittle Bone Society @BrittleBoneUK]

ONE HOUR UNTIL WE ARE ON BBC ONE! ✨💙

Tune into BBC One today at 12:35pm to watch our Lifeline Appeal! Discover more about how the BBS support individuals with Osteogenesis Imperfecta.

Read about the appeal here: https://t.co/24VNaRhdTW 💙

[Brittle Bone Society @BrittleBoneUK]

Tune into BBC One tomorrow at 12:35pm to watch our Lifeline Appeal! Discover more about how the BBS support individuals with Osteogenesis Imperfecta.

Read about the appeal here: https://t.co/24VNaRhdTW 💙

[Brittle Bone Society @BrittleBoneUK]

We are counting down the days until our BBC Lifeline Appeal film is aired!

We hope you tune in to BBC One at 12:35pm on Sunday 10 November and support our appeal. Find out more here by visiting https://t.co/24VNaRhdTW 💙✨

[Brittle Bone Society @BrittleBoneUK]

We are thrilled to announce that the Brittle Bone Society (BBS) is going to be featured on a BBC Lifeline Appeal this month!

The BBC Lifeline Appeal will air this Sunday, 10 November, at 12:35pm on BBC One. You can read more about the appeal here: https://t.co/24VNaRhdTW

[Brittle Bone Society @BrittleBoneUK]

New blog alert! Please meet our new blogger Tom, who has written a blog for us, introducing himself and his personal journey through university and his career. You can read this here: https://t.co/e6Q8gtT9pH 💙✨

[Brittle Bone Society @BrittleBoneUK]

It is great to see Monique enjoying her new wheelchair! Thanks to funding from Motability Foundation, we can now supply wheelchairs and equipment quicker than ever before! You can find out how to apply here: https://t.co/DKt6V8RQbW 💙✨

[Brittle Bone Society @BrittleBoneUK]

Have you signed up to our mailing list? Join today to receive BBS newsletters, updates and more! To sign up, visit our website https://t.co/IojQezpU24 and scroll to the bottom of any page, where you will find the submission box to sign up, it is that easy! 💙✨

[Brittle Bone Society @BrittleBoneUK]

It’s Fundraising Friday! BBS Member Kat Watkins visited a memorial concert for the late Dean Powell, life member of the Treorchy male voice choir, a talented soloist, Dean had a wide, varied and outstanding career and we were honoured to be given a donation for the BBS 💙✨

[Brittle Bone Society @BrittleBoneUK]

Today is Allied health professions (AHPs) day, a time for us to celebrate their great work. From occupational therapists to radiographers, AHPs are important in supporting individuals living with OI. We send our thanks to all the AHPs we are fortunate to work with at the BBS 💙✨

[Brittle Bone Society @BrittleBoneUK]

Have you read our recent e-zine? Our newsletter is packed full of news, exciting updates and more. You can read the e-zine here: https://t.co/q1PBcbxCT3 💙✨