Yesterday I was interviewed by Narelle Graham from the ABC (SA Regional Drive) to speak on illness invalidation following research published with @MilenaGandy. Kristie (28) also shared about managing endo and invalidation. Check it out below! [from 39:47]
https://t.co/wk3SAt10kA
IN THE MEDIA I Illness invalidation harmful to patients with chronic conditions.
A new study of Australians living with chronic physical health conditions has found family members & doctors who dismiss their experiences cause significant mental distress.
https://t.co/VO8hKCNmbm
Interested in doing a PhD? on mental imagery in #pain? At the University of Sydney? We are recruiting! With project dream team @JulieLinJi, @LSharpeUSYD, Professor Emily Holmes @UsydPsych#PhDposition
https://t.co/uFXLVMnPXb
We have known for decades that 1 in 5 adults experiences chronic pain, now we know that 1 in 5 children also experience chronic pain.
Do you work with kids and think that you don’t work with chronic pain? Just maybe you are not asking the right questions….. food for thought.
Researchers at the University of Sydney would like to understand experiences of people living with chronic pain, including how pain pain might change over time, and psychological wellbeing. This 1-hour study involves an online survey and a 7-day diary. https://t.co/kAqA7APdcs
Thank you to the @BABCP for the opportunity to present this work. I’m feeling very fortunate to be presenting my PhD research on the other side of the world, and to be here with @LSharpeUSYD
Missing my other fantastic supervisor @JemmaLTodd#BABCP2024#endometriosis
Very proud of @BrydeePickup explaining the development of a new measure to assess interpretation bias for people with endometriosis. #ACBM2024@CbmAssociation
If you have been told by healthcare professionals that your symptoms are "faked," "exaggerated," or simply "can't be that bad," you are not alone. In this #AskThePatient poll, 1,676 voted, 80% shared this traumatizing experience!
Among the 435 comments:
31% of symptom invalidation (term coined by @acbontempo ) centered around pain;
64 were psychologized/sent to therapy;
23 mentioned gender stigma;
20 mentioned weight stigma;
the word "accused" appeared 20 times.
I probably have been complicit in this terrible culture of not believing patients. But all 1,676 voices have made it loud and clear: we👏must👏do👏better👏!
In my next newsletter, I hope to do this topic some justice. https://t.co/VtWzS7RAZ4