Consumer genetic testing services raise unique privacy concerns that consumers should be aware of and companies should address. Thanks @i24NEWS_EN for the opportunity to discuss my work at @futureofprivacy!
Genetic testing kits like #23andMe pose unique privacy risks and challenges. @DerrickeDennis talks to @CarsonMart about how to safeguard the industry of genetic data collection and how customers can protect themselves:
FPF is seeking to hire a Policy Counsel or Senior Counsel (dependent upon experience) to lead its work on emerging questions of privacy and data protection related to health data. Learn more at the link below. https://t.co/l6DQBqTvEW
Shout out to my incredible mother, @JPMNOLA, as she wraps up her term as President of the @ABAesq today. I am so very proud to be your daughter. Watch her inspiring closing remarks here: https://t.co/aDRhOljB4m
Check out a white paper I authored with @privacyanalytic while at @futureofprivacy related to today's genetic de-identification challenges. Many thanks to all those who collaborated and helped bring it to life! #DNAprivacy#NationalDNADay https://t.co/djG4knln4J
Out today: FPF & @privacyanalytic published a white paper on #geneticprivacy! The paper highlights the personal nature of genetic data, existing regulatory requirements, practices org. are taking to safeguard genomic data & more. Details: https://t.co/Asah78t5RH #NationalDNADay
"We must not be an insular profession, removed from the people we serve. We are a people's profession, committed to liberty and pursuing justice...our purpose is to provide greater access to justice."#ABAAnnual
The evolving health data ecosystem poses new challenges for policymakers and industry. FPF & @iaf_org have released "A Taxonomy of Definitions for the Health Data Ecosystem" to enable a more nuanced conversation around these issues. Read more: https://t.co/L1gC0XFEY5
Packed room for “The Ethics of Geo-Location” with @futureofprivacy ‘s Jeremy Greenberg & expert panelists - dozens or more being turned away outside. Location privacy undoubtedly one of the most prominent topics of 2019. Wow! :) #GPS19
Happy to share our commentary, accompanying the cover article in Nature today on part-revived pig brains. "Part-revived pig brains raise slew of ethical quandaries" https://t.co/lPy3MmCQp0
Start with fairness in shaping #privacy policies for data.
The “Fair Information Practices” framework has stood the test of time for 40+ years per @SavageLucia#HDpalooza
#3. Research: AG should evaluate impact of #CCPA on beneficial research w non-HIPAA data e.g. wearables; apps; genetics. While these companies should be subject to data privacy rules, some req's may pose particular challenges for researchers. 5/9
On Friday @futureofprivacy submitted comments from @ameliaivance, @CarsonMart and myself to @AGBecerra and team on the California Consumer Privacy Act (#CCPA). Read our highlights & comments here: https://t.co/Lt2gZsmjpw Specifically we highlighted five areas: 1/9
The security of connected brain implants will need to be addressed to ensure patient trust in these devices and to prevent the potential for "brainjacking" #CyberSecurity#Neuroethics
FamilyTreeDNA’s agreement with the FBI conflicts with user expectations, @futureofprivacy's Best Practices, and industry norms. #geneticprivacy Read more here: https://t.co/MxmXXqg6Fy