It’s been a while since I’ve come here to complain so, here we go
Season changes are really hard on my body. But the seasons changing every night from winter to summer to winter to summer is definitely HARD on my freaking body
One time I caught my arm on fire cooking while wearing a UNC sweatshirt. The sleeve burned off to the perfect Bill Belichick length. I just feel like I maybe manifested this UNC football coach thing with that exact moment. I wouldn’t call myself a witch but…………
Me explaining my current level of pain “I don’t need pain meds but I also couldn’t open a septic tank lid if I tried” there are few people who understand that pain scale
Today’s one of those days where I can’t stop crying. I wish I could tell you it was about the election. But I barely have time to think about that when my health is yet again in shambles for the day. I just really need a break right now. I’m so freaking overwhelmed with HAE
I wish someone had warned me how hard it would be to watch and support all of your friends as they reach their dreams while yours are out of the picture thanks to a rare disease. I’m so good at accepting my life but I do wish I could pretend and have like a college grad party!!!
Ever since my near death experience, I cry so much for other peoples happy moments
I dont know if its jealousy or just knowing there was always the possibility of them not getting to live that happy moment
I am jealous of every single person who’s never worked in a restaurant and can look at a pair of all black tennis shoes without thinking, kitchen shoes!!!!!!!!!
It’s wild the things that my friends and family can do while I sit in a hospital bed
Not angry at the people I love having fun and enjoying the life they’ve been given. But damn if I’m not jealous sometimes
Sometimes I really wish people would stop asking me how I feel or how I’ve been doing because to be quite honest. I don’t know how to answer that without making you feel bad for me and I don’t actually want you to feel bad for me at all.
My goal with HAE has always been to educate as many people as possible. But I was not prepared for the moment an 8 year old asked why I wasn’t eating and when I explained that my stomach swells sometimes she said “I know. I asked my parents and they said your throat can too”