Catherine Leyden

[Jan 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @RosaryMum]

Tomorrow’s Rosary will be hosted by Bob and CJ.

Join to pray the Holy Rosary details below 👇

https://t.co/OZ7NQ7J1S7

[Jan 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @RosaryMum]

Join us to pray the Holy Rosary 🕊️

https://t.co/aiELU7McN5

[Catherine Leyden @CatherineLeyde4]

@RosaryMum Sorry won't make Rosary tonight but looking forward to joining you All tomorrow 🙏.

[Catherine Leyden @CatherineLeyde4]

@Hania16836 🙏

[Jan 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @RosaryMum]

Join us to pray the Holy Rosary 🕊️

https://t.co/gARzwZYCyz

[Jan 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @RosaryMum]

Join us to pray the Holy Rosary 🕊️

https://t.co/TEgaJ5Lq6U

[Catherine Leyden @CatherineLeyde4]

@RosaryMum I have lost sound

[Jan 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @RosaryMum]

Join us to pray the Holy Rosary 🕊️

https://t.co/kfO73upb25

[Jan 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @RosaryMum]

Join us to pray the Holy Rosary 🕊️

https://t.co/cP9mCoWnZH

[Prayer Crossing💀🔥💛 @PrayerCrossing]

I’m going to @RosaryMum’s upcoming Space. Will you join too? https://t.co/apeKewXGm3

[Catherine Leyden @CatherineLeyde4]

@RosaryMum Thanks be🙏 to God! Delighted to hear the good news on your Mum. Give her my ❤️

[Dr Tom Clonan @TomClonan]

To all my friends here & all the good people on X - Please share this & support our campaign to have #Skyclarys provided for our beautiful young men & women who suffer from #Friedrich’s Ataxia - Taoiseach @MichealMartinTD has the power & means to Transform these precious lives

[Catherine Leyden @CatherineLeyde4]

@RosaryMum So glad to hear from you! My thoughts & prayers are with you & your lovely mum. Tell her that I'm praying 🙏 for her ❤️

[Dascha @Dascha98452091]

@bob96259487927 Dedicating my Rosary this afternoon to Jan’s mother’s health and recovery and to strength and comfort for our dear @RosaryMum.
🙏🏼✝️📿💜

[Catherine Leyden @CatherineLeyde4]

@RosaryMum @PrayerCrossing 🙏

[Care Champions Ireland @CareChampions2]

“Can I have the tablet? It’s really important.”

That is the heartbreaking plea from 16-year-old Paudie Coady.

Paudie lives with Friedreich's ataxia, a severe degenerative disease. It has already taken his physical independence and, just last year, took his beautiful 13-year-old brother, Rory.

Now, speaking from his bed in Cork, Paudie is using what strength he has left to ask the Irish Government for a chance to live his life.

There is a drug called Skyclarys.
The barrier? Money!

The HSE Drugs Committee recently recommended against funding it, pointing to "value for money". Imagine being a 16-year-old boy hearing that your life is being weighed against a price tag. Imagine being his parents, Craig and Della, who buried one son and are now forced to plead publicly to save another.

As Paudie's grandmother Eileen put it: “We are begging for this tablet. We shouldn't have to be begging. It should be there.”

Senior HSE management will make the final determination. You cannot put a price tag on a child’s life. No family in Ireland should have to go on public radio to beg for basic medical treatment.

Paudie asked the public to get behind him so he can live his life to the fullest. Let’s make sure decision-makers hear him.

#ApproveSkyclarys #FriedreichsAtaxia #Cork #PaudieCoady
@MichealMartinTD @SimonHarrisTD @HSELive @CarrollJennifer

https://t.co/7ACCUsCxVg

[Jan 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @RosaryMum]

Join us to pray the Holy Rosary 🕊️

https://t.co/0uTD2LEzD4

[Catherine Leyden @CatherineLeyde4]

@RosaryMum Sorry won't make it home for Rosary!

[Catherine Leyden @CatherineLeyde4]

@RosaryMum Amen

[Catherine Leyden @CatherineLeyde4]

@RosaryMum Just listening tonight but so glad to be back with my Rosary family🙏