Canadian Autoinflammatory Network

A Canadian not-for-profit dedicated to empowering autoinflammatory patients, families and researchers.

[Canadian Autoinflammatory Network @CdnANetwork]

Hello! We’re the Canadian Autoinflammatory Network (Réseau Auto-inflammatoire Canadien), a non-profit dedicated to empowering autoinflammatory patients of all ages in Canada. Here’s a quick 🧵on us: (1/4)

[PhenoTips @PhenoTips]

Celebrate #RareDiseaseDay by watching the on-demand recording of our #SpeakerSeries #webinar, "#Matchmaking for #RareDisease Diagnosis."

Discover the power of international data sharing and collaboration from matchmaking pioneers.

Stream it on-demand: https://t.co/JeySji5rIP

[Autoinflammatory All @AAlliance_SAID]

Please donate to support the program, & send messages to honor Dr Kastner via the official onine donation link. ISSAID & TARN are co-sponsors. We welcome other orgs & institutions to support the symposium-This can be done w/ ISSAID or our org. Thanks! 🧡 https://t.co/6dwE66l0Dk

[𝕆𝕙 𝕟𝕠, 𝕀𝕥'𝕤 𝕙𝕚𝕞. 𝕎𝕖𝕒𝕣 𝕄𝕒𝕤𝕜𝕤. @WallaceUofE]

Living with a systemic autoinflammatory disease: burden of disease and effects on quality of life—an international patient survey:

Great Paper @AAlliance_SAID

https://t.co/4hzZzVx29C

[Ontario Rheumatology @ORAexec]

Discussing the Transition from Pediatric to Adult Rheumatology Care with Dr Yan Yeung, ORA Vice-President and President-elect @takeapaincheck at the Unity Through Rheumatic Diseases 2025!

[Michelle Batthish @m_batthish]

So proud of these trainees presenting their work at #MCHRD2025 today. Their dedication to child health research is inspirational. @MacUPediatrics @machealthsci @mac_peds @anneklassen @kabeattie @CAFsociety @mch_childrens @McMasterCHR @hamhealth

[Michelle Batthish @m_batthish]

Thank you #MCHRD2025 organizers for allowing me to share this work! @CAFsociety @Dr_Gorter @kabeattie @MacUPediatrics

[Cassie + Friends Society @CAFsociety]

February 28 is #RareDiseaseDay, but every day we #CareForRare.

Help us raise awareness about how rare rheumatic diseases affect children, teens, and young adults across Canada. Together, we can make a difference.

Learn more at https://t.co/jeFe86ykNY

[Canadian Rare Disease Network (CRDN) @CanadianRDN]

🌍 Exciting news! The RDI-Lancet Commission on Rare Diseases has officially launched! Co-chaired by CRDN's own Dr. Kym Boycott (Canada) & Dr. Roberto Giugliani (Brazil), it brings 27 experts from 6 continents to improve healthcare for PLWRD. Learn more: https://t.co/UhrchDneFQ

[Wayne Critchley @waynedcritchley]

CORD @raredisorders calls on federal parties to commit to a national strategy for rare diseases. Federal strategy is overdue.

[CIHR IG IRSC @CIHR_IG]

White Coat Black Art avec le Dr Brian Goldman
Ian Stedman, membre du conseil consultatif de l’IG des IRSC et du réseau canadien des maladies rares (RCMR) :
Il a diagnostiqué sa maladie rare grâce à Google. Il espère maintenant que l'IA pourra faire la même chose pour d'autres

[CIHR IG IRSC @CIHR_IG]

White Coat Black Art with Dr. Brian Goldman
Ian Stedman, member of #CIHR-IG Institute Advisory Board and Canadian Rare Disease Network (CRDN):
He diagnosed his rare disease using Google. Now he hopes AI can do the same for others
https://t.co/V7N4oOeiQq

[André Picard @picardonhealth]

He diagnosed his rare disease using Google. Now he hopes artificial intelligence can do the same for others. @CHEO using #AI to help diagnose #RareDisorders, by @phildrost https://t.co/9r6aBQbDFy via @cbcwhitecoat @NightShiftMD

[Canadian Rare Disease Network (CRDN) @CanadianRDN]

🎥 Missed our recent townhall? No worries – the recording is now live: https://t.co/Jop3CljpsM

We also want to hear from YOU! 🫵

Take a moment to review CRDN's proposed strategic plan and share your thoughts with us.
🔗https://t.co/2bxLbn0LYW

[Canadian Rare Disease Network (CRDN) @CanadianRDN]

Excited for what November has to offer? 🌟

Discover a variety of events happening both in Canada and globally with the CRDN Events Calendar!

📅 Check out the CRDN Events Calendar: https://t.co/3T9dPzLNDt

💡 Submit your details here: https://t.co/azE74ItvVK

[Canadian Rare Disease Network (CRDN) @CanadianRDN]

Devenez un patient chercheur grâce au programme de certificat virtuel Patient & Community Engagement Research (PaCER) de l'@UCalgary.

Pour en savoir plus, consultez le site https://t.co/5iCeGZDcJ9 souhaitez poser votre candidature? Envoyez un courriel à [email protected].

[Canadian Rare Disease Network (CRDN) @CanadianRDN]

Exciting News!💥

Become a patient researcher through @UCalgary's virtual Patient & Community Engagement Research (PaCER) certificate program! 

Learn more at https://t.co/O0qaZLMUBv
Interested in applying? Email [email protected] by November 15, 2024.

[Canadian Rare Disease Network (CRDN) @CanadianRDN]

📅 Mark your calendars!

Join us on October 31st from 12-1 PM MST for the CRDN Townhall, where we'll dive into the latest updates on our strategic plan co-development.

Don't miss out—register today: https://t.co/8119WIe2ik

[Canadian Autoinflammatory Network @CdnANetwork]

Congratulations to these amazing physician-researchers who are leading the way in Canada & have secured funding from @CDA_AMC for a CAN-SAID registry! Such wonderful news!!!

@KLBrownLab @LoriBTucker1 @QdQwerty

https://t.co/B2xlUEyii7

[EURORDIS-Rare Diseases Europe @eurordis]

#OpenAcademy2025, launching under @ERDERA_org, is now accepting applications!
Developed with expert trainers, the programme is specifically designed to give you the skills and knowledge necessary to achieve concrete, real-world results. 💪

Learn more➡️ https://t.co/voeWye5x08