CFF Delaware Valley

Cystic Fibrosis Foundation - Delaware Valley Chapter. RT or Favoriting does not imply endorsement.

[CFF Delaware Valley @CFF_DelValley]

The Delaware Valley Chapter of the @CF_Foundation welcomes you! We have many opportunities for you to get involved, connect with the CF community and help add tomorrows for people with cystic fibrosis.

https://t.co/YQe5lTNEAt

[Cystic Fibrosis Foundation @CF_Foundation]

More than 2.8 million people get an antibiotic-resistant infection in the U.S. each year. People with #cysticfibrosis face an increased risk for difficult-to-treat infections. We need new antibiotics now, and we’re asking Congress to help. #CFAdvocacy

[Cystic Fibrosis Foundation @CF_Foundation]

Thank you for your support on #GivingTuesday! Because of you, and the generosity of the Stremick family, we met our match. Together, we are confident we will find a cure for everyone with cystic fibrosis.

[CFF Delaware Valley @CFF_DelValley]

It's #GivingTuesday! Your gift will be matched, dollar-for-dollar, up to $250,000, to help everyone living with CF thanks to the generosity of Lou and Nancy Stremick, whose granddaughter, Ella, has #cysticfibrosis.

https://t.co/ahlLkn9vz0

[CFF Delaware Valley @CFF_DelValley]

Advocates across the country are urging lawmakers to cosponsor & pass the #PASTEURAct, which will help bring urgently needed new antibiotics to development. Use the link below to add your voice to the chorus of CF advocates https://t.co/D0sXWEZ0i5 #CFadvocacy

[Cystic Fibrosis Foundation @CF_Foundation]

Our CF community is growing. Today, because more people with cystic fibrosis are living longer into adulthood, there are nearly 40,000 people with CF in the U.S., and an estimated 105,000 people diagnosed with CF across 94 countries.

[Cystic Fibrosis Foundation @CF_Foundation]

Congratulations to AVECRIS and Nosis, the winners of our first-ever Golden Ticket Competition! The winners will pursue genetic therapies for cystic fibrosis at Bakar Labs with a year of office and lab space in addition to other Foundation resources. https://t.co/RvGZ1T7rmZ

[CFF Delaware Valley @CFF_DelValley]

Way to go Ashley, Katherine, and Taylor! We’re so proud of you for representing the #cysticfibrosis community during @CF_Foundation’s 14th annual Teen Advocacy Day. We can’t wait for you to share your story with
@SenBobCasey @SenToomey
#CFadvocacy

[CFF Delaware Valley @CFF_DelValley]

Carbon Biosciences, the first company to launch publicly from the Foundation’s collaboration with Longwood Fund, was awarded $6 million to support their preclinical research into an innovative gene therapy approach for CF. #CFResearch

[Cystic Fibrosis Foundation @CF_Foundation]

Calling researchers, life science entrepreneurs, and companies: We’ve launched our first-ever Golden Ticket Competition with @UCBerkeley's Bakar Labs! If you're developing genetic therapies that have potential application to CF, we’re looking for you. https://t.co/cwQwVY0ovc

[Cystic Fibrosis Foundation @CF_Foundation]

This #DonateLifeMonth, we announced funding for research to better detect chronic lung allograft dysfunction (CLAD), a post-transplant complication. Eight awards will investigate potential ways to detect CLAD early, which is key to fighting CLAD. https://t.co/XlF06RKo80

[Cystic Fibrosis Foundation @CF_Foundation]

We are awarding up to $15.9M in additional funding to Eloxx Pharmaceuticals Inc. to support more clinical trials of ELX-02, a potential therapy for people with #cysticfibrosis who have nonsense mutations. #CFresearch https://t.co/qC75Tuo3L6

[CFF Delaware Valley @CFF_DelValley]

You can help amplify the voice of the CF community. Join our Online Day of Action and tell your members of Congress to support the PASTEUR Act.
@RepLBR
@Greschenthaler
@RepDwightEvans
@MikeKellyPA

[CFF Delaware Valley @CFF_DelValley]

More than 2.8M people develop an antibiotic-resistant infection in the U.S. each year.
This issue is personal for people with #cysticfibrosis, as they face an increased risk for difficult-to-treat infections.

[CFF Delaware Valley @CFF_DelValley]

We need new antibiotics now, and we’re asking Congress for help. That's why advocates from the CF community, like Cherie and Lauren are urging Congress to champion the PASTEUR Act.

Join our Online Day of Action: https://t.co/oywTdMxlFo

[Cystic Fibrosis Foundation @CF_Foundation]

We’re thrilled to announce that KC White has been elected by the Foundation’s Board of Trustees as its next Board Chair. This marks the first time in our history that the Board will be led by a person with #cysticfibrosis. https://t.co/WwYYoLoo8B

[CFF Delaware Valley @CFF_DelValley]

We're sharing our love of 💙Great Strides💛 for National Sign on Week! We're ready to lace up and be back in person for 2022! Visit https://t.co/CMhxC0vUb3 to find your local walk site and register today.

[Cystic Fibrosis Foundation @CF_Foundation]

We have awarded up to $4.7 million to EnBiotix Inc. for the testing of inhaled colistin to treat chronic Pseudomonas aeruginosa infections in people with #cysticfibrosis. #CFresearch https://t.co/9a29JdcF7c

[CFF Delaware Valley @CFF_DelValley]

Happy Thanksgiving!🦃 We want to #sharethethanks for another year of dedication to find a cure for ALL people with CF.

[Cystic Fibrosis Foundation @CF_Foundation]

Today, we announced a first-of-its-kind collaboration with Pioneering Medicines, a division of Flagship Pioneering, to accelerate the development of genetic-based therapies for people with cystic fibrosis. https://t.co/cPvG73S7J0

[CFF Delaware Valley @CFF_DelValley]

It's been 2 long years and we miss you. Register for CF Climb, 11/20/21 at the Linc, for some IN PERSON fun and fundraising! Register:https://t.co/LLzP9yLhca