CF Together

CF Together | Changing Futures, Together
CF Together is a national organisation dedicated to advancing progress for people living with cystic fibrosis.

[CF Together @CFTogetherAus]

THANKYOU ❤️

A shoutout to every nurse this International Nurses Day. Your commitment, care, expertise, and unwavering support makes a massive to the lives of so many living with cystic fibrosis, and their families.

#CFCNC #CFNurse #HealthCare #CysticFibrosis #CFTogether

[CF Together @CFTogetherAus]

From the CF Together family to yours...
Merry Christmas ❤️🎄

#MerryChristmas #HappyHolidays

[CF Together @CFTogetherAus]

🌟 Wow, what an amazing turnout! 1,000 wonderful members of our community came together to Break a Sweat for CF in Sydney, Melbourne, and virtually — making it the largest CF fundraising walk in Australia! We’re so grateful for your incredible support! ❤️

#BreakASweat #CFWalk

[CF Together @CFTogetherAus]

R U OK? Whilst R U OK? Day is today, we encourage you to Ask R U OK? any day of the year because a conversation could change a life.

Information on how to ask someone if they are ok, can be found here: https://t.co/r0w6ujnsjm

#ruok #ruokday2024

[CF Together @CFTogetherAus]

#Melbourne it's your turn. 🙌
4 days to go until we Break a Sweat for CF at Albert Park Lake!

Haven't registered yet? No worries, there's still time 👇
https://t.co/OOzqCmY2ts

#BreakaSweatForCF #CFTogether #CysticFibrosis #AlbertParkLake #MelbourneWalks #CFWalk #CFRun

[Country Racing @Country_Racing]

Join Team Coffey & @Country_Racing to Break A Sweat for CF, raising funds & awareness for @CFTogetherAus on Sunday 15th September at Albert Park. @HTCoffey 🚶💪

To join or donate ➡️Country Racing Victoria/Team Coffey • Break a Sweat 2024 (https://t.co/HRd9CqvwpJ)

[The Safer Air Project @SaferAirProject]

🧵We are thrilled to announce a new partnership between the Safer Air Project and @CFTogetherAus , driven by a shared commitment to improving indoor air quality for everyone, and especially those living with cystic fibrosis (CF). #CysticFibrosis #CleanerIndoorAir #Inclusion

[CF Together @CFTogetherAus]

Get your friends together this September for the CF Walkathon. Walk up to 10km to break a sweat for cystic fibrosis.
https://t.co/xlKUOyh7Rw
Early Bird closes 15th August!
👉 Sydney - September 8, Pirrama Park
👉 Melbourne - September 15, Albert Park Lake
👉 Virtual - September!

[CF Together @CFTogetherAus]

"Something I didn’t quite understand until a few years post-transplant was the significance of my dad’s organ donor; that while my family was unified by my dad’s chance at a new life, another family's life stood still."

Read Emma's story here: https://t.co/D7bm9IDhVt

[Mark Butler MP @Mark_Butler_MP]

In Australia, a baby is born with cystic fibrosis every four days, and today they will have access to life changing medicine under the PBS. This reduces the cost of treatment from $250,000 to just $31.60.

[CF Together @CFTogetherAus]

@Mark_Butler_MP Thank you Minister for your swift support and leadership on this matter. The work continues to ensure all members of our community have access to these medications but it’s a good day today.

[CF Together @CFTogetherAus]

Things are changing for the CF community and so are we.
We are driving progress for all Australian's living with cystic fibrosis.

We invite you to take a look at our website, Strategic Plan 2024-2027 and FAQs here: https://t.co/9Q9InfKBye

#ChangingFuturesTogether #CFTogether

[CF Together @CFTogetherAus]

Talk to someone who is here for you ☎️
Let’s navigate life with cystic fibrosis together.
We are delighted to announce the launch of the new National CF Support Line.
1300 CF HELP (23 4357)

Learn more at: https://t.co/1v6i4UCSA1

[CF Together @CFTogetherAus]

Good News | Recommendation 15: Recommendation that subsidised access to Continuous Glucose Monitors (CGM’s) be further expanded, including for individuals with insulin-dependent Type 3c, CFRD.

Statement here: https://t.co/cVX3whqbHt

Together, we are Changing Futures.

[CF Together @CFTogetherAus]

An Important Announcement from our CEO, Andre and Chair, Katherine.

See the full details in this video.
You can read more, view our full Strategic Plan for 2024-2027, and access our FAQs, here:

https://t.co/mefakHkNgR

#CFTogether #CFResearch #CFAdvocacy #Announcement

[CF Together @CFTogetherAus]

Someone I love needs a cure! ❤️
Ending CF Awareness Day 2024 with a simple message.

#UntilCFStandsForCureFound #CFAwarenessDay #CureCF

[CF Together @CFTogetherAus]

Today is Cystic Fibrosis (CF) Awareness Day!
A day where we shout out loud about CF, what it means to live with CF, the advances in treatments, and the road ahead to a cure.
👉 Share this post!
👉 Join the UNITE1830 challenge
👉 Make a donation
👉 https://t.co/b8CPhj13mV

[CF Together @CFTogetherAus]

Are you a parent living with Cystic Fibrosis? Come join us online for a chance to connect and share your experiences with other Mums and Dads who also have CF.

👉 Wednesday June 12
👉 12-1pm
Register at:
https://t.co/63C0BeOqq7

[CF Together @CFTogetherAus]

Andre, CFCC CEO, joined the Bendigo CF Support Group this weekend at a Bunnings sausage sizzle.
It was a wonderful opportunity to connect with the Bendigo community and volunteers who play a critical role in supporting people living with cystic fibrosis across Bendigo.

[CF Together @CFTogetherAus]

Did you know?
57% of Australian's living with cystic fibrosis are adults.
Today, the average life expectancy is 48-years, and rising. While it is worth taking the time to acknowledge how far we have come, there is still a long way to go.
Find out more at: https://t.co/VdIB4IJtaa