CHERuB study

Childhood Health & Educational Outcomes after Perinatal Brain Injury: an NIHR funded population cohort study

[CHERuB study @CHERuBstudy]

🧠The CHERuB study is officially underway! 🧠

Pleased to share our protocol outlining this national study of childhood outcomes after perinatal brain injury

Check it out here 👇 https://t.co/JX9PUPs2oh @ich_ppp @NIHRresearch @BMJ_Open

[CHERuB study @CHERuBstudy]

🌟A huge thank you to the families who shared their HIE experiences with us🌟

🧠Here’s a short video of our key takeaways and what they mean for families and clinicians🧠
Full paper👇https://t.co/VPMT1WiyLc
#newbornbrains #neotwitter @PeepsHie @ADC_BMJ @UCLchildhealth

[CHERuB study @CHERuBstudy]

We’d love to hear your thoughts!
Stay tuned for updates and for more info visit our website 👇
 https://t.co/kkzs2J0QOf

[CHERuB study @CHERuBstudy]

🧠The CHERuB study is officially underway! 🧠

Pleased to share our protocol outlining this national study of childhood outcomes after perinatal brain injury

Check it out here 👇 https://t.co/JX9PUPs2oh @ich_ppp @NIHRresearch @BMJ_Open

[CHERuB study @CHERuBstudy]

This is so important to help children and families get the information and support that they deserve! 💙🤝

We're privileged to partner with amazing charities to make sure these families needs are heard and met @Blisscharity @PeepsHie @M_R_F

[Kirstin Webster @NeonatalNurstin]

In just over a week, @Alexoscopy and I are running a marathon in the Arctic Circle @MSM_TOS to raise money for @PeepsHie #HeardOfHIE
Please share and donate if you can https://t.co/B3G1Mtf2pE
@nmpa_audit @TIMMSleicester @uniofleicester @RCObsGyn @BAPM_Official @HopeforHIE

[CHERuB study @CHERuBstudy]

🌟 Have you been impacted by #HIE? 🌟

Your story matters to us!

Please share your #NHS experiences of #HIE in our quick survey 👇

https://t.co/fshtVQkVg3

@UCLchildhealth @PeepsHie @HopeforHIE

[CHERuB study @CHERuBstudy]

🌟 Has your family been affected by HIE? 🌟

We're keen to understand how #HIE has influenced your lives.

Share your story by completing our brief survey 👇
For more details, feel free to reach out:
@UCLchildhealth @PeepsHie
https://t.co/fshtVQkVg3

[Philippa Rees @PhilippaCRees]

🧠Great insights to those difficult #HIE MRI discussions🧠

These were a BIG theme in the @CHERuBstudy workshops & stay with parents esp. when done poorly…

🌟Key takeaway: show images & highlight non-injured brain too🌟
#neotwitter #newbornbrains
https://t.co/03rx4DOp61

[Mac Keith Press @mackeithpress]

How good are parents of 2 year old children born #preterm at predicting future motor outcomes?
@JenniferZeitlin @Ulrade @noutvanheijst
https://t.co/Ppl9MeIGSH

[Hope for HIE ☀️ @HopeforHIE]

🗓️ SAVE THE DATES FOR AUGUST VIDEO SUPPORT GROUP SESSIONS

Each group is led by Hope for HIE's licensed social worker, Haley. Families will be engaged in a space of healing and hope, no matter where their journey may take them ⬇️

#NeoTwitter #NeuroTwitter #PedsICU #ChildLife

[Evidence-Based Neo @EBNEO]

Is low grade intraventricular haemorrhage in preterm infants benign?

Systematic review by @PhilippaCRees et al evaluted the impact of grade 1 & grade 2 IVH in childhood period
@mackeithpress
#neoEBM #EBNEOAlerts
https://t.co/IYQ5SXrnOV

[Philippa Rees @PhilippaCRees]

📢 Thrilled to share our recent @CHERuBstudy output on neurodevelopmental outcomes of #preterm infants with low-grade IVH at school age 🧠

Our r/v included 12 studies using 30 assessment tools at different time-points 🫣

Highlights below👇 #neoTwitter

https://t.co/lS7nbCfpoR

[CHERuB study @CHERuBstudy]

Let us know the questions you think we should study #neotwitter

[Philippa Rees @PhilippaCRees]

7/ Essentially to tackle perinatal brain injuries we need real-time longitudinal pop data beyond the #NICU 🌈

....introducing the @CHERuBstudy

Please share the Qs YOU think the @CHERuBstudy should address... #neoTwitter

Stay tuned for population-wide insights! 🌍

[Philippa Rees @PhilippaCRees]

7/ Essentially to tackle perinatal brain injuries we need real-time longitudinal pop data beyond the #NICU 🌈

....introducing the @CHERuBstudy

Please share the Qs YOU think the @CHERuBstudy should address... #neoTwitter

Stay tuned for population-wide insights! 🌍

[Philippa Rees @PhilippaCRees]

🧵 What do school age childhood outcomes look like after perinatal brain injury?
Let's dive into our latest @BMJ_PO review👇
@DrCBattersby @DrCGale #neotwitter #newbornbrains
https://t.co/xCRRsz0eTp

[CHERuB study @CHERuBstudy]

✨Excited to see our r/v being discussed! #neotwitter

This blog highlights difficulties communicating amidst uncertainty on the #nicu & applying population #data to individual👶

🤞the #CHERuBstudy working with @Blisscharity @PeepsHie will address SOME of these gaps

[NeonatalResearch @NeonatalResearc]

Shifting the uncertainty: early head ultrasound abnormalities, and counselling parents. Part 1 https://t.co/8aMVqOgURU

[Hope for HIE ☀️ @HopeforHIE]

Later onset #epilepsy is a real problem for our families.

Most happen at the SWC, are traumatic to witness, some require rescue meds, are unpredictable, are unsettling for kids who have them, scare siblings, & disrupt parental sleep, impacting the entire family.

#EndEpilepsy