CiaoLapo

Stillbirth and Perinatal Loss Awareness, Research, Education, Advocacy and Support for Families and Professionals. Tweets by @ClaudiaRavaldi & @AlfVann

[CiaoLapo @CiaoLapo]

New in Birth (Wiley, open access): the CLASS study is the first to document, with clinical outcomes, a correlation between adherence to #stillbirth care guidelines and parental psychological well-being. https://t.co/7eNrSoxrum (1/5)

[CiaoLapo @CiaoLapo]

Preliminary results were presented at @isastillbirth conferences (Cork, Glasgow, Madrid) and ISPID (Florence). Part of the OPALE project. @ClaudiaRavaldi @AlfVann
#stillbirth #PerinatalLoss #BereavementCare #PTSD #respectfulcare (5/5)
https://t.co/9l4sqYQSGl

[CiaoLapo @CiaoLapo]

Mean adherence in Italy was 1.96 out of 4, with a North-South gradient. The widest gaps were in memory-making, respect towards the baby and follow-up: relational domains, the ones that depend most on training. (4/5)
https://t.co/9l4sqYQSGl

[CiaoLapo @CiaoLapo]

Among 261 women with a loss after 20 weeks, satisfying at least 40 of the 60 items was independently associated with respectful care 3.6 times more often (OR 3.6, 1.9-7.0), lower grief (OR 0.08) and fewer PTSD symptoms (OR 0.21). (3/5)
https://t.co/9l4sqYQSGl

[CiaoLapo @CiaoLapo]

The CLASS (CiaoLApo Stillbirth Support) checklist covers 60 items in six domains: respect, communication, birth options, hospital stay, creating memories, aftercare. Drawn from the PSANZ, SOGC, HSE Ireland and Sands guidelines. https://t.co/9l4sqYQSGl (2/5)

[CiaoLapo @CiaoLapo]

#Pregnancy after #loss is never “just another pregnancy.” Our study calls for national guidelines, structured #training, and integrated psychological #support to help families from loss to the next birth with safety, #empathy, and #respect.

[CiaoLapo @CiaoLapo]

🆕 OA in J Clin Med: The UNSURENESS Study
We explored how Italian healthcare professionals support parents in pregnancies after #stillbirth / #neonataldeath, a period of grief, hope, and high clinical complexity. Trauma-informed, continuous care is key.
📄 https://t.co/R27rQtej28

[CiaoLapo @CiaoLapo]

Survey of 200 HCPs (mostly #midwives): only 1 in 3 had training for pregnancies after #loss.
Most valued: acknowledge loss, build trust, share decisions, give full info.
Hardest: address fears, reassure.
Care driven by continuity & parental wishes more than #guidelines.

[CiaoLapo @CiaoLapo]

Help us save CiaoLapo’s home!

For 20 years, we’ve supported grieving families after #pregnancy and #infant #loss.
Now our home, #CasaCiaoLapo, is at risk. We need your help to buy it and keep our work going.

Read more, donate & share: https://t.co/pLfodNHLbB

[CiaoLapo @CiaoLapo]

Aiutaci a salvare #CasaCiaoLapo

👉🏼 Dona: ogni contributo, piccolo o grande, fa la differenza.
👉🏼 Condividi questa raccolta fondi con amici, colleghi e sui social.
👉🏼 Coinvolgi la tua azienda: le donazioni sono detraibili e possiamo rilasciare ricevute.

https://t.co/asBeSZ6RA8

[Sergio A. Silverio @Silverio_SA_]

In this article I argue: "The fact of the matter is, that we will never be 'safe' from a pandemic. We can only work to reduce the impact of it on the populous"
And "[t]his is why the response from the UK's psychological community has, for me, been so disappointing"

Read below 👇🏽

[Miguel Hernán @_MiguelHernan]

1/
That "immortal time" is so frequent in survival analyses for #causalinference is fascinating.

Because "immortal time" doesn't exist in the data, *we* create it when misanalyzing data.

Our paper https://t.co/2TYg6hHCZj summarizes why immortal time arises & how to prevent it.

[CiaoLapo @CiaoLapo]

3️⃣/3️⃣
Pharmacological suppression was discussed by 89.5% of HCPs after #stillbirth and 83.8% after #neonatal #death. Only 21.8% shared info on milk donation post-stillbirth (25.4% post-NND). Written guidance was rare (15.8%) but rated useful.
Read more: https://t.co/QMnQDYIZT4

[CiaoLapo @CiaoLapo]

1️⃣/3️⃣
We’re excited to share our preprint on how healthcare professionals support #lactation after #PerinatalLoss in Italy. Clinical and emotional challenges impact both parents and HCPs. Tailored care is essential to improve outcomes.
Read more: https://t.co/QMnQDYIZT4

[CiaoLapo @CiaoLapo]

2️⃣/3️⃣
For HCPs, #NeonatalDeaths are more clinically challenging (5.26) than #stillbirths (4.90), while both are emotionally demanding (7.80 vs 7.73). #Empathy and clear communication are critical for grieving parents.
Read more: https://t.co/QMnQDYIZT4

[CiaoLapo @CiaoLapo]

The majestic temple of Hera and temple of Neptune, the ultimate culmination of the Doric style of Magna Graecia in Paestum @paestumparco goes #PINKandBLUE for #babylossawereness 2024 with @CiaoLapo.
Keep posted for more monuments!

[CiaoLapo @CiaoLapo]

@feileacain1 That's absolutely great !!! Well done

[CiaoLapo @CiaoLapo]

During the congress we hung up 300 paper butterflies, each one carrying a name to remember and honor. These names represent the children that we hold in our hearts, and this small gesture is a way to ensure they are never forgotten. 💕 #BabyLossAwareness #Pinkandblue

[CiaoLapo @CiaoLapo]

This morning, @ClaudiaRavaldi delivered the Opening Lecture at the Reproductive Failures conference in Modena for #BabylossAwarenessDay 2024. She highlighted the emotional toll of perinatal loss and the importance of validating parents' grief. 🌸 #PerinatalLoss #PINKandBLUE

[CiaoLapo @CiaoLapo]

@ClaudiaRavaldi emphasized Shared Decision-Making, showing how involving parents in post-loss decisions improves their emotional recovery. When parents feel heard, their trauma is reduced. 💬 #PerinatalCare #BereavementSupport #MentalHealth #pinkandblue #BabyLossAwareness