Cindi

Mom to 2 sweet boys and a rare little girl w/ ALG1 CDG. Saved by grace, married my best friend, trying to be the best advocate for my children.

[Cindi @Cindi_Jean]

This is who this fight is about. My daughter has depended on Cook Children’s specialists for years. They know her complex diagnoses, her history and her baseline. She isn’t a contract or a number on a spreadsheet. She deserves continuity of care. @Wellpoint #CookChildrens

[Cindi @Cindi_Jean]

For families in smaller Texas cities, Cook Children’s may already be HOURS away. We travel because the specialists our kids need don’t exist locally. Removing Cook Children’s from @Wellpoint doesn’t create alternatives. It takes away one of the few we have. @TexasHHSC

[Cindi @Cindi_Jean]

What happens to wheelchairs, feeding supplies, orthotics & other DME when the Cook Children’s provider writing the orders is suddenly out of network? Medically complex kids depend on this equipment every day. Families need answers, @Wellpoint.

[Cindi @Cindi_Jean]

Some medically complex kids have seen the same Cook Children’s specialists their ENTIRE lives. Those doctors know their baseline, rare diagnoses, medications and history. Continuity of care isn’t a convenience. For these kids, it’s essential. @wellpoint

[Cindi @Cindi_Jean]

Many Texas families already drive HOURS to Cook Children’s because pediatric specialists don’t exist where we live. Taking an entire network away doesn’t give us “other options.” It makes already limited access even smaller. @Wellpoint @TexasHHSC

[Cindi @Cindi_Jean]

@Wellpoint This isn’t just about finding a new doctor. Medically complex kids have YEARS of care built at Cook Children’s—specialists, prescriptions, DME, therapies & testing. You can’t replace an established care team with a provider directory. #TexasMedicaid

[Cindi @Cindi_Jean]

Enter the Brio Moderna ICE Giveaway. Enjoy 24 lbs. of ice per day, refreshing cold water and piping hot water—all from one advanced unit. https://t.co/LthslCyqRs

[Cindi @Cindi_Jean]

@UPS no longer using as they won’t take responsibility for a package they lost!

[Cindi @Cindi_Jean]

https://t.co/a664lwfrgk

[Cindi @Cindi_Jean]

TX’s new rule could force parents like me to choose between work and caring for our medically fragile kids. We need policies that support, not hinder, families. #ParentingChallenges #HealthcarePolicy #hhscTX #protectingTXfragileChildren

[Cindi @Cindi_Jean]

The proposed TX rule for nursing care overlooks the realities faced by families with special needs children. It’s not just about safety; it’s about practical, sustainable care. #SpecialNeedsFamilies #TexasHealth @TexasHHSC #Texas

[Cindi @Cindi_Jean]

@txmedicaidworks @TexasHHSC #texas

[Cindi @Cindi_Jean]

As a parent of a child who needs skilled nursing, I’m worried the new TX rule will strain our family life. We need balance, not more barriers. #ChildCare #TexasRules #hhsc #txhhsc

[Cindi @Cindi_Jean]

Concerned about the new rule in Texas requiring constant adult presence during nursing care. It’s impractical for families like mine with a medically fragile child. #TexasHealthPolicy #FamiliesFirst #hhsc

[Cindi @Cindi_Jean]

Every child has unique gifts, even those with special needs. It's up to us to create opportunities for them to realise their true potential and put it to work making the world a better place.

[Cindi @Cindi_Jean]

Parenting a child with special needs means learning to embrace the struggles as part of the adventure.

It doesn't always feel easy. But with courage and resilience, the toughest storms can bring growth and learning that no other experience can match.

[Cindi @Cindi_Jean]

I just entered: Win Cash Fall 2023. You can too! TheBullAmarillo https://t.co/FZjxwxlmds

[Cindi @Cindi_Jean]

Do you remember when you joined Twitter? I do! #MyTwitterAnniversary

[Cindi @Cindi_Jean]

Stay in bed with the Collector's Edition of Verity by Colleen Hoover and win a signed copy, weighted blanket & more in our ultimate sweeps! https://t.co/LtnQZBeBgj https://t.co/Sy6auxrpnM

[Cindi @Cindi_Jean]

Sensory Processing Disorder Month - A Swing a Day! https://t.co/SpA5bnEVHS