Bereaved mother of Julia and Robert.
My daughter Julia Macpherson's book: Waiting For Another Velvet Morning
is still available, proceeds to TCF & Mind.
Pinned tweet vanished into cyberspace, but here it is again. Please read my story of child loss - my son, my daughter. Robert and Julia.
https://t.co/uPCrWtDi0x
Always with us 🧡
‘How do I live without you?
Oh my love I do not.
You are with me from the moment I open my eyes
until they close.
And even after that,
on the plane of dreams where mortals and souls meet, you are with me still.
“I’ve not learned to live without you,
perhaps I never will,
the truth of the matter is,
you are always with me still.”
You walked such a blazing pathway, when your feet were on this earth, that your imprint lingers on and I place my own feet in your steps, one by one.
How do I live without you?
It’s really very simple.
I do not.
“I have yet to live without you,
perhaps I never will,
perhaps the key to grief is,
you are always with me still.”
@Donna_ashworth 🧡
From ‘Wild Hope’ 🩶
Art by my Lucy Campbell
My piece prompted by the recent media articles concerning Clozapine, the side effects of which led to Julia's death. She did not have a psychotic illness and should never have been prescribed this off-label drug.
The response to the Times article has been mostly heartening. My aim is not to ban clozapine. I know it has an important role in treating psychiatric patients. My aim is to ensure patients & their families and carers are informed of the safety profile and how to spot potentially fatal side effects.
Had we have known these side effects my brother might be chatting to me & making me laugh right now.
For the @rcpsych to react to the article with such a defensive, unhelpful response tells me how much work needs to be done. 7028 clozapine linked deaths is unacceptable. Approx 450 deaths per year.
I will now dedicate myself to this campaign until @VictoriaAtkins and @MHRAgovuk commit to a new safety protocol to protect my brothers peers. It's too late for him - but believe me his death will count for positive change.
https://t.co/384yH2WsZI