CLOVES Syndrome Foundation is a 501c3 nonprofit, we're focused on improving the lives of CLOVES patients by funding Overgrowth & Vascular Anomaly research.
We are happy to report that we sent two checks totaling $24,040.52 to Boston Children's Hospital for Cloves and Overgrowth research. Thank you to our amazing supporters, we could not do this without you!!
#FundingResearch#ClovesSyndrome#RareDisease
We have raised over $650.00 from our followers when using Amazon Smile!
Thank you for selecting our organization to help find a cure for people diagnosed with Cloves Syndrome! https://t.co/WK8rOFJX3N
Got lucky with the weather and got the tournament in tonight. Players got a little wet right at the end but given the original forecast we were very lucky. Here's a few quick photos. Thanks to all the teams that... https://t.co/neqGrt9WPC
Don't forget our annual Cloves day/night golf tournament is today. We have a 50/50 drawing and silent auction (Yeti cooler, Virginia Tech vs. Georgia Tech tickets, ProV1 golf balls)
Come on out! If you are... https://t.co/e1ouj9ql5W
CLOVES Syndrome Foundation, a 501(c)3 not-for-profit organization, is focused on improving the lives of CLOVES patients by funding Overgrowth and Vascular Anomaly research. https://t.co/bp0OBGa3fw
Thank you for sharing our posts. Your support means so much to us! We hope to continue to raise awareness of this disease and fund research to find a cure. We cannot do this without your help and support. #ClovesSyndromeAwareness#CloveSyndrome#FundResearchForACure
What is CLOVES?
CLOVES is an extremely rare progressive overgrowth disorder, affecting less than 3oo people worldwide. The symptoms vary from mild soft-tissue tumors to Vascular Malformations encompassing the... https://t.co/HIWccNaWRA
Happy CLOVES Syndrome Awareness Day!!! Less than 300 people in the world have been diagnosed with CLOVES. Our two groups (CLOVES Foundation & CLOVES Community) are working to raise awareness of this extremely... https://t.co/meyoxhgCOY
Cloves Syndrome Awareness today is tomorrow (30 minutes) Please share posts and/or pictures of yourselves in green to help us raise awareness with #ClovesSyndromeAwareness.
Did you know that Cloves Syndrome is... https://t.co/v4xQVGskcK