CMTAA

"Our aim is to enhance the quality of life for people with Charcot-Marie-Tooth Disease and those who care for them."

[CMTAA @CMTAA]

Question for our Queensland members. Our member is an adult looking for a doctor in North Brisbane/Brisbane to get a medical report/information or something for application for Disability or minimum work exemptions. Any suggestions?

[CMTAA @CMTAA]

Our Victorian friends enjoyed supporting fellow CMT-er and vocalist Eliza Hull perform today at the Ability Fest in Melbourne. https://t.co/FunF09E5GJ

[CMTAA @CMTAA]

https://t.co/prwEwoRKTf

[CMTAA @CMTAA]

https://t.co/OYQAv20zGs

[CMTAA @CMTAA]

Any Melbourne members interested in this initiative? https://t.co/Dv2FL198P4

[CMTAA @CMTAA]

CMT Australia spent a wonderful morning yesterday at Bowral on the Southern Highlands of NSW. Chris Griffiths, who has CMT performed in the Highlands Sinfonia Concert with his specially adapted horn. Chris is an... https://t.co/QXsw9F2qtI

[CMTAA @CMTAA]

Don’t forget this Friday Chris Griffiths, a professional horn player will be giving a recital at St Jude’s Anglican Church, Bowral. Chris has CMT and all profits raised from the morning will be donated to CMT... https://t.co/h8N226pYFA

[CMTAA @CMTAA]

This weekend over 20 CMT Aussie Kids are having the time of their lives on their annual camp at Berry on the south coast of NSW. Last night they enjoyed a Minute to Win It games night and today they've built a... https://t.co/RiRzQVl4ZB

[CMTAA @CMTAA]

https://t.co/i0KWdy0Mqo

[CMTAA @CMTAA]

More questions to pick your brain! Can anyone suggest a device that can be used to detect falls and is SOS device that calls for help. Our member is very young so would like something that looks really good to wear?

[CMTAA @CMTAA]

Question from a member. Hi can anyone recommend a great CMT specialist in Adelaide? My father has CMT and has had no check up for 40+ years and is starting to struggle with his hands and feet a lot more. Does anyone have any thoughts please?

[CMTAA @CMTAA]

Nearly 20 family and friends of the CMT Aussie Kids were invited by Assoc Prof Marina Kennerson and her team of researchers at the ANZAC Research Institute at Concord Hospital, Sydney today (Saturday, 9 Feb) to... https://t.co/zm3no9UgN5

[CMTAA @CMTAA]

Question from a member: Hi guys I am new to this page and I have a question for you all, would love any feedback if possible it would be super helpful, so thank you all in advance! So my 12 year old son has... https://t.co/ip5ydnLarz

[sandrine versigny @SVersigny]

Early short-term PXT3003 combinational therapy delays disease onset in a transgenic rat model of Charcot-Marie-Tooth disease 1A (CMT1A) https://t.co/xDPTwcmLmN

[CMTAA @CMTAA]

A question from one of our members who is a motorcyclist with CMT. They are wondering what boots other riders with CMT use. They ride a BMW boxer twin (We’re reliably informed other riders will understand) and... https://t.co/KmnzhMIzQH

[CMTAA @CMTAA]

Researchers have developed a new scale to assess disease severity in infants with CMT. The final version of the Charcot-Marie-Tooth disease Infant Scale (CMTInfS) is easy to use and very reliable to evaluate disease... https://t.co/AYpQw6UutJ

[CMTAA @CMTAA]

Question from a member in the Campbelltown/Camden area (Western Sydney). Is there anywhere around that one could get hand splints for correction of opposing thumbs?

[CMTAA @CMTAA]

The Asian Oceanic region represents a large portion of the world population and in 2016 the Asian Oceanic Inherited Neuropathy Consortium (AOINC) was established. Charcot-Marie-Tooth (CMT) disease is the most... https://t.co/wA0WOC01n2

[CMTAA @CMTAA]

With a little more than a week ‘til Christmas and the holiday season here’s some timely advice on travel insurance. There are additional challenges when travelling with a disability, but if you... https://t.co/TJeT2KNmru

[CMTAA @CMTAA]

Today, the 5 December, is International Volunteer Day, and is when the world acknowledges the efforts of volunteers in building stronger and more cohesive communities. This year’s theme – Volunteers build resilient communities –... https://t.co/Ju3WdU7Sg5