My brother-in-law's death from #ALS connected me to so many courageous persons suffering from this cruel disease. The @US_FDA just shattered hope, not approving the treatment NurOwn because it only helped some. We can’t take much more. Is our government here to help?
For complex diseases like #ALS incremental progress is often monumental. But @US_FDA would rather OK a drug with a 3% benefit to every patient than one that helps 20% of patients substantively. It's hard to see how any ALS drug can get thru that gauntlet https://t.co/iAcRUcNnIG
@MrKenMitchell thinking of you, sending prayers and hugs your way. My husband is retiring from the military with 24 yrs service. Diagnosed with ALS 15 months ago. Keep Fighting!
NurOwn is not "divisive"- it's HALTING ALS! We don't give out awards or trips, just go to "NO MORE EXCUSES FDA" on FB, where pALS can learn complete ALS facts & why we FIGHT! Call us names, as we post yet another NurOwn ALS success story soon! #NUROWN#ALS#ENDALS@BrainstormCell
Larry Bradley was in Dr. Appel's T-REG trial where his ALS HALTED until the trial ended. In June, wife Sharon went to DC to tell @FDACBER and @alsassociation face 2 face that withholding ALS treatment is inhumane. Speaking truth to power is bravery! No More Excuses! #ALS#ENDALS
@POTUS@FLOTUS@GeraldoRivera@realDonaldTrump@VP ALS will claim the life of my husband in the very near future. He is an Active Duty Soldier, going through his medical retirement. He has served 24 yrs. 20+ active duty. Combat Veteran. Purple Heart recipient. We need an EO!
@POTUS ALS will claim the life of my husband in the very near future. He is an Active Duty Soldier, going through his medical retirement. He has served 24 yrs. 20+ active duty. Combat Veteran. Purple Heart recipient. We need an EO! #ALSSUCKS
@realDonaldTrump ALS will claim the life of my husband in the very near future. He is an Active Duty Soldier, going through his medical retirement. He has served 24 yrs. 20+ active duty. Combat Veteran. Purple Heart recipient. We need an EO! #ALSSUCKS
@realDonaldTrump ALS will claim the life of my husband in the very near future. He is an Active Duty Soldier, going through his medical retirement. He has served 24 yrs. 20+ active duty. Combat Veteran. Purple Heart recipient. We need an EO! #ALSSUCKS
@GeraldoRivera@realDonaldTrump Trump could immediately do an E.O. For ALS. Contact Joe Grogan and Kellyanne about those ALS people who wanted the E.O. (U.S.!) Please Ignore any noise you might hear!!
Regarding stem cells, ALSA has been ALL TALK and no action! This 2012 (ish) ALSA piece clearly explains astrocytes, microglia, and explains how NurOwn modulates ALS. So, do we STILL think this all isn't personal? It is. @NUROWN @ALS@alsassociation@ENDALS https://t.co/dvM2rDkGFb