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Do you have #POTS diagnosed by a physician? Take the Big POTS Survey, a collaboration between Dysautonomia International, Vanderbilt University & University of Calgary: https://t.co/LkOh8WmUWM. Help us document the experiences of people living with POTS. Please share widely.
There are times when I don’t speak for hours. Sometimes it’s because I’m distressed, but most of the time it’s because I have nothing to say and it’s not in my nature to say something of no consequence just to fill the silence. I like to really *feel* something before I say it.
Being COVID cautious isn’t living in fear, it’s valuing your health and safety and the health and safety of others. There’s nothing wrong with not wanting to get sick. There’s nothing irrational about fearing losing your health. That’s being aware that your body isn’t invincible.
You can be autistic and:
- Be solitary.
- Have one best friend.
- Have a few functional [friend/acquaintance]ships.
- Be on the outskirts of a friend group, trying to fit in yet not feeling part of it.
- Be popular, because you naturally endear people or have a vivacious mask.
Do any other Autistics do that thing where if someone suggests changing plans suddenly you blank out for a few minutes like you're downloading the new patch update?
It took me a long time to learn not to give advice unless people are asking. It really is the best way. And if you’re not sure, you can always ask for clarification like “is it ok to give you advice right now or would you just like me to listen?” or something to that effect.
being autistic means spending a lifetime being misunderstood.
our direct communication is misinterpreted as rudeness, our inquisitive nature is misinterpreted as being judging, and our need for quiet time is misinterpreted as being anti-social.
This Autism Acceptance week, I challenge non-autistics to:
• Learn about and embrace Autistic joy.
• Face the facts that they probably have a lot to unlearn about Autism.
• Consider how many spaces are sensorily inaccessible and take action to make them more accessible.
friendly reminder that asking a disabled person to review your course/content/website and advise as to whether it’s accessible is consultancy.
consultancy is a paid service.
please pay people for their time, skills and lived experience.
“but you don’t look disabled!”
if you’re a person living with a disability that isn’t inherently obvious, it’s very likely you will have heard this remark before, and here is why it grates on me so much 👇
The Autistic/ADHD urge to share your entire thought process when offering advice or making a decision, so you can prove you’ve considered every variable and inspire people to have faith in what you say and not write off your opinion due to your differences.
Stranger to me a wheelchair user: “I will pray for you.”
Me: “Thanks. Why do I need prayers?”
Stranger: “To break free of your confinement and walk again.”
Wheelchair use is not confinement.