Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸

#CSFLeak Admin (German group) Private Activities

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

🌸Pentecost 2026.🌸 I am unbelievably grateful that this illness is treatable. 🌸Six years with a leak, and I am still healed🌸 and feel like myself again. 🌸It is a miracle🌸 what the human body can endure and recover from.🌸 Please never give up on anyone.🌸

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

Rare diseases: challenges and opportunities for research and public health (Domenica Taruscio et al. 29.2.2024)
#SelteneErkrankungen #PublicHealthAwareness #rarediseaseawareness
https://t.co/s3V3ECCckw

[AJNR @TheAJNR]

"Circumferential Epidural Patch for Postdural Puncture Headache: A Technical Report"

https://t.co/98eHcbLqiJ

[Spinal CSF Leak Canada Charitable Organization @SpinalCSFCanada]

🚨Patients spread awareness of Spinal CSF Leak in Halifax , NS
https://t.co/EPMbEW5Ocx
#SpinalCSFLeakAwarenessWeek

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

@TheAJNR Also as a symptom from a possible CSF leak

[AJNR @TheAJNR]

"Surgical Exploration of Radiographically Resolved Spontaneous Ventral Spinal CSF Leaks"

https://t.co/vaoIonVWkn

@WouterSchievink

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

5. https://t.co/fseEbj8mxn

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

1. Wichtiges Thema #VictimBlaming so oder so ähnlich existieren solche Phänomene, beschreiben Psychologen.
#JustWorldHypothese
#SecondaryVictimization
#Awareness

https://t.co/evCRyJAaBh

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

4. https://t.co/FKXZt47yWY

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

#SecondaryVictimization

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

"Biological and functional multimorbidity- from mechanisms to management" (Claudia Langenberg, 18 July 2023)

#multimorbidity #rarediseases

https://t.co/WqvFKmvENi

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

"Multimorbidity clusters: translating research evidence into actionable interventions" (A.Marengoni et al. 11 July 2025)

#Multimorbidity #rarediseases

https://t.co/89fkLEV5NI

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

"Valuing the “Burden” and Impact of Rare Diseases: A Scoping Review"
Front. Pharmacol., 08 June 2022

#multimorbidity #RareDiseases

https://t.co/v7j56jDi4g

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

"Perceived burden in dealing with different rare diseases: a qualitative focus group study" (Natalie Uhlenbusch et al. 2019)

#multimorbidity #rarediseases

https://t.co/9oWZ6DCiWS

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

"Supportive care needs of patients with rare chronic diseases: multi-method, cross-sectional study" 22.01.2021

#multimorbidity #rarediseases

https://t.co/HESjZKkSkk

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

"Spinal CSF-Venous Fistulas as the Potential Cause of Chronic Subarachnoid Hemorrhage: Superficial Siderosis and Adhesive Arachnoiditis | American Journal of Neuroradiology ( Schievinck et al. 5/2026)
https://t.co/FHrgTeRrhm

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

#Ptsd Bewusste Entscheidung jemanden zu Schaden, Hilfe nicht entgegenzubringen (z.B Krankenhaus/Patient) oder eine Behandlung anzubieten die der Patient ablehnt und nicht nach Alternativen beraten wird führt mehr zu #PTBS als eine seltene Erkrankung selbst
https://t.co/5pwNmEd68s

[AJNR @TheAJNR]

"Spine MRI Diverticular Patterns Predict CSF-Venous Fistula Location: A 100-Patient Study"

https://t.co/rilQq7wwjF

@MarkMamloukMD

[Health 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀| #CSFLeaks & more🌸 @CSFleaks]

https://t.co/haly9tCd2d