Register for our virtual Ask the Expert series!
SELENON: Apr 25 11am ET
https://t.co/Kmp3OkZ8Ba
COL6: Apr 25 12pm ET
https://t.co/ytBFXE8uId
aDG: May 2 1pm ET
https://t.co/QyaBYwIAtR
LAMA2: May 9 11am ET
https://t.co/unwg4Orrq8
LMNA: May 9 12pm ET
https://t.co/7keZTuFi5L
📢 An update on Dr. Carsten Bönnemann’s transition to St. Jude Children’s Research Hospital & the continued leadership of CMD research at the National Institutes of Health under Dr. Reghan Foley. 🧬
🔗 Learn more: https://t.co/gF4XT7KU4Z
LAST CHANCE! If you are attending Rare Disease Week on Capitol Hill representing the CMD community, we want to help support you. Fill out our 2026 Travel Support Application by Friday, February 6th. https://t.co/KfIzb23Nhq
Do you plan to attend Rare Disease Week on Capitol Hill? We want to support you in representing the CMD community! Fill out our 2026 RDW Travel Support Application by Friday, February 6th. https://t.co/KfIzb23Nhq
We’re thrilled to join accessiBe’s nonprofit partner community, reinforcing our commitment to accessibility for all. Their accessWidget tool is now active on https://t.co/pn2h6kbMKU.. We’re proud to stand with 600+ nonprofits promoting digital inclusion. 🌐
Order by January 30th to get your sweet treats in time for V-Day! 🧡💙 Support our See's Candies fundraiser, every purchase gives back!
🍫 https://t.co/TDPb44DayN
Attending Rare Disease Week on Capitol Hill? We want to support you in representing the CMD community! Fill out our 2026 RDW Travel Support Application by Friday, February 6th. https://t.co/KfIzb23Nhq
You can get sweet Valentine's treats & support our cause courtesy of See's Candies! Shop our sweet treats shop today & every purchase gives back!
🍫 https://t.co/TDPb44DayN
The time is NOW to help support NIH funding. Send your Members of Congress a letter to support this critical medical research funding. https://t.co/gwSQHK9uKM
It's a crucial period for NIH funding negotiations with bipartisan appropriators debating the final details of a package soon to be unveiled. Send your Members of Congress a note supporting NIH funding. https://t.co/gwSQHK9uKM
Community member, Erika, shares her journey living with CMD in her latest book, It's Normal to be Different: Rolling Through Life With Muscular Dystrophy. https://t.co/b49sR2Ww61
Rare Disease Week on Capitol Hill 2026 Registration is Now Open!
This event brings together rare disease advocates from across the country to make their voices heard with their Members of Congress.
📆 February 24 - 26, 2026📍Washington, D.C.
REGISTER: https://t.co/YfU978nHQs
Our Season of Giving is well underway. You can truly make a difference for CMD. Help fuel research & hope for our community.
Don't Miss Our $100,000 Match Opportunity: https://t.co/yOgXklowLr
Collaboration between researchers and CMD families is what drives progress.
Researcher, Veronica Pini & CMD Dad, David Dildine explain their perspectives.
Support progress in CMD science: https://t.co/yOgXklowLr
In this last video of our Season of Giving spotlight series, Dr. Pamela Barraza-Flores shares how a chance connection led to a game-changing collaboration, bringing new technology into CMD research.
Support science: https://t.co/yOgXklowLr