Cure MSD

Our mission is to cure Multiple Sulfatase Deficiency

#TogetherWeCan #CureMSD

[Cure MSD @CureMsd]

Our 2026 MSD Virtual Summit speaker lineup starts here 👉
We’re proud to welcome from CHOP:
Dr. Becca Ahrens-Nicklas & Dr. Laura Adang. More details TBA soon!
🗓 September 18–19
💻 ZOOM | FREE to attend
Learn more: https://t.co/IUAC3Rc8Kd
#MSDVirtualSummit #InPartnershipWeThrive

[Cure MSD @CureMsd]

Today, we honor & remember Jean-Paul Sietz, who passed away from MSD three years ago at age 16. His kindness, joy, & love radiated out to everyone who had the privilege of knowing him and will forever shine in our hearts. #NeverForgotten #MSDAngel

[Cure MSD @CureMsd]

Today, we wish Alice a very happy 7th birthday! 🎉 As your mother, Clariana, beautifully shared, “The first step is to believe.” We hope your special day is filled with all the things and people you love!

#HappyBirthday #EveryBirthdayisSpecial #RelentlessHope #RealProgress #MSD

[Cure MSD @CureMsd]

It's National Volunteer Month & we’re celebrating the incredible people who relentlessly show up for our mission! 💙 To every individual who gives their time & energy to uplift #MSD families: #THANKYOU for all you do.

[Cure MSD @CureMsd]

This #AutismAwarenessDay, we stand w/the #autism community, & w/families on the shared journey of seeking a diagnosis. #MSD can look like #ASD, as all children with MSD experience developmental delays. But this rare, progressive disease often brings more questions than answers.

[Cure MSD @CureMsd]

Happy 16th Birthday to Zeuri! From all of us at United MSD Foundation, we hope you have a wonderful day filled with love, joy, and fun! Let's celebrate Zeuri with more birthday wishes in the comments!
#happybirthday #birthdaylove

[Cure MSD @CureMsd]

Next Tuesday, 3/24, Student Ambassador Emily Sandlin will take over our IG to share a glimpse into her day as a United MSD Foundation Student Ambassador!

Follow us @CureMSD to see Emily sharing her experiences and journey!

#TakeoverTuesday #InstagramTakeover #StudentAmbassador

[Cure MSD @CureMsd]

BIG NEWS! 🚨 Save the date for the MSD Virtual Summit, hosted by the United MSD Foundation this Sept 18–19! Our global community of MSD families, researchers, clinicians & more will unite on Zoom because in partnership, we thrive.💡Learn more & join us at https://t.co/IUAC3Rc8Kd

[Cure MSD @CureMsd]

Today we remember Jill Anseth, who passed away from MSD 35 years ago at just 14 years old. Jill’s life, though far too short, left a lasting imprint on everyone who knew her. Her joy, kindness, & the light she brought to her family continue to be remembered today & always.

[Cure MSD @CureMsd]

As we kick off the #ZebraRun, we’re sending another big THANK YOU to our Presenting Sponsor, AlphaCare Urgent Care & Dr. George Loukatos, M.D., for standing with #MSD families & for the heart they bring to our mission to #CureMSD. 💙

[Cure MSD @CureMsd]

🎉 Today’s the day! The registration table is open and our Zebra Run committee and volunteers are ready to kick off the 9th Annual ZEBRA RUN for Rare Disease! 🦓🏃‍♀️

There’s still time to join the fun!
⏰ Schedule:
🐾 8:00 AM — Fun Run
🏁 8:45 AM — 5K

[Cure MSD @CureMsd]

Shout out to our #ZebraRun in-kind sponsors! Your support keeps everyone fed, entertained, informed, hydrated, & headed the right direction. We couldn't do this without you! Thanks to Chik Fil A, Dubba's Delights, Images Galore, MGCCC, Mitchell Distributing, The Shed, & TatoNut!

[Cure MSD @CureMsd]

We’re proud to again recognize Stein LTC Group for their generous support of the #ZebraRun. 🦓 Partnership like yours drives our mission forward to bring us closer to a treatment for #MSD. Thank you for helping to raise awareness, amplifying our message of #relentlesshope! 🖤🤍

[Cure MSD @CureMsd]

From the pre-race warmups to the moment the medals are placed around proud finishers’ necks, the #ZebraRun is going to be an unforgettable day! 🦓✨ Take a look at the full event schedule & secure your spot today. We can’t wait to see you there! 👉 https://t.co/1LSTXzShYO

[Cure MSD @CureMsd]

Thank you to Haute Designs by Nate, official photographer for the #ZebraRun, for capturing all the dazzling moments! 📸 Don’t forget to flash that winning smile when you see him at the finish line! Not signed up yet? Join the fun here: https://t.co/FoECXdBhtA
#RareDisease

[Cure MSD @CureMsd]

🎉 Join us for #ZEBRAFEST on Fri., March 6, at 5PM at Val's Sports Bar as we kick off #ZebraRun weekend with heart! 💙 Grab your race packet early; bid on Silent Auction items to support #raredisease families; & enjoy entertainment, food & fun! 👉https://t.co/msnAUIwcdH

[Cure MSD @CureMsd]

We’re proud to recognize Stein LTC Group for their generous support of the #ZebraRun. Their continued sponsorship, year after year, helps us share a message of #relentlesshope. Thank you, Stein LTC Group, for standing with our #MSD families and fueling the fight for a treatment!

[Cure MSD @CureMsd]

We’re grateful to once again recognize @WLOX for their incredible support of the #ZebraRun.
Your ongoing partnership continues to move our mission forward. Thank you for helping raise awareness and elevate our message of relentless hope in pursuit of a treatment for #MSD.

[Cure MSD @CureMsd]

Registered for #ZebraRun yet? We're in 24 states & counting & thrilled to be racing alongside our amazing supporters in our newest states: FL, GA, MD, MA, MI, MT, NV, NC, & VA! 💙 Register today & join the fun here https://t.co/qBiIssLh26.

[Cure MSD @CureMsd]

👏 We’re excited to give another well-deserved shout-out to our incredible Gladiator Sponsor, Lamar Advertising! Thank you for supporting our mission in the relentless pursuit of a treatment for #MSD. We're grateful for your commitment to the MSD community & the #ZebraRun! 🖤🤍🦓