We’re excited to welcome Danielle Carnival, Ph.D., our new CEO!
A leader in science, policy, and patient advocacy, Danielle brings powerful vision and deep commitment to the rare and undiagnosed communities.
Read her message to the community↓
https://t.co/UcHBqZmKpT
#UDNF#UDN
We are the Undiagnosed Diseases Network Foundation.
Our mission: to bring hope, answers, and improved outcomes to individuals & families living with rare and undiagnosed conditions. Because the unknown should never mean alone.
https://t.co/V2WfdMpsNA
#RareDisease#Undiagnosed
UDNF PEER: our patient-led advisory body that ensures the voices of those living with rare & undiagnosed conditions guide every step of our work. https://t.co/J4s3sTbzTH
Because true progress happens when patients have a voice in research and care. #PatientVoices#UDNF
This Wednesday, the @WhiteHouse will be hosting a #CancerMoonshot Goals Forum to hear from patients and patient advocates about improving patient experiences in the diagnosis and treatment of cancer. https://t.co/94uK5He4uf
.@D_Carnival on the renewed Cancer Moonshot Initiative: "You have our commitment and our partnership to make significant progress to end cancer as we know it." #CPR22
Yesterday, @POTUS and @FLOTUS stopped by a Cancer Cabinet meeting with senior White House officials and leadership from across the Biden-Harris Administration. During the meeting, the Cabinet announced initial steps for the reignited Cancer Moonshot: https://t.co/g1vEl6aZza
Yesterday, @WhiteHouse held the very first Cancer Cabinet meeting that included @POTUS, @FLOTUS, and leaders from across the federal government to establish an interagency strategy for ending cancer as we know it. Learn more here: https://t.co/f0MIQGzjv8
“A place that the administration is focused on is getting back to screening to make up for the over 10 million #cancer screenings that were missed due to #Covid19.” - @WhiteHouse Cancer Moonshot Coordinator, @D_Carnival
https://t.co/hGrAQ1DzsS
Last month, I announced the plan to supercharge the Cancer Moonshot that President @BarackObama asked me to lead six years ago.
Our goal is to cut the cancer death rate by at least 50% over the next 25 years.
The State of the Union is strong — because you, the American people, are strong.
We are stronger today than we were a year ago — and we will be stronger a year from now than we are today.
Thanks to @TheCancerLetter for letting me share @POTUS vision for the #CancerMoonshot. It will take all of us to end cancer as we know it. Go to https://t.co/9BnFCELKzF to add your ideas and take action.
When history is written-this patient movement will be the one that changed how we treat the brilliant and talented people who happen to be facing down a disease. I am honored to have changed the world with you. @iamalsorg@sandymorris333@thompsontweach@dantate2@nicolecimbura
BREAKING NEWS: #ACTforALS has just passed the Senate and is on it���s way to @POTUS. Hope is real for ALS patients thanks to you. The impossible is possible. #NeverGiveUp