Absolute honour today to join @AnthonyNolan 50th anniversary celebrations at #10downingstreet with @andrealeadsom - a powerful reminder of the impact and breadth of their work; they fund me full time to provide psychological support in @StGeorgesTrust #stemcelltransplant team
"You don't know how much it's needed until you see it first hand.
It's absolutely life changing, there are so many people who do need it, and there's not enough people on the register."
Elijah's mum Chloe is asking people to join the stem cell register: https://t.co/vDHEHXpFcS
Cancer patients living with a rare disease, which attacks the body’s organs after a life-saving stem cell transplant, are set to benefit from a pioneering new medicine on the NHS.
This is a breakthrough for people like Dan. 💙 #RareDiseasesDay https://t.co/RtaBRlH3cl
Recently, out of the blue I got a call from @DKMS_uk - the charity that helps people with blood cancer. I'd forgotten that 5yrs ago I did a cheek swab... but the call was to say I was a possible match for someone in urgent need of stem cell or bone marrow transplant.
It's a chance to help someone survive who wouldn't otherwise. Unfortunately, having just been through the next stage, I've been ruled out of donating.
So to turn that into a positive, I wanted to suggest if you fancy registering to be a donor, if age 18 - 55 you can do it here... https://t.co/WOEAyPoQqu - and hopefully one of you may be the match that actually saves a life.
📢 We've partnered with @NHSBT and @CureLeukaemia to fund innovations for new blood cancer treatments via a not-for-profit clinical trials network @act4patients.
ACT’s work is vital for the patients we support, and we’re excited about future treatments.
https://t.co/srdHqT37LD
📢 We’re delighted that NICE has approved belumosudil – we’ve been calling for better access to GVHD treatments for a long time. Here’s our Lead Nurse Rachel talking through what this means for patients.
30-year-old Dan was diagnosed with Acute Lymphoblastic Leukaemia (ALL) in January 2020 and since his stem cell transplant is being treated for GvHD.
Dan took part in this new medicine appraisal as a patient expert.
📢 NEWS: Belumosudil has been approved by NICE for chronic GvHD
We’ve been calling for better access to GvHD treatments for a long time, so we’re delighted that a new treatment option will now be available to patients across the UK who have not responded to other therapies.
@TexansCap I think it’s because Tank was never set at all. He didn’t set for a full second and then go in motion, so he needed to set at the end, which also didn’t happen
⚽ Calling all football fans! ⚽
We're looking for Anthony Nolan supporters from minority ethnic backgrounds to help inspire action and raise awareness of our lifesaving work. We have some exciting plans, and would love you for you to be involved. Pop us a DM to find out more!
Chronic Graft versus Host disease is a potentially debilitating condition experienced by some patients post-transplant.
We need to ensure England doesn’t fall behind in providing treatment options for patients – especially when they are already available in Scotland and Europe.
Chronic GvHD is probably the biggest challenge I see post transplant, with wide ranging physical and emotional impacts, and better medical options feel crucial to me (as a non medic!). Please do consider responding to this consultation if it’s relevant to you.
You can comment on the consultation online directly, or send us your feedback at [email protected] Tuesday 24th October. Find the consultation and more information here: https://t.co/qsTw8mVAlf
📢If you've experienced #GvHD or know someone who has, we need your help!
NICE has chosen not to recommend Belumosudil, a medication that combats cGvHD.
Help us share the real-life impact GvHD has on people's lives with key decision makers, to show the impact this could have.
"I encourage you to also #SayBloodCancer"
This #WorldLeukaemiaDay Bansri wants everyone living with leukaemia to know that their condition is a type of blood cancer, and that there's a network of support there for them ❤️
Watch her message, and support our campaign 👇