Danielle Langford

[Danielle Langford @DaniUK87]

I just wrote a @theactionnet letter: Tell Congress: Habitat Destruction Is Harm. Write one here: https://t.co/bTjkpWo9Jj

[Danielle Langford @DaniUK87]

Colorado has killed 3 yearling wolves in just over a month. 🐺 Tell @COParksWildlife to halt further lethal removals and prioritize nonlethal coexistence.

[Sassy Devil Dog 🔥 @VinoNStrosGal]

At what point did everybody become so terrified of opioids that protecting licenses, pharmacies & “the system” started mattering more than protecting the patient in pain?

CPPs are told to try everything first.

☑️Physical therapy.
☑️Injections.
☑️Procedures.
☑️Antidepressants.
☑️Gabapentin.
☑️Alternative therapies.
☑️Exercise.
☑️Yoga.
☑️Pain psychology.

And most of us do.

Some of it helps.

Some of it does nothing.

Some of it makes things worse.

Then, after exhausting the alternatives, imagine finally sitting across from an experienced pain-management physician who knows your history, knows your diagnosis, knows what failed, and writes a legitimate prescription.

You think the battle is over.

It isn’t.

Now you get to take that perfectly valid prescription from pharmacy to pharmacy to pharmacy and hear:

“No. I’m not filling that.”

Not because your doctor lost his license.

Not because you did anything wrong.

Because everybody is afraid.

The doctor is protecting his license.

The pharmacist is protecting hers.

The system is protecting itself.

Everybody is practicing CYA medicine.

So who the hell is protecting the patient?

Because while everybody else protects themselves, the patient still has to go home inside the same body.

The sickle cell patient still has tissue being starved of oxygen during a pain crisis.

The CRPS patient can still experience excruciating pain from touch that shouldn’t hurt.

The connective-tissue patient still lives in a body where the very framework holding skin, joints, tendons, ligaments, fascia, blood vessels and organs together can become a source of relentless pain.

And then we act shocked when they ask for relief.

We know the history of Purdue.

We know the Sacklers.

We know reckless prescribing happened.

We know opioids were aggressively marketed.

We know addiction devastated lives.

We fucking know.

America has been hearing this story for more than a decade.

What we talk about far less is what happens when that damn pendulum,
the one Americans in pain keep warning about, swings the other way.

Legitimate opioid prescribing dropped dramatically.

Meanwhile, illicit fentanyl became the dominant force in overdose deaths.

A monitored chronic pain patient filling a legitimate oxycodone prescription is not the same thing as somebody buying a counterfeit pill containing illicit fentanyl.

Stop talking about them like they are.

And no, I’m not arguing for reckless prescribing.

I’m arguing for nuance.

We can condemn pill mills and still defend legitimate pain care.

We can recognize addiction and still recognize analgesia.

We can demand responsible prescribing without making physicians terrified to treat pain.

We can allow pharmacists to use judgment without turning legitimate patients into suspects by default.

And we can stop pretending every “alternative” is harmless or effective for everyone.

Sometimes pain medication is not about getting someone to zero.

Sometimes it is the difference between an eight and a five.

Between the bed and the shower.

Between isolation and dinner with your family.

Between merely surviving a day and actually participating in it.

That matters.

I have 15,401 followers, and one of the things I value most here is the chronic illness and chronic pain community.

We may have different diagnoses.

Different levels of severity.

Different bodies.

But we share the same emotional landscape:

Fear.

Uncertainty.

Exhaustion.

Grief.

Hope.

And that lonely walk out of a doctor’s office after hearing:

“Your labs look fine. I don’t know why this is happening.”

So when one of us disappears for a few days and somebody reaches out with:

“Hey. You okay?”

That matters too.

Because sometimes the most powerful thing you can give a chronically ill person isn’t another treatment suggestion.

It’s this:

I see you.

I believe you hurt.

And you shouldn’t have to suffer just so everybody else can cover their ass.

[Briana Mills, LMFT ♿️🏳️‍🌈🍉 @theBrianaMills]

September is Suicide Prevention Month. Suicide prevention is affordable housing. Suicide prevention is free healthcare. Suicide prevention is free education. Suicide prevention is food security. Suicide prevention is financial stability. Therapy can’t fix the system.

[Negan @Roger_Negan]

This

[Danielle Langford @DaniUK87]

Urge Major Brands to Cut Ties with Animal Testing by 2026 - Sign the Petition! https://t.co/QdGE1wWSKr

[RSM #NAFO fellas @Rod_dk]

This

[Danielle Langford @DaniUK87]

@ferrolla33 @misterkristoff Yes! Phenomenal trilogy!!! And if you're a collector the physical editions are also beautiful and the audiobooks are amazingly narrated too!!!

[Danielle Langford @DaniUK87]

@Yaamava @mattrife I have a chance! 🤞🏽 tickets don't sell out in minutes again so I grab a pair 😭

[ThePOTSPostman @ThePOTSPostman]

I genuinely cannot believe we are still publishing articles like this. This is exactly the kind of article that pisses chronically ill people off.

I’m so tired of seeing disabling medical conditions get reduced to nothing by people who know nothing about complex chronic conditions.

Yes, everyone will experience dizziness at some point in their life.
Everyone on this planet gets tired, and many know what a racing heart feels like.

That is not remotely the same as standing up and having your heart rate shoot to 150-170bpm.

It’s not the same as nearly passing out, having exercise intolerance, cognitive dysfunction, post exertional crashes, or chronic pain.

Severity matters. Frequency matters. The actual physiological response matters.

And then saying “it can be unclear whether you really have one of these illnesses.”

There are diagnostic criteria for these illnesses. Other causes are supposed to be ruled out first!

People aren’t getting diagnosed with POTS because they told their doctor “my heart races.”
They aren’t diagnosed with hEDS because they are a little flexible.

Can people misdiagnose themselves from a tik tok or Instagram reel? Yes.

Can doctors get diagnoses wrong? Yes.

But using that as your basis and insinuating an entire generation of young chronically ill women basically convinced themselves they were disabled is insulting.

I’m so tired of actual illness constantly being watered down to “well everyone experiences that.”

Not like this they fucking don’t.

https://t.co/bnfPfM0AX6

[Danielle Langford @DaniUK87]

@StevesThrillers Please don't ever feel self conscious about your scars and wearing what you feel comfortable in because they're insecure idiots! Those scars are a reminder of the Hell you went through and came out the other side, those strangers can go fork themselves!!!

[sek @SekAndTheCity]

It's time for a change.

[Danielle Langford @DaniUK87]

@Rottielover10 @VinoNStrosGal That's insane! All I can suggest is go to the ER they have to see you and explain the pharmacy is "out of stock" of her heart meds. They'll give you meds at least while she's there and fill the rx at the hospital pharmacy .... they should be in stock.

[Danielle Langford @DaniUK87]

@Rottielover10 @VinoNStrosGal OMG! They should've transferred the prescription to another cvs location that did! Or if they didn't have enough give you what they had and reached out to her Doctor for the rest of it 😶.

[Neurologist Mom @NeurologistMom]

“ME/CFS patients are similar to a critically ill patient 24 hours before they die, except they live like that for years and years.”

Dr. Ron Davis, Stanford University
#severemecfsday

[Danielle Langford @DaniUK87]

@bar_time14 Ugh I had one of those on for 30 days!!! I thought I was going to be scarred, 3 weeks in my body decided it didn't like the gel stuff underneath anymore 🙃 ... I hope you get some answers 🤞🏽

[Danielle Langford @DaniUK87]

@ThePOTSPostman And these are the best pillows I have EVER had @theghostbed They are expensive (look for their sales) but from someone who spends over half of their day in bed (Fibromyalgia & CFS/ME) phenomenal and don't lose their shape!

https://t.co/7hoIrxwhTs

[Danielle Langford @DaniUK87]

@ThePOTSPostman Electric blanket, ice pack body wrap on Amazon amazing for my Costochondritis I fall asleep in it and it velcros closed, large tumblers so fewer up & trips to stay hydrated, pill organizer, u-shaped body pillows, adjustable bed base, Pool PT & acupuncture, pain specialist

[Danielle Langford @DaniUK87]

@ThePOTSPostman This especially if you're somewhere hot like me (SoCal) I love it so much and wish I'd found it sooner!

https://t.co/JswhQ8qVHq

[Danielle Langford @DaniUK87]

@ThePOTSPostman *up & down trips

[Danielle Langford @DaniUK87]

@shilahdiminie @ThePOTSPostman And the ingredient list because allergies lol

[Danielle Langford @DaniUK87]

@shilahdiminie @ThePOTSPostman Peppermint tea, mints (tic tac, altoids, trebor mints), ginger ale, an otc anti-nausea syrup called Emetrol available at most pharmacies/stores like target, rite aid etc. It's the only thing that worked for me when it was awful but now I'm on prescribed 8mg Zofran (ondansetron).