Defending William Against DMD

I'm a little boy who was diagnosed with Duchenne Muscular Dystrophy in January 2016. I tweet to raise awareness & funding for DMD. Follow my journey

[Defending William Against DMD @DefndwilliamDMD]

I would like to #ThankATeacherDay today to all the wonderful staff @highfieldschool who have made my Year 7 journey such an amazing one. Huge shout out to my teachers and especially the SEND team 🙌

[Defending William Against DMD @DefndwilliamDMD]

Finally back to hydrotherapy - cannot explain how amazing it is to be able to be FREE of my chair 💙
https://t.co/YjBtSqxcKA

[Duchenne UK @DuchenneUK]

Janet Hoskin has published a new paper: ‘More than a just a physical condition’ – recognising the educational and emotional needs of children and young adults with Duchenne muscular dystrophy (DMD).

You can read the paper here: https://t.co/8NiRS3vTEp

[Joining Jack @alljoinjack]

BREAKING NEWS
A new medicine for DMD, funded by Joining Jack, @DuchenneUK & @DuchenneRF has become the first approved treatment in the UK for all patients with Duchenne!
NICE has approved vamorolone for use on the NHS to treat Duchenne - read full story
https://t.co/P2BIwoEIvT

[Defending William Against DMD @DefndwilliamDMD]

Thank you @kevinbonavia for taking the time to speak to me today about William, DMD & why we need your support. Let's get #Givinostat available to 1. Boys who achieve the EAP and 2. All boys with DMD like William.
@duchenneuk #italfarmaco #MHRA #NHS #accessforall @BBC3CR

[Defending William Against DMD @DefndwilliamDMD]

Its just so frustrating to book through @PassengerAssist & do all the ticks for an early app @GreatOrmondSt. Leave our departure station & then arrive @StPancrasInt 25 mins later to be told the lift has broken on both sides of the station @TLRailUK @Tanni_GT @sophmorgTV #fedup

[Defending William Against DMD @DefndwilliamDMD]

I met Spiderman today!!! @Tbrotherstrust thank you so much, #TomHolland was such a nice guy. The private film screening of #uncharted was brilliant. I am still buzzing. #dmd #duchenne #findacure #makeeverymomentcount @jo_eames @MEames1

[Defending William Against DMD @DefndwilliamDMD]

Just posted a photo @ Addenbrooke's Hospital https://t.co/41GxnGwN5j

[Defending William Against DMD @DefndwilliamDMD]

I turned 10 and have had the best birthday party ever!

Thanks to my lovely friends for coming and gaming the day away!

Topped off with a sleepover with my bestie cousin Jack too 💙 https://t.co/jLcNAI67TH

[Defending William Against DMD @DefndwilliamDMD]

@Herts_SGOs Oh that's such am amazing pic - thank you

[Defending William Against DMD @DefndwilliamDMD]

Excited today to represent @stevenageSFT in the @Herts_SGOs for Inclusive cricket 🏏 😀

[Defending William Against DMD @DefndwilliamDMD]

We did it!! Triathlon success! https://t.co/jvviUgHHvH

[Defending William Against DMD @DefndwilliamDMD]

It’s a village affair in Triathlon for William https://t.co/1fxIZCqPtT

[Jo Eames | DWAD 💙👊🏻💙 @jo_eames]

One of mummy's lovely friends is walking the Jurassic Coast today raising money for @duchenneuk
Good luck @kaytwhite 🥰💙👊🏻💙 https://t.co/1s4PoJw9JW

[Defending William Against DMD @DefndwilliamDMD]

Triathlon anyone?? https://t.co/WtXPiRYhjA

[Duchenne UK @DuchenneUK]

Huge thank you to our partners @Saracens for supporting us at their pre-season friendly Vs @UlsterRugby tonight and giving William the chance to take the ball out!

Catch up on the match here and text TACKLEDMD to 70085 to donate £10 https://t.co/5UoMfVDXCy

[Defending William Against DMD @DefndwilliamDMD]

Yes Team! Thank you everyone

[Defending William Against DMD @DefndwilliamDMD]

This thread can be read here: https://t.co/cvETddS8zN

[Defending William Against DMD @DefndwilliamDMD]

Donate a Day

A thread ⬇️ https://t.co/cvETddS8zN

[Defending William Against DMD @DefndwilliamDMD]

#DonateaDay (https://t.co/OZSNea4W1S) #duchennemusculardystrophy (https://t.co/W0IvNF4GUA) #defendingwilliamagainstduchenne (https://t.co/JdTPra2EwM) #charity (https://t.co/veB5EJFJTZ) #donate (https://t.co/4iOBpQWXhG) #familyfund (https://t.co/jIcs6gTXsS)