Dysautonomia Probs

When life gives you Dysautonomia, you make lemonade, albiet sour lemonade with a touch of sarcasm and a sprinkle of self-depricating humor.

[Dysautonomia Probs @DysautonomProbs]

Looking for participants for a project ! Info in the flyer below and at https://t.co/hpuPExScfu!

#transgender #chronicillness #disabilities #transmasculine #transfeminine #nonbinary #GNC #spoonie #transman #transwoman #ChronicPain #twospirit #medicaltrauma #MedicalProcedures

[Dysautonomia Probs @DysautonomProbs]

The results are in!

🥁🥁🥁🥁🥁🥁🥁🥁🥁🥁🥁🥁

COVID you are NOT the diagnosis!

Hallelujah! We may never know whether it is a random illness or flare up. But for now the mystery of the Sick Spoonie will remain... unsolved.

[Dysautonomia Probs @DysautonomProbs]

This week our usual game of “am I sick or having a flare up” has been replaced with “do I have #COVID or am I having a flare up?” Same contestant, different stakes and prizes! Stay tuned to your favorite Spoonie Broadcasting Station for more!

[Dysautonomia Probs @DysautonomProbs]

Self-administered the test this morning! Place your bets now! Flare-up from hell, COVID, or mystery option C! Find out next time on Dyssy’s Spoonie Life!

[Dysautonomia Probs @DysautonomProbs]

Today:
Friends: I’m going crazy having to stay home all day every day! I’d give anything to get to do things!
Me: lol

A few weeks ago:
Friend: You’re so lucky you get to stay home all day every day!
Me: I wish I could do more things tho...
Friend: Don’t complain!

#Quarantine

[Dysautonomia Probs @DysautonomProbs]

@JoshSundquist Really interesting way of phrasing it, and it seems true. But I always thought you did amazingly with your comedic YouTube, even before you did stand up. I am sad because I’d hoped to see your show today (if one was going to be today) for my birthday.

[Dysautonomia Probs @DysautonomProbs]

Friends: I just LOVE the summer! The suns out, it’s warm, we could go to the beach!
Me: *walks outside* *promptly dies*
My ghost: Ah yes. Sun and heat. My old foes.

#summer #heatintolerance #heat #sunsick

[Dysautonomia Probs @DysautonomProbs]

Random stranger on sidewalk: *sees my service dog* “what kind of service does he provide?”
Me: “that’s kinda personal?”
Stranger: “oh sorry didn’t realize he was an emotional support dog!”
Me: “?He’s not?”
#whydoabledsthinktheyhavearighttoourprivateinfo

[Dysautonomia Probs @DysautonomProbs]

Everyone: “If you need IV fluids, just ask your dr!”
Me: “Yeah! I don’t know why I’m nervous! He knows I have POTS!”
*Later*
Dr: “Hmmm idk... Are we sure you’re dehydrated? We wouldn’t want to do anything unnecessary. Rest would be better”
Me: “I JUST WANT A LITER OF SALINE!”

[Dysautonomia Probs @DysautonomProbs]

That feeling when you’re so dehydrated that you’re too dehydrated to drink water, but you’re just dehydrated enough to be out of it enough to not remember why you’d need water anyway.

Did that make sense? Not sure. Sorry, I’m a tad #dehydrated. #GimmeABananaBag #OrJustSaline

[Dysautonomia Probs @DysautonomProbs]

It’s so fun running late to church because two Uber drivers in a row refuse to take you because of your service dog. Thanks, Uber. #servicedog #notaveryfunnytweet #sorry #bitter

[Dysautonomia Probs @DysautonomProbs]

Lady: Omg youre so lucky you get to bring your dog with you everywhere!
Me: Not really? I need a service dog so I can leave home w/o being hospitalized?
Her: but he’s so good! Youre so lucky!
Me: i had to pay thousands. I’m not lucky that I need accommodations
#AbledsAreWeird

[Dysautonomia Probs @DysautonomProbs]

Here’s to all of the POTSIE ladies on #InternationalWomensDay! ~85% of all POTS patients are female, so make sure to drink a Gatorade on behalf of all of our POTSIE sisters around the globe! #POTSStrong #raiseaglass

[Dysautonomia Intl. @Dysautonomia]

Valentine's Day love notes, dysautonomia style! Learn more about dysautonomia at https://t.co/sPvAnCv5n9.

[Dysautonomia Probs @DysautonomProbs]

Me: *sees a cute person and stands up*
Me: *gets lightheaded and almost passes out*
Friend: Woah! You almost fainted at first sight! They must be your true love!
Me: ...

Happy Valentines Day to all the tachy hearts out there!
#ValentinesDay #POTS #NotLove #JustPOTS

[Dysautonomia Probs @DysautonomProbs]

@TRELegal @Uber I’ll check it out!

[Dysautonomia Probs @DysautonomProbs]

So so so tired of @Uber drivers rejecting me for my #servicedog, who sits on the floor between my feet when in the car.

No, there is no actual cards that certify my service dog. Those are scams online.

No, I don’t have my papers on me. Can’t ask for those legally.

[Dysautonomia Probs @DysautonomProbs]

@frocine @RebeccaCokley @Uber @lyft Maybe I’ll try using Lyft more. It’s been at least once a month that I get denied for my service dog.

[Dysautonomia Probs @DysautonomProbs]

@MissAmyCMHodge That’s a solid resolution! I’ll give it a shot!

[Dysautonomia Probs @DysautonomProbs]

Spoonie looking online for New Years Resolution inspiration:
Eat healthy? I eat what I can when I can
Work out? Does that include showering?
Keep things tidy? Well I could tidy or shower or eat.
Read more? Brain fog.

Guess I’m not having a resolution this year!

Any ideas?