EACHPIC

Ensuring Access through Collaborative Health (EACH) Coalition of patient organizations and Patient Inclusion Council (PIC) comprised of patient advocates

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🚨 Your voice belongs in this room.
Patients & caregivers: Make your voice heard about your experiences with medication access & affordability. Your voice matters! 🗣️
📅 Monday, Sept. 14 | 🕕 6 PM ET | 5 PM CT | 4 PM MT | 3 PM PT
Register now! 🔗 https://t.co/UohJjdd35D

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🚨 Have you registered yet?
Patients & caregivers of ALL health conditions: Join the Patient Truth Town Hall to share your experiences with medication costs & access.
📅 Monday, Sept. 14 | 🕕 6 PM ET | 5 PM CT | 4 PM MT | 3 PM PT
Register: https://t.co/8NlZNDD5Lr @ChronicCarePA

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Patients & caregivers: What’s one thing you wish people understood about getting your medication? 💰 Cost? 📋 Insurance? ⏳ Delays? 🔄 Access? Your experience matters!🗣️
Join our Patient Truth Town Hall Sept. 14 at 6 PM ET | 5 CT | 4 MT | 3 PT
Register: https://t.co/Knv84IYh4E

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Have you hit a wall getting a medication you need? Your experience is exactly what makes these conversations land. Share it with us. 👇

#PatientVoice #HealthPolicy #DrugPricing #MedicationAccess #NCSLSummit

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That's what AiArthritis's Mark Hobraczk brought into the room at the 2026 @NCSLorg Legislative Summit, meeting with lawmakers on behalf of the EACH to make one thing clear: policies meant to lower drug costs have to actually work for the people paying them.

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Ever stared down the cost of a medication you can't go without? You already know what's at stake.

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Share your experience in the comments or send us a DM. Your perspective can help inform conversations about medication affordability. 💙

#MedicationAffordability #PatientVoices #PatientAdvocacy

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Skipping doses. Delaying refills. Choosing between medications and other essentials. These aren’t hypotheticals — they are real experiences patients and caregivers face when medications become unaffordable.

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If you’ve experienced challenges affording your medications, you are not alone. Your experience matters. Share your perspective with the Patient Inclusion Council and help ensure patient voices shape conversations about medication affordability.

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@Viajera555 As patients leading this, we understand & are fighting for solutions to lower prescription drug costs. While the PDAB UPL/price cap is advertised to be for patients, it's actually not. It's a cap for insurance companies. We want solutions that put patient savings first!

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In a big initial victory for patients, a federal judge has blocked Colorado's Prescription Drug Affordability Board from imposing its upper payment limit on Enbrel, ruling that state price caps are pre-empted by federal patent law.

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MFN pricing policies do not address patient-reported issues or directly lower their out-of-pocket costs. @SenateGOP and @SenateDem should reject MFN amendments to the reconciliation package: https://t.co/AUUixre1L2

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MFN pricing proposals risk creating uncertainty for patients who rely on stable access to their medications. We urge @lisamurkowski @SenHawleyPress to oppose these amendments during reconciliation debate: https://t.co/AUUixre1L2

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We urge @SenatorCollins @SenDanSullivan to oppose MFN price setting amendments during reconciliation consideration and instead focus on reforms that directly lower patient costs and protect access. https://t.co/AUUixre1L2

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MFN policies risk shifting costs and creating new access barriers for patients. We urge @SenMcCormickPA @berniemoreno @SenJonHusted to reject any MFN amendments during reconciliation: https://t.co/AUUixre1L2

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@SenateGOP and @SenateDems should reject MFN amendments that focus on pricing benchmarks instead of the real drivers of patient affordability challenges and treatment access: https://t.co/AUUixre1L2

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Why have you ever not wanted to share your patient story?

Patients are asked to share their stories to shape health policy, but the reasons why some patients and caregivers choose not to share are rarely discussed.

Join the chat & tag 2 people.

#ChronicIllness #healthequity

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Real question: What has it actually been like trying to afford your Xtandi medication?
https://t.co/HhREtxZnUw

#prostatecancer #PatientWhy #PrescriptionCosts #HealthcareReform

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Real question: What has it actually been like trying to afford your Humira medication?  https://t.co/HhREtxZnUw

#rheumatoidarthritis #ankylosingspondylitis #chronicplaquepsoriasis #psoriaticarthritis #Crohns #ulcerativecolitis #PatientWhy #PrescriptionCosts