ECMTF European CMT Federation

[ECMTF European CMT Federation @EcmtfF]

@ecmtf is are glad to announce that the US association @cmtausa joined the European CMT Association as Associate Member. Together, we are stronger! #CMT #cmtawareness #raredisease #neuropathy

[ECMTF European CMT Federation @EcmtfF]

@ecmtf We are delighted to welcome the CMT Research Foundation as an Associate Member of the European CMT Federation community. Together, we are stronger! @CMTRF #CMT #charcotmarietooth

[ECMTF European CMT Federation @EcmtfF]

Advanced new therapy for #CMT. To know more read the Press Release: https://t.co/9el7YzUTXX
#cmtawareness #raredisease #neuropathy

[ECMTF European CMT Federation @EcmtfF]

Congratulations to Derek, Gwen and Michael! You’re the winners of the “Talk-CMT” Competition in collaboration with Talk-CMT and SockingClumsy!
#CMT #charcotmarietooth @rarediseaseday

[ECMTF European CMT Federation @EcmtfF]

@ecmtf Congratulations to Derek, Gwen and Michael! You’re the winners of the “Talk-CMT” Competition in collaboration with Talk-CMT and @SockingClumsy!
#RareDiseaseDay2023 #CMT #cmtawareness

[ECMTF European CMT Federation @EcmtfF]

Rare is many! Rare is strong! Rare is proud!

[ECMTF European CMT Federation @EcmtfF]

Today is #RareDiseaseDay2023. We’ll be announcing the winners for the “Talk-CMT” Competition in collaboration with Talk-CMT and @SockingClumsy at 16:00CET. Watch this space! #CMT #charcotmarietooth #cmtawareness

[ECMTF European CMT Federation @EcmtfF]

The onset of a rare disease in childhood often causes a very severe form of the disease. #CMT #RareDiseaseDay

[ECMTF European CMT Federation @EcmtfF]

While the judges review the entries for the “Talk-CMT” Competition, please take a few moments to learn about #CMT ahead of #RareDiseaseDay2023 by reading this infographic. #charcotmarietooth #cmtawareness

[ECMTF European CMT Federation @EcmtfF]

75% of rare diseases are of genetic origin

[ECMTF European CMT Federation @EcmtfF]

Thank you to everyone who entered our global “Talk-CMT” Competition held in collaboration with Talk-CMT and @SockingClumsy. Winners will be announced on #RareDiseaseDay, 28 February. Good luck! #CMT #charcotmarietooth #cmtawareness

[ECMTF European CMT Federation @EcmtfF]

Today’s the last day to submit your entry for our ‘Talk CMT’ Competition for a chance to win and raise #CMTawareness. Learn about CMT: https://t.co/5PdZGFAxZP For entry criteria: https://t.co/Fgf1Lia2yT

[ECMTF European CMT Federation @EcmtfF]

Don’t forget to send in your entry for the ‘Talk CMT’ Competition by 17.00 CET, 20 Feb for a chance to win and to raise #CMTawareness. Learn about CMT: https://t.co/5PdZGFA0ah For more information: https://t.co/Fgf1Li9uJl

[ECMTF European CMT Federation @EcmtfF]

@ecmtf If you are 18 or over and you have been diagnosed with #CMT, you can take part in research exploring the lived experience of adult CMTs. Information: https://t.co/hSFmlpGaHW email: [email protected] #charcotmarietooth

[ECMTF European CMT Federation @EcmtfF]

#rarediseases currently affect from 3.5 to 5.9% of the worldwide population. #CMT #RareDiseaseDay

[ECMTF European CMT Federation @EcmtfF]

There are more than 6000 rare diseases

[ECMTF European CMT Federation @EcmtfF]

There’s just over a week left to enter the ‘Talk CMT’ Competition to mark #RareDiseaseDay. Submit by 20 Feb for a chance to win and raise #CMT awareness.
Learn about CMT: https://t.co/5PdZGFA0ah For more information: https://t.co/Fgf1Li9uJl

[ECMTF European CMT Federation @EcmtfF]

Rare diseases currently affect 30 million people in Europe and 300 million worldwide.

[ECMTF European CMT Federation @EcmtfF]

Send in your entry for the ‘Talk CMT’ Competition.
Watch this video to learn more about Socking Clumsy: https://t.co/9mnNHQ11La
Here the contest criteria: https://t.co/Fgf1Li9uJl
#CMT #rarediseaseday2023 #cmtawareness

[ECMTF European CMT Federation @EcmtfF]

Save the date!
On 28 February, #RareDiseaseDay2023 will be celebrated all over the world!
The countdown begins!
#CMT #cmtawareness #rarediseases