VEDS Study is now open to (ALL)children under 18, and those who have lost their lives. Their next-of-kin can enroll them. They can still be counted, have a voice, and make a difference for others (in their memory)💔😪Thank you! https://t.co/JTz8ejBbWq
#vascularEDS#ehlersdanlos
We are so excited to see our Professional Advisory Board member and VEDS advocate, @ShereneShalhub featured by @vascularsvs. Learn more about her here: https://t.co/1YhqUEAthD
There’s a misleading, inaccurate quote that should be corrected. VEDS is “NOT” typically diagnosed in childhood. It’s often misdiagnosed or diagnosed after death….if they even know to look for it, at all! “The eye cannot see what the mind does NOT know.”
Aytu BioPharma Announces FDA Clearance of Investigational New Drug (IND) Application for AR101/Enzastaurin in Vascular Ehlers-Danlos Syndrome
https://t.co/FUVqqy8k5Z
Aytu BioPharma Announces FDA Clearance of Investigational New Drug (IND) Application for AR101/Enzastaurin in Vascular Ehlers-Danlos Syndrome
https://t.co/FUVqqy8k5Z
What a powerful conversation about grief to have on late night. So much respect for Andrew Garfield and his unforgettable response, and for @StephenAtHome who really goes out of his way to create these human moments on his show ❤️
“It’s a monster that’s sleeping right now.”
Thank you, Annie, for sharing your #VEDS story with us. Visit our website to hear her full story, learn about our upcoming clinical trial, and to find out why we’re #ChargingForward4VEDS: https://t.co/iiV9FKU3qY
The VEDS Movement is saddened to hear of the passing of Trevor Jones. Our condolences go out to his family, friends, and anyone touched by his journey in life. Please help us to continue to spread awareness of #VEDS in our effort to save lives. https://t.co/HVu8b6LV4A
The 2nd annual VEDS Birthday Bash is almost here and the auction is open! Check it out at https://t.co/srO5g3bNfD. And it's not too late to join the party! Go to https://t.co/FXIYl3EaVH to sign up. Thanks to our sponsors, @DEFYFoundation, @AytuBioPharma_ & Peter & Linda DiDonato.
Aytu BioPharma Announces Formation of New Scientific Advisory Board to Support Development of AR101 for Vascular Ehlers-Danlos Syndrome https://t.co/P8QbRhNIxI