Last Sunday, I had the incredible experience of running the @TCSadammarathon to raise funds for @kwf_nl in support of cancer research. Huge thank you to everyone who sponsored me! #KWF@NKI_nl
It was a pleasure to provide an update on our project, ‘Expanding Partnerships with Patients and Carers in the EORTC to Optimize Trials and QoL Measurement’, during the @EORTC_QLG meeting in Innsbruck, with Iryna, @OlgaHusson@Winette_vdGraaf@EORTC@NKI_nl
📚 In the context of @EORTC#QualityofLife Group Autumn meeting in Innsbruck, today the PMDC is hosting a workshop on module development (focusing on Phase 1 & 2) to train researchers/ clinicians, etc, who do not have much experience with questionnaire development.
#QLGmeeting
Primary delay #sarcoma diagnosis is patient & doctor related. No surprise: sarcomas are rare. Our first study @OlgaHusson with GPs and our PhD student Emily Holthuis. The prediagnostic general practitioner care of sarcoma patients: A real-world data study https://t.co/Rycb0GzHDG
July #sarcomaawarenessmonth. E. Holthuis @OlgaHusson Improving Diagnosis and Care for Patients With Sarcoma: Do Real-World General Practitioners Data and Prospective Data Collections Have a Place Next to Clinical Trials? | JCO Clinical Cancer Informatics https://t.co/HxBW1e28j9
Yesterday, I shared initial findings from the QUEST study during the Dutch Sarcoma Group Research Day. It was a very fun and informative event packed with insightful presentations. Excited to delve deeper into this research! @Winette_vdGraaf@OlgaHusson#sarcoma#DSG
The Dutch Sarcoma Group at the beautiful environment of @AntropiaCongres in the center of the Netherlands. Inspiring environment to discuss research. AI in radiology has entered the #sarcoma field, many data based on (inter)national collaborations & neoadjuvant studies presented.
Happy to present our EORTC QLG project ‘Expanding partnerships with patients and carers in the EORTC to optimise trials and QoL measurements’ with Iryna Shakhnenko during the EORTC QLG meeting in Rome. @EORTC@EORTC_QLG@Winette_vdGraaf@OlgaHusson@NKI_nl
💡 Are there early clues to sarcoma in the pattern of GP visits before diagnosis?
📋 A poster presentation at #ESMOSarcomaAndRareCancers24 by @EmilyHolthuis of @NKI_nl, @hetAVL provided insights on the pre-diagnostic trajectory.
➡️ Learn more: https://t.co/3i1JvOlmfE
Veel interesse van patiënten voor het onderwerp kwaliteit van leven als je te maken krijgt met een zeldzame kanker, een onderwerp waar Emily Holthuis en Catarina Simões Padilla uit onze onderzoeksgroep onderzoek naar doen en over presenteerden.
@ERN_EURACAN@EORTC@OlgaHusson
Very happy to share that I presented a poster during the #CTOS2023 in Dublin about the first results on our real-world data study on the pre-diagnostic general practitioner journey of sarcoma patients. @Winette_vdGraaf@OlgaHusson @Nivel_research @ctosociety