Father, husband, neonatologist, researcher in neonatal brain injury, associate professor University of NE, Children’s Hospital & Med Center. Views are my own.
So excited for this project w/@npqic. 1st step to effective change is understanding population. We hope these data will help improve outcomes of babies with brain injury throughout NE and the region. Already enrolling at @unmc and @ChildrensOmaha. #HIE https://t.co/EyCwIGbh4O
CHRI Researchers, Karoly Mirnics, MD, PhD, dean and director of the @unmc_mmi and lead author @ESPeeples , MD, PhD, associate professor in the @unmc Division of Neonatology, announce suggested link between #autism and prenatal exposure to medications. https://t.co/0RMqNSmdNH
Article discussing our first paper from a nearly 10-year project (Original article at https://t.co/QegDybTIjZ) that will hopefully only keep growing in the future. #HIE@CHRI_ResearchNE
Using a Neonatal Encephalopathy Registry to Improve Care https://t.co/Fr5hAhdDaX
𝗚𝗶𝘃𝗶𝗻𝗴 𝗧𝘂𝗲𝘀𝗱𝗮𝘆 𝗠𝗮𝘁𝗰𝗵 𝗔𝗹𝗲𝗿𝘁!
The first $3,500 in gifts will be matched by our Board of Directors — doubling your impact from the start!
Make a donation online at https://t.co/qxPpfjquVM
#HopeStartsHere#GivingTuesday2025
@ESPeeples & the @NewbornBrains work -- HIElighted at the @ChildNeuroSoc meeting! 🧠👶 Multidisciplanary work is how we do the best work for children and families!
COMMUNITY RESEARCH MILESTONE!
The first families have enrolled in the HIE Community Research Registry — this marks an incredible acHIEvement as we move forward long overdue research for #HIE.
Read all about it ⬇️
https://t.co/Z84MQmHxjX
Thankful for the amazing team making this happen between @CPRN_org@NewbornBrains@ChildrensColo@vesoulislab@DanielleGBarber@ESPeeples and so many others!
#NeoTwitter #NeuroTwitter #NICU #HIEresearch
🌟Exciting Developments in the Advancement of Neonatal HIE Research! The article "Data Collection Variability Across Neonatal Hypoxic-Ischemic Encephalopathy Registries" is now available open access! 📖
HIE registries worldwide collect crucial patient data, but variability in data collection limits collaboration. Standardizing data elements is key to improving neonatal HIE outcomes globally.
Read, download, and share the findings from our Guidelines & Publications Committee 🔗 https://t.co/JiSsDucqFs
#research #hie
CDC's Morbidity and Mortality Weekly Report (MMWR) has provided real-time data and analysis about disease outbreaks and emerging health threats without a break every week since 1960.
Until today.
The Pediatric Neuroscience Mini-Summit is showcasing the wide range of research being done by @unmc_mmi faculty members. @JenniBlackford @JEG_PhD Topics include #mobility, early #autism detection, a spoon that teaches children how to eat and physical therapy through VR games.
This morning, CHRI is cohosting the Pediatric #Neuroscience Mini-Summit. Dr. Raul Chavez-Valdez of the @JohnsHopkins Division of Neonatology kicks off the morning with his talk, “ApoE Alleles Modulating the Response to #Hypoxic-Ischemic Injury During Early Brain Development.”
If your family has been affected by HIE, please consider adding your voice to this project! Partnering with @HopeforHIE and @UNOmaha we are developing an AI based educational resource for families of children with HIE. We need experts (families) to help guide this work.
NEW PROJECT ALERT! Building Education for HIE through AI
💛🩵💙
Facing a diagnosis of neonatal or pediatric-acquired HIE can be filled with uncertainty, and it often feels like learning about a new world that you didn’t know existed. This burden of seeking educational resources and support to help you understand a complex diagnosis like HIE and how best to help your child often feels like it is solely on your shoulders.
In partnership with researchers from the University of Nebraska (IRB #0092-24-EX), we are collaborating on a project to better understand the educational and support needs of the Hope for HIE community. Specifically, we are hoping to understand how AI may be used and developed into a tailored, personalized, and accessible educational resource using what is called large language modeling (LLM).
The study team is looking for 10 participants to engage in three (3) 1-hour video interviews via teleconferencing software, with the option to serve as beta testers when the tool is developed in future project phases.
Participants will be compensated for their time and participation.
The in-depth interviews aim to better understand the facilitators and barriers the Hope or HIE community faces when seeking educational information and support programming around HIE.
If you aren't selected for an interview, or don't have the time to be a part of the interviews, fill out the survey anyway to be a part of the beta testing team!
SIGN UP NOW!
➡ https://t.co/3pMsFw2J34
#HopeforHIE #HIE #HIEresearch #Education #HealthLiteracy #HypoxicIschemicEncephalopathy #HIEawareness #HIEawarenessMonth #TransformingHope #AI #AIeducation #PatientAdvocacy #PatientEducation #NeoTwitter #NeuroTwitter #NICU
HIE is the top cause of #NeonatalEncephalopathy.
NE is identified as a leading global burden of disease in this analysis in @TheLancet, ahead of many other focus areas in #neonatology and #neurology.
Seems like we need to address inequity in funding & emphasis on improving this #NeoTwitter.
👀👀👀👀
@AAPneonatal@AAPGlobalHealth@WHO@UNICEF — join with us this April for our annual global #HIEawarenessmonth & the 2024 theme of #TransformingHope.
https://t.co/vszGhaCuEg
So far some amazing talks from international leaders in neonatal brain development and injury, #INBBC day1. Side effects may include increased motivation, improved patient care… and brain-related hallucinations? Anyone else seeing neural networks in the conference room floor?
What is the efficacy of second line anticonvulsants in neonates with seizures despite Phenobarbital?
A New Study published @TheLancet Regional Health by @ronitpressler & @SudhinThayyil group
#neoEBM#EBNEOAlerts
https://t.co/3fbpHMzmsD
BAPM has published a new Quality Improvement Toolkit 'Reducing the incidence of bronchopulmonary dysplasia'.
View the Toolkit here> https://t.co/jnXb9kMztX
We should be clear with parents on risks and potential benefits for PDA treatments. We need to have clinical equipoise to consent and enroll patients in acetaminophen and catheter closure trials to inform PDA care
#HotTopicsNeo2023#neoTwitter#neoEBM#PDA