Eva Rose Trust 💜🦋

The Trust was set up from the loss of Eva Rose to Necrotising Entercolitis in March 2017 | Research | Educate | Support | #PreventNEC #ZeroNEC

[Tom Moss-Silverson #19 @SandsUnited_Tom]

This month coming for November myself and a few of my work colleagues at the @DomeWorthing will be partaking in #Movember. I will be raising money by a few means. https://t.co/73VuxpJLs9

[Eva Rose Trust 💜🦋 @EvaRoseTrust]

As today is #InternationalWomensDay2022, we wanted to shine some light on our Founder and Eva's mummy Lou.

She is the rock for the family and keeps going to push us forward to be able to help more families and raise awareness of Necrotising Enterocolitis. #BreakTheBias #evarose

[Eva Rose Trust 💜🦋 @EvaRoseTrust]

Today is National Rainbow Baby day.

#rainbowbaby #EvaRoseTrust #rainbow #rainbowbabyday

[Eva Rose Trust 💜🦋 @EvaRoseTrust]

My first 10k Run/walk today to meet my training goal pre marathon sign up

Just a reminder to take some time for you & be kind to yourselves- something which is easier said than done!

#brightonmarathon2022 #marathontraining #marathon #running #fitness #EvaRoseTrust #preventNEC

[Eva Rose Trust 💜🦋 @EvaRoseTrust]

#Marathon training begins...

In Eva's name, Tom & I will be 🏃‍♀️ 🏃‍♂️ the @BrightonMarathn 2022

We want to raise awareness of babyloss, break the silence and promote support avaliable to those affected by the devastation #babyloss causes.

💜🦋
#running #fitness #EvaRoseTrust

[Eva Rose Trust 💜🦋 @EvaRoseTrust]

Happy Father's Day to all Father's

#fathersday #fathersday2021

[Tom Moss-Silverson #19 @SandsUnited_Tom]

Wow cannot believe I've hit my target already. Going to up it too £500 and see if the power of social media can get me to it.

@LPTrustUK
@EvaRoseTrust

https://t.co/cxm5jDJY0b

#charity #donate #headshave #hairshave #LittlePrincessTrust #EvaRoseTrust

[Tom Moss-Silverson #19 @SandsUnited_Tom]

Hi all thank you all for watching me shave my head on Wednesday. the JustGiving page is now live.

I am Splitting any money I raise between @EvaRoseTrust & The @LPTrustUK

https://t.co/cxm5jDJY0b

[Eva Rose Trust 💜🦋 @EvaRoseTrust]

We will never be able to thank @RMHCUK Brighton enough for what they did for us.

You never know whether you will be in a situation where you need a charity like this.

#ERT19for19 #PreventNEC #EvaRoseTrust #ZeroNEC #EvaRoseTrustLaunch #Eva #necrotizingenterocolitis

[Eva Rose Trust 💜🦋 @EvaRoseTrust]

Have you seen those small charity tubs at pay points at #McDonalds ?
Do you know what they are for?
Well we didn't until the girls were born prematurely.

#ERT19for19 #PreventNEC #EvaRoseTrust #ZeroNEC #EvaRoseTrustLaunch #Eva #necrotizingenterocolitis #necrotisingenterocolitis

[Eva Rose Trust 💜🦋 @EvaRoseTrust]

We encourage you to look into this incredible charity whose staff work tirelessness to ensure families are together at such a difficult time.

#ERT19for19 #PreventNEC #EvaRoseTrust #ZeroNEC #EvaRoseTrustLaunch #Eva #necrotizingenterocolitis #necrotisingenterocolitis #Babyloss

[Eva Rose Trust 💜🦋 @EvaRoseTrust]

Whether we like it or not, Eva has left us a job to do and one we will do in her name always.
We are so fortunate to have such supporting family and friends who have always stepped in to support us on this journey.
#ERT19for19 #EvaRoseTrust #ZeroNEC #EvaRoseTrustLaunch #Eva

[Eva Rose Trust 💜🦋 @EvaRoseTrust]

During the last week of Eva's life, we had a couple of choices to make. The most difficult choice felt very much felt like it was taken out of our hands.

#ERT19for19 #PreventNEC #EvaRoseTrust #ZeroNEC #EvaRoseTrustLaunch #Eva #necrotizingenterocolitis #necrotisingenterocolitis

[Eva Rose Trust 💜🦋 @EvaRoseTrust]

NEC is a devastating disease and we knew there was so much which could be done to support families to detect NEC early, be more confident voicing their opinions to the clinicians and there was clear inconsistencies in practice.