FMDAdvocate

I am a former research nurse & stroke survivor. Now spending my time as an advocate for #raredisease, #FMD , Fibromuscular Dysplasia

[Natasha Trzaskalski @NatashaTrza]

What a privilege to hear Dr. Jacqueline Saw speak to us at #CLVS2023 about ‘the journey uncovering scad’, starting in 1931 with a woman after a night of fish and chips, through her own work linking SCAD to fibromuscular dysplasia and a categorization guide

[FMDAdvocate @FMDAdvocate]

@Delta Does this look like plenty of room for feet in comfort seating? Attendants passing out headphones but no monitors in comfort seating. Flight 2326 @1136 JAX -ATL.

[Texas Heart Institute @ Baylor College of Medicine @Texas_Heart]

Join us this Friday at noon for Cardiology Grand Rounds with Dr. Jeffrey W. Olin, @DrJeffreyWOlin1 of @IcahnMountSinai.
"Fibromuscular Dysplasia: The Rare Disease That Isn’t"
#CME available. https://t.co/YI4uS08bkS.

[FMDSA @FMDartery]

Join us for our annual conference May 19-20th, 2023.
#FMDSA will be celebrating our 20th Anniversary. https://t.co/MrJeczKiJY

[medRxiv @medrxivpreprint]

Peculiar morphologic characteristics of adrenal veins and similarity to fibromuscular dysplasia of artery: implication of pathogenesis https://t.co/gMfZtRj71n #medRxiv

[FMDAdvocate @FMDAdvocate]

#Stroke Patient Says Awareness Of Symptoms Could Mean Faster Recovery https://t.co/jS2pByR6Ac

[FMDAdvocate @FMDAdvocate]

16-Year-Old "Saves His Own Life," Calls 911 While Having AVM Rupture #stroke ⁦@SVM_tweets⁩ https://t.co/0747rTbCZQ

[FMDSA @FMDartery]

PLASMA STEROID PROFILE IN WOMEN WITH FIBROMUSCULAR DYSPLASIA - THE ARCADIA-GYN STUDY #FMD https://t.co/JiiVFruERu

[FMDAdvocate @FMDAdvocate]

It’s great to have more physicians in Florida with an interest in #FMD #fibromuscularDysplasia #SCAD #FMDSA @CleveClinicFL @pdmace2

[Cleveland Clinic Florida @CleveClinicFL]

Jason Wheeler, MD has joined the Dept of Vascular Medicine at #CleveClinicFl in #Weston.

His clinical interests include: pulmonary embolism; DVT; fibromuscular dysplasia; aortic aneurysms; lymphedema; peripheral arterial disease; carotid stenosis & more. https://t.co/No6FVLojoh

[iSCADregistry @iSCADregistry]

Closing out #ACC22 w/ poster “Migraine Headache in Patients with SCAD” ⁦@EstherSHKimMD⁩ ⁦@katherinekleon⁩ ⁦@wellsbryanj⁩ Already thinking about #ACC23!
#SCAD #SCADheart #scadalliance

[FMDSA @FMDartery]

We are very excited to follow the updates being shared. Thank you!

[FMD-EU @FmdBe]

Thank you to all the researcher’s worldwide investigating #fmd and #scad, diseases that affect predominantly #women

#InternationalWomensDay2022 #InternationalWomensDay #fibromusculardysplasia #fmdawareness

@FMDartery @fmdgroep

[Pam Mace, RN @pdmace2]

22 years since my #FMD diagnosis. First diagnosed in 1938 and still no cure #RareDiseaseDay #FMD #Hope @kovacic_jason @SanthiKGanesh @n_bouatianaji let’s figure this out in my lifetime ❤️

[FMDSA @FMDartery]

It's #RareDiseaseDay2022 meet Giamila from Milano. She has #migraines #FMD #FibromusucularDysplasia Giamila recalls working in a hospital when a young girl came in for a nephrectomy. The girl was from a small town and not diagnosed in time to save her kidney.

[FMDSA @FMDartery]

Great presentation by @DrJeffreyWOlin1 @MountSinaiNYC on the Epidemiology of #FMD & Link with #SCAD today #VanSCAD2022 @docsaw #FMDSA

[FMDSA @FMDartery]

We look forward to virtual #VanSCAD2022 2/19/2022 #VGH @docsaw & colleagues will present findings about spontaneous coronary artery dissection and #fmd Fibromuscular Dysplasia @DrJeffreyWOlin1 @MountSinaiNYC Register https://t.co/gIzi2aCmPp
#FMDSA

[FMDSA @FMDartery]

Meet Dustin.
Dustin is wearing the color Red to support and bring awareness to #FMD #FibromuscularDysplasia #scad #strokeawareness #heartattack Today is #WearRedDay #GoRed

[FMDSA @FMDartery]

Save the date:March 18th
A free program, led by @wellsbryanj @emoryhealthcare an overview of fibromuscular dysplasia #FMD and feature presentations from Pam Mace, RN of the #FMDSA. Registration for the zoom link will be provided at a later date.

[Victor Chang Cardiac Research Institute @VictorChangInst]

Fantastic recognition for our ED Prof @kovacic_jason who’s been presented with @Agilent Thought Leader Award for his research into vascular diseases, fibromuscular dysplasia, and spontaneous coronary artery dissection: https://t.co/1RutXvL0Sc
#FMD #SCAD @FMDartery @FMDAdvocate