FNDHopeUK

📣 Raising awareness & understanding of #FunctionalNeurologicalDisorder in the UK

🧡💙 Supporting those affected

🔬 Advancing research for better care

[FNDHopeUK @FNDHopeUK]

🎉 Announcement: Helen Bolter Award Winner - Stuart Cosgrove!
🏆We are thrilled to reveal that the esteemed recipient of this year's Helen Bolter Award is none other than Stuart Cosgrove, a dedicated physiotherapist with an extraordinary impact on Functional Neurological Disorder (FND) awareness.

🌟 About the Helen Bolter Award: The Helen Bolter Award is an annual initiative honouring healthcare professionals who go above and beyond to combat the stigma surrounding FND. From dismantling negative attitudes to providing factual information and support, nominees embody a commitment to dignity, respect, and positive change.

👏 Meet Stuart Cosgrove - A Beacon of Compassion: Stuart, a seasoned physiotherapist with a career spanning back to 1982, has displayed exceptional dedication. Beyond his private clinic, his influence extends to teaching acupuncture and manipulation, lecturing at medical institutes, and working with world champions like Dorian Yates and Ernie Taylor.

🌍 A Champion for Change: Stuart's journey is more than accolades; it's about breaking barriers. From his own bodybuilding triumphs to shaping the future of physiotherapy education, he embodies the spirit of the Helen Bolter Award.

💙 In Memory of Dr Helen Bolter: The Helen Bolter Award is a tribute to the late Dr Helen Bolter, a fierce advocate against social injustice. Her legacy lives on through individuals like Stuart, who share her passion for making a difference.

💬 Stuart says: 'I was very surprised to hear I have won this award. I feel very humbled by it all. FND is a relatively new condition to most physios, me included and it is still a steep learning curve to develop the best protocols to deal with patients with this condition. It is so frightening and frustrating for patients who suffer with this that showing empathy and concern is the first priority for the therapist. I also try to deal with each person individually as it’s definitely not a ‘ one size fits all’ scenario! So I was shocked but very happy to receive this award, and it spurs me on to continue to learn more about this debilitating condition and continue to help my patients to improve. Many thanks to all concerned!'

🙌 Congratulations, Stuart Cosgrove! Your dedication to challenging stereotypes and uplifting those affected by FND is truly commendable. Thank you for being a beacon of hope and inspiration.

🌿 Join us in Celebrating Stuart's Remarkable Achievements! Drop your congratulations and lets celebrate the incredible impact Stuart has made on the FND community. 🎊👏

#HelenBolterAward #FNDHopeUK #ChampionForChange #StuartCosgrove
#FND
#FunctionalNeurologicalDisorder

[American Academy of Neurology @AANmember]

Review and comment on draft guideline on management of functional seizures.

Comments are due by March 25: https://t.co/HqUGBDRY1b

#NeuroTwitter #Neurology

[FNDHopeUK @FNDHopeUK]

“Be patient and kind to yourself. It can be tough, but you're tougher! 🧡”
…

We have a wonderful FND community who’ve shared their advice based on their lived experience for managing, easing symptoms, and retraining the brain.

What would you add?

#fnd

[FNDHopeUK @FNDHopeUK]

There is always hope 🧡

Whilst it may not feel like it during the most challenging moments, it is possible to overcome FND.

Here’s an inspiring story from Andy, one of our FND Warriors.

Watch Andy’s full story and others here https://t.co/jnJkZMHdoV

#fnd

[FNDHopeUK @FNDHopeUK]

Here are some classroom-friendly calming tips to help regulate your nervous system:

🧊 Touch: Grip a cold object.
🌸 Smell: Essential oils.
🧠 Engage your senses: with the 54321 Exercise.
👃 Breathwork: Paced breathing.
🛑 Step away: Take time out to give yourself space.

#fnd

[FNDHopeUK @FNDHopeUK]

As 2024 draws to a close, our volunteers at FND Hope UK are taking a well earned break over the festive period. We will be closed from 16th December 2024 until 6th January 2025. May we wish you all a Merry Christmas and a Happy New Year!

[FNDHopeUK @FNDHopeUK]

📣 Final call for participants for @kcl_london study!

They need just five more participants - one female and five males to reach the target sample size and begin the study.

Can you help?

Please share 🙏

[FNDHopeUK @FNDHopeUK]

Back in November, we launched our ❄️ Christmas Card Competition ❄️ and encouraged the extended FND community to get involved and help us fundraise for FND Hope UK.

Over the next 12 days, we’ll be spotlighting the winning designs ✨

Kicking off with this bright, bold cre ...

[FNDHopeUK @FNDHopeUK]

But we know how hard it can be, with debilitating symptoms, to make big changes to your nutrition.

So, let’s start small, with tea 🍵
…

Nutrition info and tea recipes, including:

🚶‍♂️ Aches & pains relieving tea

🧠 Brain-power tea

😴 Deep sleep tea

In our bio #FND

[FNDHopeUK @FNDHopeUK]

Relaxation is essential for sleep and wellbeing, but our modern lifestyles, full of stressors, can impact our ability to relax.

Have you tried 3-2-1 sleep meditation? Meditation is one of the ways we can relax our bodies and mind.

Learn this technique and more. Link in bio #FND

[FNDHopeUK @FNDHopeUK]

Mindfulness for Positive Self-Coaching 💆⠀

Back by popular demand, this free mindfulness course for positive self-coaching, led by @irenerouragarcia, is designed especially for people with FND. ⠀

Learn more & Save your spot 👉https://t.co/WglkhDTunk

#fnd #mindfulness

[FNDHopeUK @FNDHopeUK]

Need to talk?

Whatever you're going through, you can call the Samaritans any time, from any phone for FREE 📱 116 123

Mind provides a safe space to talk about your mental health 📱 0300 102 1234

Explore more support services: https://t.co/dgEfgrtogM

[FNDHopeUK @FNDHopeUK]

Thank you to University College London Hospitals who have produced a series of self-help videos for FND management.

View all self-help videos 👉

https://t.co/w8aPFAIoKE

#selfhelp #selfhelptools #selfhelptips #selfhelpskills #fndsupport #fnd #functionalneurologicaldisorder

[FNDHopeUK @FNDHopeUK]

Is misdiagnosis possible?

Yes, misdiagnosis is a probability with all illnesses.

It is important that functional diagnoses derive from positive signs not negative test results.

Read more about misdiagnosis: https://t.co/s0SZVKAbev

#fnd

[FNDHopeUK @FNDHopeUK]

Did you know that visual changes can be an FND symptom?

Diplopia, known as double vision, occurs when you see objects duplicated in your vision.

Photophobia, also known as sensitivity to light, is the inability to tolerate light.

More 👉 https://t.co/H2YIwBTYvC
#fnd

[FNDHopeUK @FNDHopeUK]

What's it really like living with Functional Neurological Disorder?

Whether you’re an adult or child living with FND or a carer, here’s your chance to have your say 👉 https://t.co/pTSnU2iw3b

#MyNeuroSurvey #FND #LivingWithFND #FunctionalNeurologicalDisorder

[FNDHopeUK @FNDHopeUK]

Honorary Professor of Neurology and FND Hope Medical Expert Committee (MEC) member, Jon Stone, shares his top tips for carers and caregivers of those living with FND:

Make time for you
Address the relationship
Manage ups & downs
Read more 👉 https://t.co/mU7tZcB9gu

#fnd

[FNDHopeUK @FNDHopeUK]

Want to talk to others who understand exactly what it’s like to live with FND or support someone living with FND?

🧡 Join a peer support group 🧡

Learn more and sign up 👉

https://t.co/jtNljNKGt8

🙏 Please tag and share with people who may benefit.

#fndpeersupport

[FNDHopeUK @FNDHopeUK]

🧡 Online Movement & Wellbeing Classes 🧡

Learn more and sign up 👉

https://t.co/YBOBMHteRj

🙏 Please tag and share with people who may benefit.

#fnd

[FNDHopeUK @FNDHopeUK]

Thank you to everyone who took part in our campaign

By sharing your stories and our content you’ve helped to raise awareness of FND which will help to Stop the Stigma! 🧡

#stoptheFNDStigma

#FND

#FunctionalNeurologicalDisorder

[FNDHopeUK @FNDHopeUK]

**Update**

We're still looking for more participants diagnosed with functional seizures.

We are particularly in need of more females with the diagnosis.

...

#FND #FunctionalNeurologicalDisorder #ResearchStudy #MedicalResearch #FNDAwareness