FOXG1 Research

Parent-led global foundation driving the FOXG1 gene therapy to children worldwide, while accelerating rare disease drug development at large.

[FOXG1 Research @Foxg1Research]

We are are so deeply grateful to the California Institute for Regenerative Medicine (CIRM) for awarding our parent-led foundation $4.9 m to advance FRF-001 - our FOXG1 gene therapy clinical trial. #cirm #foxg1 #genetherapy

[FOXG1 Research @Foxg1Research]

We refused to believe that nothing could be done and took developing a treatment into our own hands! #foxg1syndrome
Make history with us!
https://t.co/5ge9surk31

[FOXG1 Research @Foxg1Research]

This summer, the #FOXG1 #genetherapy clinical trial begins! Every dollar donated gets us closer to bringing the first treatment to FOXG1 children across the world.
https://t.co/yRIIFoXz4S

[FOXG1 Research @Foxg1Research]

The summer it begins — our midyear newsletter is here 🦊 - https://t.co/8PBNPboeE7

[FOXG1 Research @Foxg1Research]

FOXG1 is heading to the Sports Emmys! The @espn @CollegeGameDay piece about Lawson Luckie and his brother Cannon is nominated! This beautiful story deserves to win - it shows what a brother’s love really means. 🧡🦊👊🏻🏈@lawson_luckie @TomBrady @UGAAthletics

[The Emmys @TheEmmys]

The #SportsEmmys Nominees for Sports Feature – Short Form are:
- All Heart (@foxsports)
- @BehanStrong (@cbssports)
- Faces Forever Young (@NBCSports @peacock)
- Just Getting Started (@foxsports)
- Luckie (@espn)
- RJ (@foxsports)
- A World Away (@espn)

[The Emmys @TheEmmys]

The #SportsEmmys Nominees for Sports Feature – Short Form are:
- All Heart (@foxsports)
- @BehanStrong (@cbssports)
- Faces Forever Young (@NBCSports @peacock)
- Just Getting Started (@foxsports)
- Luckie (@espn)
- RJ (@foxsports)
- A World Away (@espn)

[FOXG1 Research @Foxg1Research]

@EveryLifeOrg We want to thank you @EveryLifeOrg for your incredible advocacy and determination, bringing together the rare disease community to fight for the critical reauthorization of the PRV to support life-changing therapies for those who are most overlooked. Thank you!

[FOXG1 Research @Foxg1Research]

Breaking News! The FDA has cleared the #FOXG1 #GeneTherapy clinical trial to begin! Watch as our co-founders Nasha and Nicole announce this news, and share what this means and what comes next.
https://t.co/noGM9Vgomg

[FOXG1 Research @Foxg1Research]

Hot off the press! 🗞️
The 2025 Impact Report is here!
2025 marked a pivotal year for the #FOXG1 Research Foundation. #genetherapy #raredisease
👉 Read our 2025 Impact Report: https://t.co/CfH2X1cicY

[FOXG1 Research @Foxg1Research]

If you want to understand the thinking behind the FOXG1 Research Foundation and our approach to sponsoring our own gene therapy clinical trial, this conversation is a can’t miss.

Thank you BridgeBio for diving deep into Nasha’s story and for your focus on rare.

[BridgeBio Pharma @BridgeBioPharma]

“What happens when we stop accepting the limits placed on rare disease communities?”

On #OnRareInnovators, part of the #OnRarePodcast, BridgeBio’s Mandy Rohrig and David Rintell talk with @NashaFitter about her daughter Amara’s diagnosis of FOXG1 syndrome and her work with @Foxg1Research.

🎧 Listen: https://t.co/MovObs9bdM

[FOXG1 Research @Foxg1Research]

Our community is grieving the loss of our beautiful FOXG1 warrior, Cadence. It is just unfair and heartbreaking to say goodbye to such a bright light. To her amazing parents, you will always be our family and we will always honor sweet Cadence with our relentless work. 🧡🙏🏼

[FOXG1 Research @Foxg1Research]

2025 is almost over! There’s still time to make a difference. Your #DAF gift today fuels tomorrow’s change. Give now: https://t.co/UFDYLN76hv
@givinblockdonor #nonprofit

[FOXG1 Research @Foxg1Research]

Tonight’s plans can change a child’s future.
Dine in and donate to a #FOXG1 fundraising team for your gift to be doubled! https://t.co/mA0t0FPouJ

[FOXG1 Research @Foxg1Research]

@BernieSanders you delivered the most devastating blow to parents with children whose lives depends on the #GiveKidsaChanceAct - 30M Americans suffer with a rare disease and you’re the only one who couldn’t help families from suffering. It doesn’t even cost taxpayers $!

[FOXG1 Research @Foxg1Research]

Giving Tuesday Match! All donations to a FOXG1 child’s team will be doubled up to $500k! Thank you for helping!
https://t.co/mA0t0FPouJ

[FOXG1 Research @Foxg1Research]

Help bring a promising gene therapy to FOXG1 children worldwide with your #GivingTuesday2025 gift

https://t.co/KD7kAHDe94

[FOXG1 Research @Foxg1Research]

Your gift today brings us closer to delivering the FOXG1 Gene Therapy to children worldwide. https://t.co/mA0t0FPouJ #GivinTuesday2025 g

[FOXG1 Research @Foxg1Research]

It’s @GivingTuesday!
This #GivingTuesday, your gift to any FOXG1 fundraising team is DOUBLED. We’re close bring the first treatment to children with #FOXG1syndrome — and we can’t do it without you.

Help us reach $500,000 today. Give now.
🔗 https://t.co/ulzvkpA0du

[FOXG1 Research @Foxg1Research]

We’re thrilled to announce that our wonderful supporter, Fondation Thot, is generously matching all donations up to $500,000! That means every dollar raised will now go twice as far to help bring our gene therapy to children worldwide.
https://t.co/mA0t0FPouJ

[FOXG1 Research @Foxg1Research]

@stacygadawg @TomBrady Right?!! He is helping up to save children's lives with this one post! We are so grateful!