Fred Piel 💙🖤🌍

Geographer/epidemiologist, Map maker, Cyclist. Environment/Health. Sickle cell disease/cystic fibrosis/inequalities. He/him.

[Global Sickle Cell Disease Network @GlobalSCDN]

📣The 5th Global Congress on Sickle Cell Disease is now accepting abstract submissions! 🗓️The deadline for submission is: Wednesday, January 15, 2025, at 11:59 p.m. Pacific time.
More information↪️ https://t.co/ADbQz99Abt

[Rutendo-rm.bsky.social @Rutendo_rm]

🔔Sharing our last blog post of 2024! Our deepest thanks and appreciation for your incredible response and effort in participating and disseminating our #sicklecell survey @NHS_RHO @FredPiel @SickleCellUK https://t.co/ZXxHavYfF4

[Professor Chris Whitty @CMO_England]

(1/6) Cities bring particular challenges and opportunities for the health of those who live, work and study in them.

This CMO annual report explores what we can do to improve health in cities:

https://t.co/XlNO7tsJvG

[Sickle Cell Society @SickleCellUK]

🩸 What is the PSP?
The Priority Setting Partnership unites patients, carers & professionals to identify key unanswered questions in Sickle Cell research, focusing on genomics to improve care.📢 Share your insights: https://t.co/UbzDoYbbT5 #SickleCell #PSP #Genomics #PatientVoice

[European Hematology Association @EHA_Hematology]

New #EHAUnplugged episode available now: Screening for Sickle Cell Disease

In this engaging episode, Prof. David Rees discusses the present challenges of sickle cell disease screening in Europe and beyond. The conversation explores antenatal and neonatal screening practices and their crucial role in making informed choices and ensuring life-saving early interventions. 

Listen now: https://t.co/GttThd6dt9

[Sickle Cell Society @SickleCellUK]

📣 Help Shape the Future of Sickle Cell Research!
Patients, caregivers & professionals—share your top research priorities through our survey. Together, we can focus on what matters most.
🌟 Have your say: https://t.co/UbzDoYbbT5
#PSP #SickleCell #PatientVoice #ResearchMatters

[Dr Habib Naqvi MBE @DrHNaqvi]

Experiences of people with sickle cell are key to our comparative research programme with @imperialcollege. We encourage you to participate in this short survey, or to share the survey with others who may be eligible: https://t.co/9TCBM4ZWK0

[ERN EuroBloodNet @ERNEuroBloodNet]

🚨 Dear #SickleCellDisease Community 🚨

We invite patients, caregivers, & families to join a 🌍 global survey on improving #SCD care.

💬 Share your insights!
🔗EUSurvey - Survey
🌐 Available in 8 languages.
Your voice matters—let’s shape the future of #SickleCell healthcare! ❤️

[Rutendo-rm.bsky.social @Rutendo_rm]

Our survey aims to gather insights on inequalities in sickle cell and is open to adults with sickle cell or caregivers of people living with sickle cell. Please share our survey to those who may be eligible. @SickleCellUK @EHU_ARCNWL @FredPiel https://t.co/Apvv3UMYK1

[Rutendo-rm.bsky.social @Rutendo_rm]

🔔 Delighted to share our latest blog post on our #sicklecell comparative research with @NHS_RHO in which we focus on our patient engagement survey @FredPiel https://t.co/p0CxL1iU0d

[NHS Blood Donation 🩸🩹 @GiveBloodNHS]

🩸 We need more people of Black heritage to #GiveBlood this #BlackHistoryMonth to grow the number of blood donors with well-matched blood to help those with sickle cell disorder.

Become a donor or book your next appointment ➡️ https://t.co/V2v3GWGUzE

#SaveLives #GivingType

[NHS @NHSuk]

Sickle cell disease is a lifelong blood disorder, with many patients needing regular blood transfusions.

To help treat thousands of people living with sickle cell disease, @GiveBloodNHS urgently needs more people of Black heritage to donate blood.

https://t.co/D1scn0ahoz

[Fred Piel 💙🖤🌍 @FredPiel]

Our Editorial in @Hemasphere_EHA is published today. https://t.co/lBspyIJEYc. Lots happening on #sicklecell in #India at the moment. @IcmrNiih @ICMRDELHI

[The Lancet Haematology @TheLancetHaem]

“For more than 20 years, The Global Fund to Fight AIDS, Tuberculosis and Malaria has been at the forefront of efforts… with remarkable success... We urge [them] to make hydroxyurea universally accessible for #sicklecell disease… in LMICs”

New Comment https://t.co/WjGkPq4pQ2

[Fred Piel 💙🖤🌍 @FredPiel]

@uksciencechief @imperialcollege Sorry I missed it.

[Rutendo-rm.bsky.social @Rutendo_rm]

🔔 Excited to share our latest blog post which focused on #sicklecell awareness month and more! @FredPiel @NHS_RHO @SickleCellUK
Click the link below 👇🏾
https://t.co/x1ibc7qM3o

[Sir Michael Marmot @MichaelMarmot]

Our new @MarmotIHE review concludes racism damages health & wellbeing & drives avoidable inequalities between ethnic groups across London @SadiqKhan @DrHNaqvi @LDN_gov @LondonAssembly @UCL
https://t.co/yQnYlDKEOb

[Sir Michael Marmot @MichaelMarmot]

Social justice requires we take urgent action on the evils of racism @DrHNaqvi @profkevinfenton @SadiqKhan @mayorofLDN @LDN_gov @LondonAssembly @UCL https://t.co/XFfkZMdCl7

[ASH @ASH_hematology]

Updated #SickleCell research priorities are live! For the next 5 years, we encourage researchers to study unaddressed questions and specific research topics aimed to help #ConquerSCD.

Read the announcement here: https://t.co/fTOsAguxAN

[The Red Cell Network @TRCNHCC]

🩸OFFICIAL TRAILER🩸
SICKLE - The Docufilm

For information on where to view the full film, you have to subscribe to The Red Cell Network Website!

https://t.co/SQSNyqxMPb

#SickleCellAwarenessMonth
#SickleCellDisorder