Frida’s Footsteps

A blog about supporting my children, one of whom happens to have #DownSyndrome. Ideas for play & development and for obtaining relevant services as she grows.

[Frida’s Footsteps @FridasFootsteps]

‘Most of all, I also hope it will be a place where I can help people understand how our life will be no different because we have a child who has Down Syndrome. It will be what we make of it and I have a feeling it is going to be a lot of fun.’ https://t.co/k1pgeHl9we

[Rosa Monckton @MoncktonR]

Happy Mother’s Day to all those with children with a learning disability.I know for many it has been a challenging and exhausting year. Fights have got harder to get what should be a given.Your children would thank you if they could. Sending you all a massive hug on their behalf

[Sarah Gordy @sarah_gordy]

Fantastic I felt powerful. Thanks all

[Frida’s Footsteps @FridasFootsteps]

On the final day of #WorldDownSyndromeAwarenessMonth I wanted to reflect on how good these 3 years of having Frida in our lives has been. We’ve made friends for life, have a family unit that giggles & has lots of fun together. So much to celebrate and loads to look forward to 💕

[Frida’s Footsteps @FridasFootsteps]

Day 30 #WorldDownSyndromeAwarenessMonth its clear from my posts that we’re proud of both of our girls, love them & have high hopes for their futures, extra chromosome or not. They make us laugh, challenge us & other than improved listening from both, wouldn’t change a thing 💕

[Frida’s Footsteps @FridasFootsteps]

Day 29 #WorldDownSyndromeAwarenessMonth And why not if life is good?

[Frida’s Footsteps @FridasFootsteps]

Day 28 #WorldDownSyndromeAwarenessMonth. When asked: what is the best thing about Frida, Ada said: ‘she is loud and very funny.’ Also: ‘she is annoying but I love her though.’ We all loving having Frida in our life, love her and are SO proud of her 💕

[Frida’s Footsteps @FridasFootsteps]

Day 27 #WorldDownSyndromeAwarenessMonth @HeidiCrowter95 and her husband are celebrating 6 years together. As do many people with DS, both have fun jobs & live together. @sarah_gordy is a talented actress, you’ve got Ellie on the cover of Vogue & George on CBeebies! #NoLimitations

[Heidi Crowter-Living the dream @HeidiCrowter95]

Had a lovely weekend anniversary with my lovely husband in Birmingham, here is a pic of us out for a meal celebrating being together for 6 years .
We went to see Charlie and the chocolate factory the musical on Saturday evening it was amazing!

[Frida’s Footsteps @FridasFootsteps]

Day 26 #WorldDownSyndromeAwarenessMonth I laugh in the face of this myth. You can’t predict anyone’s future. Just don’t put limitations on anyone - easy peasy.

[Frida’s Footsteps @FridasFootsteps]

Day 25 #WorldDownSyndromeAwarenessMonth I find this issue to be fascinating. People ask how Frida is impacted by having DS in a range of ways but always with interest, generally with kindness. I tend to explain that there isn’t a spectrum but everyone is different and amazing 💕

[Frida’s Footsteps @FridasFootsteps]

Day 24 #WorldDownSyndromeAwarenessMonth This is true for Frida. Her spoken vocab is so strong, possibly because it’s been supported by Makaton & books from an early age. She’s about to start evidence based phonics & reading programme @seeandlearn. Can’t wait to see the impact.

[Frida’s Footsteps @FridasFootsteps]

Day 23 #WorldDownSyndromeAwarenessMonth Yep - this myth is utter twaddle. Frida can already recognise & read her name, our names & some animals. And @HeidiCrowter95 has the NEATEST handwriting I have ever seen, AND has written a book. Frida loves to learn and is good at it 💕

[Frida’s Footsteps @FridasFootsteps]

Day 22 #WorldDownSyndromeAwarenessMonth ‘With early intervention and ever improving health care for our little ones, I can see that average age continuing to increase, along with the quality of life lived.’ https://t.co/a8LS068tXP

[Frida’s Footsteps @FridasFootsteps]

Day 21 #WDSAM I still stand by this: https://t.co/0hJkdlTaIz‘People have Down Syndrome, they don’t suffer from it. Suffering is very subjective and so far, other than when she is STARVING because I haven’t fed her for over an hour, Frida hasn’t suffered for a minute of her life!’

[Frida’s Footsteps @FridasFootsteps]

Day 20 #WorldDownSyndromeAwarenessMonth Not everyone loves a hug. Not everyone with DS loves a hug. Frida does love a hug and at times hands them out freely. If Frida doesn’t get the cuddle back she thinks she deserves it may get a bit strong. Just don’t make assumptions please.

[Frida’s Footsteps @FridasFootsteps]

Day 19 #WorldDownSyndromeAwarenessMonth This always makes me chuckle when people say ‘she’s always happy.’ Frida tends to be happy more than not (not unlike her sister), yes, but like everyone she gets cross, sad, excited, quiet, cheeky, nervous, shy, thoughtful, hesitant… etc

[Born Fabulous Podcast @PodcastBorn]

1/"And while you're walking the walk off of that old path, it's ok to stand still and look back at how much you've overcome. To acknowledge the brush you've cut, the mountains you've climbed, the oceans that didn't drown you. It's ok to appreciate where you are. It's ok to ...

[Frida’s Footsteps @FridasFootsteps]

Day 18 #WorldSownSyndromeAwarenessMonth the only thing I’ll allow you to be sorry about is the red tape I have to navigate to get the right support for Frida to continue learning as well as she does with us. But we aren’t sorry so why should you be? Life with Frida is wonderful.

[Frida’s Footsteps @FridasFootsteps]

Day 17 #WorldDownSndromeAwarenessMonth I am more than happy for you to talk to me about how beautiful Frida is and ask me about her, but please don’t do any of the stuff below. I really love hearing about other people who have DS but again, less of the ‘I know one’ thanks 🤮