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Deborah Thelwell
@FTDismyniche
Aspects and experiences of Frontotemporal Degeneration
Phoenix, AZ
Joined September 2013
66
Following
73
Followers
241
Posts
Deborah Thelwell
@FTDismyniche
over 10 years ago
FTD -Living with Dad https://t.co/xK30zJMfWB
Deborah Thelwell
@FTDismyniche
over 10 years ago
FTD – The Empty Chair https://t.co/kTFY2W3Sxa
Deborah Thelwell
@FTDismyniche
over 10 years ago
Turning the AZ State Capitol Purple https://t.co/tkxdopzda6 via
@gofundme
Deborah Thelwell
@FTDismyniche
over 10 years ago
Do it people!
#AZCapitolPurple2016
Who to follow
RareDementiaSupport
@RareDementia
We run specialist support group services for individuals living with, or affected by a rare dementia diagnosis including: FAD, FTD, fFTD, PCA, PPA, LBD & YOAD
Penn FTD Center
@PennFTDCenter
The University of Pennsylvania Frontotemporal Degeneration Center
FTD Registry
@EndFTDregistry
The Registry is an online database to collect information from those affected by all types of frontotemporal degeneration (FTD).
Deborah Thelwell
@FTDismyniche
over 10 years ago
Turning the Capitol purple on Jun12 here in AZ! Thanks CADA for inviting me to speak
#AZcapitolpurple2016
Deborah Thelwell
@FTDismyniche
over 10 years ago
AFTD Educational Conference 2016 – New BFF’s! https://t.co/smKNUR5qWO
FTDismyniche
retweeted
The AFTD
@AFTDHope
over 10 years ago
Thank you
@KatieBrandt6
for being a part of our community and for your support! https://t.co/ZwJYpbYsjA
FTDismyniche
retweeted
The AFTD
@AFTDHope
over 10 years ago
Thank you to keynote speaker, Nancy Carlson for delivering a powerful address and for sharing your journey with us!
Deborah Thelwell
@FTDismyniche
over 10 years ago
Congrats
@FTDunitBoston
!
FTDismyniche
retweeted
FTD Unit Boston
@FTDunitBoston
over 10 years ago
·
Boston
1st tweet! We would like to use these 140 characters to direct you to our lab website! Excited to share this journey https://t.co/Vjs4ssBB2H
Deborah Thelwell
@FTDismyniche
over 10 years ago
"Environmental support is to a patient with FTD what a prosthetic limb is to an amputee" Dr Alvin Holm.
#AFTDconference2016
Deborah Thelwell
@FTDismyniche
over 10 years ago
Dr Alvin Holm presenting a Care Paradigm for people with FTD
FTDismyniche
retweeted
The AFTD
@AFTDHope
over 10 years ago
AFTD Executive Director, Susan Dickinson, discusses new initiatives and programs during today's conference.
FTDismyniche
retweeted
FTD Registry
@EndFTDregistry
over 10 years ago
An amazing gift announced to help
#treatFTD
#endFTD
https://t.co/9fpucjzqfO
FTDismyniche
retweeted
The AFTD
@AFTDHope
over 10 years ago
Great questions brought to the morning speakers at AFTD's Conference! A community effort to
#endFTD
Deborah Thelwell
@FTDismyniche
over 10 years ago
Sign up now! https://t.co/is4o4P5kuR
#endFTD
Deborah Thelwell
@FTDismyniche
over 10 years ago
FTD Disorders Registry-pulling together the pieces of the puzzle!
#endFTD
FTDismyniche
retweeted
The AFTD
@AFTDHope
over 10 years ago
AFTD Conference is now under way and with a turnout of 300 attendees! Thanks to all who are here to help
#endFTD
Deborah Thelwell
@FTDismyniche
over 10 years ago
Dr David Knopman, professor in Neurology at Mayo Clinic Rochester. Discussing research advances in FTD
#dementia
#FTD
#research
Deborah Thelwell
@FTDismyniche
over 10 years ago
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