Game for Cures

Streaming for @CureRareDisease and our mission to develop medicines for kids fighting fatal diseases. #GameForCures

[Cure Rare Disease @CureRareDisease]

Calling all #Whiskey Lovers! The Second Annual SETX Whiskey Festival tickets are on sale now. All proceeds will support CRD. Buy your tickets now before they sell out. #whiskeylover #rarediseaseawareness #fundraiser #whiskeyfest #setx #setxwhiskeyfest #cureraredisease #dmd

[Cure Rare Disease @CureRareDisease]

October 7, the Baweja & Warner families hosted our inaugural Waves of Hope Wine Tasting event in California, raising more than $83,100! Thank you to our community who joined us for an evening by the ocean in support of our work & mission. #raredisease #genetherapy #dmd #adssl1

[Game for Cures @GameForCures]

Thank you @Luwuaren for supporting @CureRareDisease! 🩵 #gameforcures #rarediseaseawareness #fundraiser

[Luaren ✨ @Luwuaren]

The fundraiser is still open for any last min donations to support @CureRareDisease <3 https://t.co/2SIA3RMWhB

[Cure Rare Disease @CureRareDisease]

We are grateful to our CRD community for your heartwarming gestures in remembering Terry, who left us a year ago yesterday. Special thanks to the Sharp family for their touching blog tribute to honor Terry's memory. #duchenne #duchennemd #cureraredisease #raredisease

[Cure Rare Disease @CureRareDisease]

Check out this great TV interview featuring the inspiring Bryan Family and their unwavering fight against #Duchenne muscular dystrophy. Thank you to Dynamic Spine & Neuropathy for continuing to support Bryan Boys for Hope & @CureRareDisease. #rarediseaseawareness #genetherapy

[Cure Rare Disease @CureRareDisease]

Here is a letter from Terry's Parents: https://t.co/jtaVE4iU9Z

[Cure Rare Disease @CureRareDisease]

One year ago, Terry Horgan’s life-long battle with #DuchenneMD ended. Every day since, our team has continued to move science forward for ultra-rare disease patients in his honor. His bravery & resilience remains the inspiration for our community & the patients still fighting.

[Game for Cures @GameForCures]

Your continued support for @GameForCures helps @CureRareDisease continue to break down barriers in the #raredisease community. Thank you 🩵 #Duchenne #breakingbarriers #DuchenneMuscularDystrophy

[Cure Rare Disease @CureRareDisease]

It's #WorldDuchenneAwarenessDay & today CRD is celebrating the community that inspires us - the researchers, families & boys that are breaking down barriers. Together, we will continue to create a better future for everyone impacted by #Duchenne. #WDAD2023 #WDAD #breakingbarriers

[Cure Rare Disease @CureRareDisease]

Last week, @SenBlumenthal visited CRD's lab space in Woodbridge, CT to see the impact of the designated federal grant on the renovations. We appreciate his support in helping to secure the critical funding for this project, which will help advance CRD's R&D. #rarediseaseresearch

[Cure Rare Disease @CureRareDisease]

It's #WorldDuchenneAwarenessDay & today CRD is celebrating the community that inspires us - the researchers, families & boys that are breaking down barriers. Together, we will continue to create a better future for everyone impacted by #Duchenne. #WDAD2023 #WDAD #breakingbarriers

[Cure Rare Disease @CureRareDisease]

Check out our first Researcher Spotlight as we take you through the Weisleder Lab at the @OhioStateMed with Dr. Noah Weisleder and explain how their collaboration with CRD is helping to advance life-saving therapies for rare and ultra-rare diseases.

[Cure Rare Disease @CureRareDisease]

We're celebrating our awesome community with a MERCH GIVEAWAY! Sign up for CRD's Newsletter by clicking the link & tag 3 friends in the comments! One lucky winner will receive a CRD Merch Bundle filled with exclusive goodies! Giveaway ends 8/14 at 3 PM EST #rarediseaseawareness

[Cure Rare Disease @CureRareDisease]

It's National #DisabilityIndependenceDay! 33 years ago today on 7/26/90, #ADA was signed into law that prohibits discrimination of individuals with disabilities. Today, while we celebrate milestones that have brought us this far, we recognize that we still have a long way to go.

[Cure Rare Disease @CureRareDisease]

Have you purchased your tickets to our Waves of Hope Wine Tasting event? Join us for a night to remember while supporting our work to bring life-saving therapeutics to patients left behind. Visit our website in our link in bio for sponsorship opportunities & to purchase tickets.

[Cure Rare Disease @CureRareDisease]

Happy #DisabilityPrideMonth! The month of July is dedicated to celebrating #disability as an integral part of one's identity, and it provides an opportunity to share the unique experiences of the disabled community. Gain a better understanding of life with disabilities!

[Cure Rare Disease @CureRareDisease]

The #ADA was signed into law 23 years ago turning July into Disability Pride Month. During #DisabilityPrideMonth, we raise awareness & reflect on the history of disability rights. What are you doing this month to help raise awareness for #disabilityrights?

[Cure Rare Disease @CureRareDisease]

Nearly $300,000 was raised during the 33rd annual Mirabito Golf Classic in Syracuse NY. Thank you @Mirabito Energy Products for choosing CRD again as one of your beneficiaries! Check out some of the photos from the golf classic. #fundraiser #rarediseaseawareness #beneficiary

[Game for Cures @GameForCures]

Check out @CureRareDisease's latest newsletter! #genetherapy #drugdevelopment #raredisease

[Cure Rare Disease @CureRareDisease]

Our June newsletter is out and full of updates about our patient registry, upcoming events, and more. Visit our website and make sure to subscribe so you don't miss an update from CRD! #raredisease #rarediseaseawareness #drugdevelopment #genetherapy #dmd #lgmd #adssl1 #sca3

[Cure Rare Disease @CureRareDisease]

Did you know in vivo testing plays a vital role in #drugdevelopment? By conducting tests within living organisms, we can better understand how potential treatments interact with biological systems & test their safety & efficacy before they reach patients. Read more in our blog.

[Cure Rare Disease @CureRareDisease]

Have you checked out CRD's merch collection yet? From trendy apparel to stylish accessories, every purchase supports groundbreaking research. Don't miss out, head to our website and grab your favorites now! #ShopForACause #cureraredisease #rarediseaseawareness