We are a charity launched in September 1994 & based in Rochdale. We raise money to research into treatments for life threatening genetic & metabolic disorders
@GeorginaJoelle@PaulLawBlacks@RealDeniseWelch@JennyPowellTV Good to have you back and your support. Thanks for coming finding me and saying hello I did come over a couple of times but I think you must have been enjoying yourselves on the dance floor bar etc Speak soon x
@RealDeniseWelch@gemappeal Wow! I nursed kids with Hunters in my training in the ‘70s ..so delighted with the progress and a fab achievement ! Congrats x
Harry has Hunters Syndrome. He would have died before his 16th birthday before receiving the treatments made possible by the fundraising of @gemappeal. Today, Harry heard he’s passed his GCSE’s and has got into college!! I’m a very proud patron.
Congratulations on first virtual event #strawberrysparkle. Thanks to everybody for attending. We learned 2 things today namely we can compete in the virtual world and just how much we are missing doing the real thing!