Aunt Bee Bee 🐝

broke endometriosis science once lol | hEDS, Hashimotos, dysautonomia | executive consultant and ghostwriter

[Aunt Bee Bee 🐝 @GetsBee]

Hey so y’all have inspired me. I’m gonna be releasing my overnight blowout technique soon

I’m actually gonna use the tutorial to launch a platform I hope will become a disabled sisterhood of sorts. Like sharing all the things we wish we knew that makes life accessible!

[Aunt Bee Bee 🐝 @GetsBee]

@theskinprophet Are there any connective tissue clinics near you? I’m going to one near SLC and we’ve narrowed it down to HEDS and another. Also figured out i’m a carrier for another which might indicate something weirder in how my genes are expressed

[Aunt Bee Bee 🐝 @GetsBee]

oh i wasn’t depressed, i just needed to prioritize those who actually bring me joy!!!

(soft launching Aiden and I breaking up. Wild 3.5 years later but the ways??? he brought me down??? and now i spend all my time with people who lift me up?!?!?)

[Aunt Bee Bee 🐝 @GetsBee]

@foysavas @eCom_Amin interesting! Sounds like Doug certainly knew his value proposition but, with how sensational the investors got... the vision was lost. I see it in incubators all the time - a great foundation that loses the simple principle of designing for what’s needed, not what’s cool. rough.

[Aunt Bee Bee 🐝 @GetsBee]

@chroniccryer Berlin or Amsterdam tbh

[Aunt Bee Bee 🐝 @GetsBee]

@sockmoments i made all 5 of my niblings watch Monsters Inc because of the og tweet lol

[Aunt Bee Bee 🐝 @GetsBee]

@jblainefoster oh god im so sorry for your family. Wishing him all the support im seeing my nephew with pediatric cancer receiving. Jo wants to be a doctor, too, and would love to see your brother thrive. ❤️

[Aunt Bee Bee 🐝 @GetsBee]

@murffyslurtz i’ve started and managed multiple bands. but like @saintclare_ is the one of the best songwriters i know

[Aunt Bee Bee 🐝 @GetsBee]

fashionably late

[Aunt Bee Bee 🐝 @GetsBee]

being a lions fan is not good for the heart (at least we won)

[Aunt Bee Bee 🐝 @GetsBee]

@themaggieshow_ i have negative funds rn but you would be the perfect steward of this house

[Aunt Bee Bee 🐝 @GetsBee]

we knew this was going to happen at some point during cancer treatment but i’m always shocked at how much needs to be done when we’re alreDy all exhausted

[Aunt Bee Bee 🐝 @GetsBee]

24 hours we still don’t know why jo has fever and abdominal pain

got life flighted and everything from one children’s hospital to the other

the depression is real. having the older kids make themselves dinner.

kinda want to make them watch hunger games

[Aunt Bee Bee 🐝 @GetsBee]

i wish my grandma was still alive so i could show this to her, an excellent piano accompanist / teacher, and have her say something like

“If this girl can play chopin with a chicken on her head with that posture, you can have that posture play Away In a Manager”

[Nature is Amazing ☘️ @AMAZlNGNATURE]

This is what I came to the internet for

[Aunt Bee Bee 🐝 @GetsBee]

@AndrewYang bruh please i just moved across the country to help my 5 year old nephew fight rare cancer. I’d use the money to subsidize the moving expense and everything else would go towards giving him and his 4 siblings a fun experience

[Aunt Bee Bee 🐝 @GetsBee]

horrible cyst burst.
so many kids wanting to hang out/ needing adult help.
i feel guilty for resting tbh

[Aunt Bee Bee 🐝 @GetsBee]

charlie got spooked by something

i was still sleeping when he ran down to my bedroom

Jo wanted to follow. I showed Jo Charlie’s little gray blanket

Jo said he needed a bigger blanket and put his gifted Minky Coture on Charlie. I have never heard this cat purr louder 🥹😭

[Aunt Bee Bee 🐝 @GetsBee]

@AndrewYang hey we met in June and Venture for America really fucked me over financially with how they closed. now i’m helping my 5 yo nephew fight pediatric cancer and could REALLY use the cash 😅

[Aunt Bee Bee 🐝 @GetsBee]

when i say i’m good at medical care coordination - i was told i’d have to wait until the end of January for a tilt test

I literally made 3 calls and now i’m getting it done on Tuesday 💅

[Aunt Bee Bee 🐝 @GetsBee]

got prelim diagnosis of pots via in office testing but need to go get the tilt table 🫠 but also this takes so much time and energy away from Jo and i’m struggling v much

[Aunt Bee Bee 🐝 @GetsBee]

Thank you to @BYUfootball for letting Joey encourage someone else for a change!

Getting to do round-offs for Cosmo is literally a dream come true for this kid ❤️

Hoping my alumnus gets 9-0 this weekend! In the words of Jo “Beat Utah! You can do it!”

[BYU FOOTBALL @BYUfootball]

TRUE BLUE HERO 💙 https://t.co/GALMuQoG6H

[Aunt Bee Bee 🐝 @GetsBee]

i have a lot of that’s on this RE: Medical Systems & Providers.

but also this is why we follow up with primary care within 48 hours of an ER visit - ER docs are looking for band aid fixes to symptoms. Docs are bad at referring when something lies outside their specialty

[Kelly @broadwaybabyto]

Me in ER with severe dehydration & tachycardia from POTS flare (undiagnosed at time)

Dr: “How much did you drink last night?”

Me: “I don’t drink”

Dr: “Tell the truth - if you don’t we can’t help”

Me: “I’m allergic to alcohol. I’ve had nothing to drink.”

Dr: “Don’t lie” 🧵 /1